Recent content by 65vwbus

I have extreme chronic neuropathic pain in my head and face, that no drugs previously touched, but Retigabine has helped bring the pain level down. I also have very mild visual snow along with tinnitus. Half hour after taking it the drug kicks in, I feel drunk, and all my senses get heightened...

No idea if the violet/blue side effects are accumulative. Got another question to add though! Is the skin staining caused by the colouring in the pills? All the pills in their various sizes, other than the 200mg have indigo colouring in them. One other thing I've noticed by accident in the...

Progress Report Progress Report Date: Mar 26, 2015 Current Retigabine Dosage: 200mg x 3 Current Side Effects: Around 20 minutes after taking it, I feel quite drunk. This lasts for an hour. The best side effect is that the levels of my previously untreatable neuropathic head and face pain have...

I know this is an old post, but i've been thinking a bit today. I've been taking Retigabine for neuropathic pain in my face and head, and tinnitus which started at the same time, so must be related. It's working great for my pain levels, and helping a bit with the tinnitus too, although i'm not...

Progress Report Progress Report Date: Feb 16, 2015 Current Retigabine Dosage: 150mg x 3 Current Side Effects: I feel a bit sleepy/drunk for a while about an hour after taking the pills. I also feel happier, but i'm not sure if thats a direct or indirect side effect, because its also having...

Great news that you finally found out what's wrong with you! I hope the surgery doesn't hurt too much x

Hey @Zimichael :) I've been taking half a Primidone pill for months, because a previous epilepsy drug left me with a very noticeable tremor, I look like I have Parkinson's without it. Yeah the Dosulepin is a tricyclic, and it was the only drug I'd tried in 18 months that knocked the horrific...

Progress Report Progress Report Date: Jan 20, 2015 Current Retigabine Dosage: 50mg x 3 Current Side Effects: Reduction in previously fairly drug resistant neuropathic face and head pain. Slight reduction in tremor caused by a previous drug. It has also got rid of the tiny twitch under my...

I've only taken a few low doses so far, and no effect on tinnitus yet. I'm so scared I'm speaking too soon but... my neuropathic pain has already dropped to a lower level. If the tinnitus stays but the pain completely goes away, I'll still see it as a huge success. I've been in constant pain...

New User Information Gender: Female Age: 37 How Long Have You Suffered From Tinnitus? (Date of Onset): Nov 2, 2013 How Did You Get Tinnitus?: Other (define below) Explain How You Got Tinnitus: It appeared after an epidural blood patch, I also got nerve pain on the right side of my face...

Hi @SteveToHeal I know it's a lot of money, but last year I saw a neurologist who wasn't a patch on Dr Weatherall, and I paid £350 for half an hour. You get an hour for £295, he's very thorough, and a really nice person too, the best doctor I've met.

I still can't see the link! Might be because I'm on an ipad, I'll have a look on my proper computer. I've been seeing my neurologist for months because I've got chronic pain as well as tinnitus. A few weeks ago I mentioned Retigabine, took a couple of print outs from here and he said he would...

Oh... P.s... How do I post a new user report?

Nothing important to add yet, but just wanted to say I now have a prescription and will be starting in the next few days. :)

(n)Someone dug up a dead one?