Recent content by ColinUK

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    New University of Michigan Tinnitus Discovery — Signal Timing

    I am sorry, but with this one, I do not see how the FDA can be blamed. After more than a quarter of a century of research, the company that is supposed to be bringing the device to the public, and that has been around since 2019, does not even have a website. No matter how much bureaucracy...
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    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    Since Frequency Therapeutics’ failure, I’ve stopped getting excited about things like this, but I truly wish them the best and hope they find the magic. To achieve that, they’ll need to generate interest and secure investment, so I’m all for it. That said, I just hope it doesn’t involve news...
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    Working Towards Better Healthcare Interventions for Tinnitus: a Brain Stimulation StudY (WHITBY)

    @Nick47, I didn’t ask, to be honest. For me, it depends on when the trial starts. I was informed it could be December, or it could be January. I’m not sure how feasible December will be, but if I manage to get in, I don’t think I’ll be able to tolerate 85 dBA. If that’s an issue, I’ll just see...
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    Working Towards Better Healthcare Interventions for Tinnitus: a Brain Stimulation StudY (WHITBY)

    I contacted the study organizer, and there is an optional MRI component. Some of the hearing tests reach 85 dB, which might be an issue for me, but I’ve applied to be part of the trial.
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    New University of Michigan Tinnitus Discovery — Signal Timing

    I suppose there's no point in worrying about this, as it seems years away from becoming a consumer product. If it ever does come out, we'll quickly be able to determine who it works for and how. Until then... 🤷‍♂️
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    Sound Annoyance and Worse Tinnitus After Out in a Loud Venue (Measured at 97 dB) for One Hour

    Try not to blame yourself too much. I had a setback recently, which resulted in me taking seven weeks off work. My "crime"? Going to a pub with friends, even though I had my earplugs in. This condition is so hard to live with and manage. You do things that everyone else around you does, but for...
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    Introducing Tinnitus Quest

    I believe that establishing trust and visibility in actually taking action is key. A lot of people suffer from tinnitus. I regularly donate small amounts to charities each month that don't directly affect me, so I've started giving a small amount each month to Tinnitus Quest as well. If a decent...
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    Hi zigs, I did try to give more comprehensive reply but word count limit means short version...

    Hi zigs, I did try to give more comprehensive reply but word count limit means short version. I am doing a bit better with the pain still very limited in activities I can do, missing parties, school events, cinema, play dates .. but gone from being able to do nothing where you sound like you...
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    Introducing Tinnitus Quest

    I just wanted to say a big thank you to everyone involved with Tinnitus Quest. I really hope you succeed with this initiative. It's clear that tinnitus receives little funding, and patients are often dismissed by doctors who lack knowledge or are taken advantage of by people promising cures...
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    New University of Michigan Tinnitus Discovery — Signal Timing

    Wow, what a complete disconnect and utterly cold response to the community they are supposed to be focused on helping. The more this goes on, the more surprised I'll be if this device ever comes to market. At their pace, regenerative treatments will be available before this. All the years of...
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    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    Does anyone know how Cilcare's CIL001 differs from Otonomy's research? It seems to be the same molecule that Otonomy tested.
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    New University of Michigan Tinnitus Discovery — Signal Timing

    I have read that, and it still makes no sense. They are silent, so there is no speculation or disappointment. I don't really think that is working out. I would argue that their silence, lack of transparency, and zero communication are causing more speculation and disappointment. IMO, if the...
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    New University of Michigan Tinnitus Discovery — Signal Timing

    If they don't have enough funding or resources to deploy a website, they are the wrong people. I am sorry, but I still don't understand why there is so much secrecy. Is there any news available on Auricle anywhere, including financials, staffing, and investment partners? What harm could come...
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    New University of Michigan Tinnitus Discovery — Signal Timing

    But what does "by the book" mean exactly? I mean, they have a working device or so they claim, but they don't have the capacity or funding to even start the processes outside the US, have no devices manufactured, and have no public information for possible investors; I'm sorry, but no. If you...
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    New University of Michigan Tinnitus Discovery — Signal Timing

    I have to agree with @Dkellz. People are suffering terribly, and here we are having this device that has been researched for over 20 years and is supposedly proven to work with the science to back it up, but then when it's announced that it works, it's just put on a shelf to collect dust with...