Recent Activity

ECP liked FGG's comment on FGG's profile post

@Zugzug, I know what you mean. There are so many good people on here in bad situations they could never deserve. It completely solidifies my...

Juliane rated Varda's post Hug in the thread Got Tinnitus from Azithromycin (Z-Pack).

Three months have passed since I developed tinnitus from a 1000 mg dose of Azithromycin. The condition remains largely the same, with the...

Juliane rated Varda's post Hug in the thread Got Tinnitus from Azithromycin (Z-Pack).

At the beginning of the month, I took a single 1000 mg Z-Pack dose of Azithromycin. The original reason I visited the doctor was bladder tension...

Kam75 liked Bambam0's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Based on Dr. Shore's (well-understood) tight-lipped approach to sharing information about the study, the fact that she shared this at all is WILD.

Juliane liked MiaVIL's status.

How do you live with screeching. I just can’t. This is just existing. One sinus infection … one…

Juliane liked MiaVIL's status.

I can’t do it anymore. I have one of the worst cases here. Nothing is improving like I thought. High hiss screeching. I have hearing loss.

Juliane liked MiaVIL's status.

I am blowing up angry now. All talk no action Shore. RED FLAG- hiding the most important info- FDA approval, coming out, non somatic etc

ECP rated kingsfan's post Good Question in the thread Voluntary Assisted Dying / Euthanasia for Tinnitus Patients (Pegasos Swiss Association, Switzerland).

I'm honestly unsure what to do going forward. I took about a week using lower-rated earplugs while driving and slowly increasing the volume while...

marqualler rated kingsfan's post Agree in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Her tinnitus resolved (not sure if entirely, but it got better) in both ears after treating just one.

Juliane liked ECP's comment on cjbhab's profile post

I once asked my acupuncturist that question, and she said "cardio." I don't agree that exercise takes the anger away, but it does keep my mind...

Juliane commented on Thizzle's profile post.

I find it hard to fathom the stupidity of ENTs....It's like they have no clue whatsoever. Should be fired for what they did to you.

ECP liked Juliane's comment on cjbhab's profile post

Through quiet contempt and condemnation.

ECP liked cjbhab's comment on cjbhab's profile post

susan went over the results of their medical trials and explained the science of what is happening in the brain when you have T. She also answered...

Juliane liked Thizzle's status.

I wish everyone healing❤️

ECP liked cjbhab's comment on cjbhab's profile post

@ECP i do 90 mins cardio a day. it helps but i really just wanna smash something.

Juliane liked Thizzle's status.

No meds are the way to go,

marqualler liked dj_newark's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

It's completely standard for medical and medical device companies not to discuss FDA approval or device availability before release. Stop being...

marqualler replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.

It sounded like Dr. Shore didn't 100% know the answer to whether or not that would matter. Still, she was (similarly to her other Q&As) very...

ellees left a message on MAH1970's profile.

hello, what's your experience with gabapentin? does it worsen the tinnitus? thanks!

IYIiKe replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Wasn't there a caveat that if the method of action damaged the greater CNS, then that might be a different/more difficult subtype?

dj_newark replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.

It's completely standard for medical and medical device companies not to discuss FDA approval or device availability before release. Stop being...

dj_newark rated IYIiKe's post Agree in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

No, it's not; it's standard business practice.

JPGL rated marqualler's post Informative in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

I agree. It was a great webinar. She did a great job walking through the mechanism of the studies and explaining specifically why they are...

JPGL rated Cmspgran's post Agree in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Well, I just watched the HHF live webinar with Dr. Shore and thought it was fantastic. I learned a little more about the science, which reinforced...

JPGL rated Bhaveen's post Agree in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

I sympathize with the posts discussing how long this process is taking and how slow it seems. I share the frustration of this condition. However,...

JPGL rated DebInAustralia's post Agree in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

I have been following Dr. Shore's device since 2013. Why would you state that you are very skeptical about the device? We have been enlightened...

Muggumbo rated BB23's post Helpful in the thread Noise-Induced Hearing Loss Alters KCC2 and GABA Inhibition in the Auditory Centers.

Well, here's some more productivity with no results. I tried to reach out to the CEOs of Axonis, a married couple originally from Poland. I sent...

Norm23 rated kingsfan's post Agree in the thread Voluntary Assisted Dying / Euthanasia for Tinnitus Patients (Pegasos Swiss Association, Switzerland).

I'm starting to theorize that living quietly and protecting a lot primes you for worsening when you do experience loud sounds. I was relatively...

ajc replied to the thread Noise-Induced Hearing Loss Alters KCC2 and GABA Inhibition in the Auditory Centers.

You clearly took it too far. Reaching out to personal email addresses, Facebook profiles, and Whatsapp is going into the stalking territory.

Sironketchup liked Cmspgran's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Well, I just watched the HHF live webinar with Dr. Shore and thought it was fantastic. I learned a little more about the science, which reinforced...

Joey72 rated MiaVIL's post Funny in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Hiding the most important information such as when will the device be available and when are they going to submit for FDA approval is a huge red flag.

Juliane liked cjbhab's comment on Juliane's profile post

I want it bad.

Muggumbo replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.

I'm not calling you out specifically, but I see this a lot in this thread. It's completely possible that the device could end up being junk, but...

Bambam0 replied to the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Based on Dr. Shore's (well-understood) tight-lipped approach to sharing information about the study, the fact that she shared this at all is WILD.

Justin Jones left a message on LAM's profile.

your story is like mine. i hope you get this and can update us on your status. i have some questions for you.

BB23 liked MiaVIL's status.

I am blowing up angry now. All talk no action Shore. RED FLAG- hiding the most important info- FDA approval, coming out, non somatic etc

BB23 liked MiaVIL's post in the thread New University of Michigan Tinnitus Discovery — Signal Timing.

Hiding the most important information such as when will the device be available and when are they going to submit for FDA approval is a huge red flag.

Justin Jones commented on Cata's profile post.

i hear a low hum, too. i sleep with a fan running next to my head. it took me a while to try using a fan to sleep, because the hum i hear is...

Justin Jones set their mood to Alienated.

Sherif replied to the thread Unilateral Tinnitus After Shooting without Hearing Protection.

Update: Yesterday, I couldn't sleep. The buzzing in my right ear is getting louder and more intrusive, and sounds feel distorted. It also...