Recent content by Danny Boy

Simply email them or phone them and ask about the dates- For further information, please contact the REGAIN study team: Telephone: 0203 108 9344 Email: ei-regain@ucl.ac.uk

Someone would need to get on the trial. My hearing loss is mild, so I don't think they'd accept me and I don't need hearing aids. Someone else on here, might be able to, if they don't mention tinnitus or say it doesn't bother them as much as the hearing loss.

Welcome to the REGAIN Patient Information page! This section is designed for patients who are interested in participating in the REGAIN trial. A drug is in development that may be able to restore hearing loss. The REGAIN study aims to test how safe the drug is and if it affects the ability to...

Not in the UK. Can't believe they are allowed to advertise something which is at most a placebo effect.

Neuropharmacology. 2018 May 1;133:319-333. doi: 10.1016/j.neuropharm.2018.02.004. Epub 2018 Feb 5. Kv3 K+ currents contribute to spike-timing in dorsal cochlear nucleus principal cells. Olsen T1, Capurro A1, Pilati N2, Large CH3, Hamann M4. Author information Abstract Exposure to loud sound...

Sci Rep. 2017 Dec 13;7(1):17496. doi: 10.1038/s41598-017-17406-x. Pharmacological modulation of Kv3.1 mitigates auditory midbrain temporal processing deficits following auditory nerve damage. Chambers AR1,2, Pilati N3, Balaram P1,4, Large CH3, Kaczmarek LK5, Polley DB6,7. Higher stages of...

They possibly have left over stock. But, only 1,500 people were taking it because of the risks involved. So that's why I'm guessing left over stock.

It is such a terrible condition and trust me, I've had it seriously bad and had the same dark thoughts as you...But I took trobalt and it worked for tinnitus, lowered it. It's not a safe medication, but there are future analogs based off of trobalt, with hopefully less side-effects. The reason...

I retracted that, as it was temporary. It lowered it however. I still have tinnitus, just not 10/10 with hyperacusis. But as I will say, I got Visual snow from this med, causing me more mental problems...So wouldn't recommend, well it doesn't matter it's been taken off the market. Let's hope the...

I swear I'd be remembered for trobalt forever lol

This isn't a trial for tinnitus though?

I've tried both and it's not like trobalt. Won't give you visual snow though.

Indeed I do. Sodium Valproate can be useful as it increase GABA in the brain, it also works on the KV2.7 potassium channels and some people have reported a reduction in tinnitus and is a sodium channel blocker and inhibits the re-uptake of GABA by neuronal cells. Gabapentin is unlikely to reduce...

That's just to increase GABA in the brain to help with the withdrawal, but lyrica has it own withdrawal symptoms.

My Doctor told me to wait 3 months to get a referral to an ENT and all they did was give me an hearing test. Wish I got treatment like steroids or carotenoids. Apparently, the audiologist I seen said they'd make no difference. None of them are trained to deal with tinnitus I swear.