Recent content by bedouin

Hey all Apologies for the disappearance. Just moved house and no internet. Tethering at the moment but should be fully back up and running on broadband Weds this week. Currently I am Day 14 after the first injection (Day 1) of the real drug. The weekend was good t wise but unfortunately i...

It was that the question came from OddV asking us about fluctuating t. Then your response was asking him about his fluctuating t. SO i didn't follow. If you were referencing from a previous snippet then ok, my apologies. re the trial centers - yes, it seems very cold when suffering people get...

Were you able to ask Dr. Jeanmonod any of our questions re Retigabine?

You'll have to scroll back in the posts to see benyru. He has a firm grasp on the science of Kv and glutamate. The guy is taking time out so we don't get his informed posts anymore. However, from what I have gleaned from reading about Kv channels, trobalt affects the inter-spike interval mainly...

Agreed. However, the cost of an MRI is significantly less. Reel back to the earlier posts on state subsidized treatments and i get it. I just don't have that non-subsidized money to spend on a potential no-go and be told my t is emotional, which would have cost me 1 or 2% that amount. But like i...

I never said my T was fluctuating. My t is very loud after the injections. After injection day 1 - 8/10 After injection day 2 - 9/10 After injection day 3 - 10/10 day 4 - 9/10 will report day 5 tomm I don't think you can make that conclusion. I said above i popped my ears during the placebo...

Hey Danny Boy. Autifony targets Kv3 and Retigabine Kv7 so they are not the same drug. They just both potentially have the ability to kick open the potassium channel gates. We don't really know what is inside AUT00063 so we are really all just guessing. They do aim to trial 63 for both tinnitus...

I'm no expert so don't take my word for it. My understanding is that Autifony is not regenerative medicine. So it is not regenerating hair cells. My guess is that they believe Kv channels play a role in hearing loss too. But i could be wrong.

From the NHS clinical trials website: 4. Sensorineural hearing loss (Pure Tone Average (of thresholds at 250, 500, 1000, 2000 and 4000Hz) >20 and <60 dB Hearing Loss (HL)); If a hearing aid or sound generator user, then confirmed consistent daily usage of the device over past 6 months; However...

yes - that is exactly what they think. This drug is also targeting hearing loss.

It's difficult to say exactly. Last time, by mistake, i held my nose and popped my ears to get rid of the blocked deaf feeling. The ENT said i should not have done that because it delays the healing process of the hole in the eardrum. By blowing it, you are effectively, opening the hole again...

Thanks for your detailed report. I don't have that kind of money to gamble with on a maybe. I'm glad you felt it was worth while. That is what counts. Apologies, the reason I say this is because the 2200CHF is non refundable. Is that correct?

Are you managing to concentrate (now that you have t) at work being a software developer for a bank?

Thanks Christian. Yes, that was the same one i read. I still don't know what rtwombly was on about then, re hearing loss. There is no mention in the reply you got back from Autifony re hearing loss. No new info re hearing loss, other than what we already know. rtwombly - can you explain what...

Hey rtwombly, I'm a bit confused here. I only saw the response from Autifony (compliments of Chistiaan) on the autifony thread: Here: https://www.tinnitustalk.com/posts/74754/ Did a search and can't find anything on this Retig thread. Was it removed? I'm just very keen to see what additional...