Recent content by robs

  1. robs

    AM-101 TACTT1 Results Released

    Thanks @Erlend . Just to close the loop, I decided at the doctor's office not to proceed with the trial. I felt that it just wasn't the solution for me. It is a long commitment (because I would have definitely participated in the follow up trial). From what I read from others in this...
  2. robs

    AM-101 TACTT1 Results Released

    @khu85 , Good luck to you as well. If you are able, please post back following your injection. My trial is in Havertown, PA at 4:00pm eastern time.
  3. robs

    AM-101 TACTT1 Results Released

    Well today's the day for me for my 1st injection and I will say that I am very nervous about it - but not because I'm getting a needle in my ear. The last month and a half have been a roller coaster for me. My T started on June 30th. I was scared, had anxiety, saw three EMTs, got an MRI, and...
  4. robs

    AM-101 TACTT1 Results Released

    @SteveToHeal The important point to note here as @khu85 mentioned is that they want your trial starting point to be like when you first got T. You have to essentially discontinue anything you are doing to reduce the effects of T on your life - medications, supplements, acupuncture, and they...
  5. robs

    AM-101 TACTT1 Results Released

    Hi @locoyeti . I am due to get my first injections this week as well but I have a very busy work schedule. From your experience, would it be possible to get the injections at the end of of work day (say 4pm) and be functional the next morning?
  6. robs

    AM-101 TACTT1 Results Released

    @khu85 , where are you doing your trial?
  7. robs

    AM-101 TACTT1 Results Released

    My experience was almost exactly the same as @earsnothappy except I was finished in about 3 hours. I must not have had as many questions!
  8. robs

    AM-101 TACTT1 Results Released

    @earsnothappy Thank you so much for the detailed response. Please let us know if you T improves over the next week or two.
  9. robs

    AM-101 TACTT1 Results Released

    I am in the US as well. It took about 2 days from the time I inquired about the trial to initial response. After a follow up email, I was put in contact with a local ENT office running the trial about 3 days later. From there, I made an appt with the ENT for my initial screening. After the...
  10. robs

    AM-101 TACTT1 Results Released

    Hi - just wanted to let everyone know that I had my initial screening for the AM-101 trial today and I was accepted. Today consisted of a lot of documentation to read, meeting with the doctor, taking a hearing test, and blood work. So now for two weeks, I have to keep an electronic diary of...
  11. robs

    Retigabine (Trobalt, Potiga) — General Discussion

    Color me intrigued! I've had T for a little over 2 weeks and I'm ready for it to go. Will be watching this thread very closely. @Mpt , please keep us updated!!
  12. robs

    AM-101 TACTT1 Results Released

    Well, I am now on the AM-101 path. My evaluation appointment is scheduled for July 23rd. I still would be interested to hear how folks who received the AM-101 treatment in the recent past are feeling in general, as well as how their T is doing.
  13. robs

    AM-101 TACTT1 Results Released

    Good luck @earsnothappy , I am eagerly watching your reports. @StayPositive , I will be making my final decision to join to AM-101 trial this weekend. I have a call scheduled with Kathy in Havertown, PA on Monday. She mentioned to my that 3 people have participated in the trial at their...
  14. robs

    AM-101 TACTT1 Results Released

    Hello, I am new to this forum and tinnitus (unfortunately). I woke up with a ringing in my right ear about 10 days ago. Went to ENT on day 2 and he put me on prednisone, which did not seem to help and caused me severe insomnia. I stopped taking the meds after 6 days. After calling around...