Recent content by rtwombly

So, I was just on here answering a PM and thought it might be time to post this nugget. I've been taking generic Zicam - Zincum Acetium and Zincum Gluconium - twice a day for months now and I really do think it's helped me. I stumbled on this when I got a sniffle some time back and got on the...

Thanks for keeping us informed.

The numbness could be an indication of thoracic outlet syndrome. Definitely see a chiropractor. They vary greatly in competence, so you might want to ask around. I recommend a speciality called SOTO chiropractic. If there is a qualified practitioner within 50 miles, it's worth the trip.

That's pretty suggestive that there is something that is working for you, just maybe it needs a longer exposure to make definitive change to your tinnitus. The first thing we Retigabine testers noticed was a "cleaning up" of tones. My high pitched sounds went down considerably more than my low...

That is crazy talk if they haven't had any more concrete results than our members experienced. I mean, 300,000GBP? Isn't that like, eleventy-umpty dollars American?

Thank you, Fernando. I'll watch with interest. May I ask, is that supplement regimen something suggested to you or of your own devising? Also, what is Cink? I recognize the others and have taken most myself.

It's off topic here, but just to clear up, I was talking about my experience with Potiga (I think Stina got that, just wanted to make it plain for everybody). Juan Carlos came up with a theory I agree with, which is that Retigabine's tendency to blank out bits of your memory temporarily extends...

No need to state again that experience with this drug is very individualized, but I agree you'll likely feel something at 300mg TID. However, I'd recommend trying 200mg TID for a full week before moving up, if you have the patience. The drug certainly builds up in your system over time, and...

Just did some quick research, and can say definitely that MEM and Tensor Tympani Syndrome are different conditions. MEM involves the stapedius muscle, while TTS involves, unsurprisingly, the tensor tympani. These are two different muscles with different connections in the middle ear and...

This is a good point. Since I started backing down on Retigabine I've noticed that I've had noticeable effect on lower doses than when I was moving up. Like, once I got the drug really pumping, I didn't need as much. If it wasn't for the eye floaters, which are a new side effect for me, I'd...

I got one from ATEOS, same convo you were on IIRC. ATEOS's source was excellent. The other was https://www.tinnitustalk.com/threads/scifluor-receives-us-patent-for-kcnq2-3-activator-to-treat-epilepsy-and-neurological-disorders.7743/.

I was just walking around my house thinking how quiet it still is on 150mg of Potiga every 6 hours. Two new versions of Retigabine have been invented in the last several months, both of which are said to be less prone to side effects, and one of which is said by the inventor to be theoretically...

Progress Report Progress Report Date: Feb 12, 2015 Current Retigabine Dosage: 150mg every 6 hours Current Side Effects: Brief manic episodes, eye floaters Current Tinnitus Severity: 2 out of 10 Changes in Tinnitus: Interestingly, after my oh-no-it's-creeping-up-again Tuesday, I've had...

I was steady, Juan Carlos is steady. Danny Boy had a big dip in his efficacy before getting on the right dose. These are very complicated, personalized experiences, but we've pretty well established that you are going to notice a difference - how much, for how long, with what side effects -...

@Nils In my experience, the big "how not to" is, don't go up too fast once you start experiencing side effects, or you reach 300mg TID. It's possible to get your brain used to higher doses, but the higher you go the more time it takes. At 100mg, 150, no problem - you can do 2 or 3 days then...