Recent content by mynamewastaken

Your story sounds a lot like mine. Unfortunately, intercranial pressure cannot always be seen on an MRI. I've had a few, and only several years later after having a lumbar puncture, did I find out that my pressure is elevated. I too was taking minocycline for acne when my pulsatile tinnitus...

UPDATE: So I went to see Dr. Shapiro again last Monday. He said that he is willing to stent my transverse sinus stenosis, with the understanding that it's to eliminate the pulsatile tinnitus noise I hear only. He doesn't want to make any promise that the CSF pressure will also be lowered if the...

Hi Billy, I'm really sorry to hear that you have this condition too, and haven't been given any answers yet. Do you have any other symptoms along with the pulsatile tinnitus, or any conditions such as high blood pressure? I found Dr. Shapiro to be very thorough and attentive as well, and...

Hi Karen, I had my lumbar puncture this morning, and my opening pressure was 25. Dr. Shapiro removed 20cc's of CSF fluid, as he felt that it was high and an IIH diagnosis, but unfortunately the pulsatile tinnitus did not subside once I got up. The information I've found regarding what a...

Thanks Karen, I found these studies to be really interesting too: http://www.hindawi.com/crim/otolaryngology/2012/814696/

No beemovie, I have never taken Xanax or any other benzo. My anxiety was pretty well managed with 75mg of Effexor XR, but I have been off of it several times over the years. I just started taking it again in February 2014, but hadn't needed to be on it for almost a year. There is someone on...

Sorry, correction - his name is Maksim, not Maxim.

Thank you everyone! I feel like finally having a diagnosis and a cause identified for my pulsatile tinnitus eases my daily anxieties in a tremendous way. I've lived for years worrying that I had a blood clot, and could have a stroke at any moment. Not in all cases, but in mine I not only hear my...

I'm a 34 year old female, and I have had subjective unilateral pulsatile tinnitus since 2006. It came on suddenly one day, and hasn't left since. The sound I hear is similar to that of a pregnant woman's ultrasound exam, and is in perfect sync with my pulse. If I press lightly just below my ear...