Scruffiey's latest activity
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SScruffiey replied to the thread Ear Pressure and Pain After a Restroom Hand Dryer and Child Screaming.There are no definitive answers with this kind of thing, but my inclination is that since even a faucet now sounds loud to you when it did not...
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SScruffiey replied to the thread A Year Later, I Don't Know What My Tinnitus Baseline Is.It sounds like you’ve identified the issue, so now the question is: how do you go about resolving it? Would exercise help? Physical or...
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S@Scruffiey IT IS! Why did I never think of that!
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SI'm in the same boat, so thanks for sharing your thoughts and experience.
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SScruffiey reacted to Lins12's post in the thread Tinnitus Spike While Grieving (Trigger Warning: Sudden Loss of a Loved One) with.
Hello! I developed tinnitus in July 2021. There was no definitive diagnosis, but they found bilateral hearing loss and chronic severe muscle... -
SScruffiey replied to the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging.OCT? Behind the eardrum? Sounds like witchcraft to me… (said the audiologists, probably). “Be quiet and take your nasal steroid spray. It’s just...
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SYesterday wasn’t too bad. We will see what today holds. Left ear feeling very sensitive and popping along with unstable tinnitus and H in both...
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SThis sounds like a case of very sensitive TTTS mixed with hyperacusis—essentially what others have mentioned above. You noted some auditory...
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SScruffiey reacted to SafeMusicFan's post in the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging with.That is also a huge motivator for me, especially on days when spikes are bad. Given that we are already seeing small breakthroughs in research...
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SScruffiey replied to the thread Sleep Architecture Disrupted in Tinnitus Sufferers.There’s no way medicated sleep is going to be as good for you as natural sleep, so it is a judgment call. Long term use of an antidepressant may...
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SScruffiey replied to the thread Ear Sensation / Unsure of Diagnosis / Rant.It sounds like it could be TTTS—Tonic Tensor Tympani Syndrome (not to be confused with twin-to-twin transfusion syndrome). TTTS is believed to be...
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SWell, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with...
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SScruffiey replied to the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging.Yes, I really do think this is promising research, and better imaging tools are desperately needed. Before all my issues started, I had no idea...
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SUpdate: Something new. my lowpitch tone on my bad left ear is now louder than the high pitch one. I don't know why. It's now something like 980...
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SScruffiey commented on DamagedJoe's profile post.You're only a couple of months in if I remember, yeah? It does fluctuate for the first few months to a year, try not to read too much in to each...
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SScruffiey replied to the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging.Why do you think it’s completely different? I assume old age still degrades the auditory nerve and synapses, but noise trauma speeds up the...
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SThank you for the encouragement @MindOverMatter and @Scruffiey .. ears are still very exacerbated. They were somewhat heightened before this just...
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SScruffiey posted the thread Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging in Research News.https://www.news-medical.net/news/20250224/New-imaging-tool-reveals-the-brains-role-in-cochlea-sensitivity.aspx TL;DR: The brain increasing gain...
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SScruffiey replied to the thread LL-341070 Remyelination.Probably not of much interest since it’s still focused on the visual system and central nervous system rather than the auditory system, but while...
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SScruffiey reacted to Nocca's post in the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration with.Cilcare provides more details on its website about how the trials for CIL-001 will proceed. The Phase 2a trials are divided into three distinct...
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SScruffiey reacted to Jammer's post in the thread Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus with.I had DBS surgery as part of a clinical study to address tinnitus and was not taking any antibiotics. Your assumption is incorrect.
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SScruffiey replied to the thread Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus.I assume that since a surgical procedure is required, prophylactic antibiotics will be necessary. Having never undergone surgery—let alone brain...
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SScruffiey posted the thread Finally Had My Long Overdue Breakdown — Regret, Loss, and the Unbearable Weight of Tinnitus in Support.I just cried like a baby for the first time in I don’t know how long. In the span of four months, I’ve lost my dad, my chance at any kind of...
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SScruffiey reacted to withintention's post in the thread The Need for Early Awareness and Guidance on Tinnitus, Hyperacusis, and Noxacusis with.This is a great idea. Many potential rescue interventions have a limited window of efficacy (e.g., NAC, oral and intratympanic steroids, HBOT)...
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SScruffiey replied to the thread Biomarker Discovery for Chronic Tinnitus Diagnosis (TIDE Project).Huh, in combination with this, that's kind of interesting. For those that don't want to click the link, it's regarding another medical issue...
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SScruffiey replied to the thread Sound Pharmaceuticals (SPI-5557 & SPI-1005).Hey, I have had massive personal setbacks. At this point, I am in my mid-30s and have already lost half of my life to issues beyond my control. I...
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SScruffiey commented on vilebubbles's profile post.You can, I know you're scared but you'll make it through... it feels horrible and intrusive but it's not an actual threat even if your entire...
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SI don’t think I can do this :(
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SScruffiey reacted to MindOverMatter's post in the thread How Do You Learn to Cope with the Uncertainty? with.This is quite common with hyperacusis (speaking from experience), and I don’t think you should place too much value on it or label it—especially...
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SScruffiey replied to the thread Sound Pharmaceuticals (SPI-5557 & SPI-1005).I don’t like it either. I wanted a cure yesterday. But I’m being realistic based on the current state of research, the time it takes to develop...
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SScruffiey commented on DamagedJoe's profile post.Yeah, how dare you prioritise your wellbeing, health, and hearing over the band? That's messed up... I can't see how an unsupportive group would...
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SI left my band today. I had to give up another thing that I loved. Everyone was outraged and no one could understand it. After all, nobody had T...
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SScruffiey replied to the thread Sound Pharmaceuticals (SPI-5557 & SPI-1005).I found another Reddit post from someone in the trials (it seems there was no NDA). They felt there was some benefit to their tinnitus levels...
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SScruffiey replied to the thread A Simple Trick to Improve Earplug Effectiveness at Loud Events.While it may work for some reason, the added warmth, moisture, and lack of air make me concerned about an increased risk of ear infection. Doing...
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SScruffiey replied to the thread Rinri Therapeutics.I have a lot of faith that this technology will be successful, even if it doesn’t become the future gold standard for inner ear repair. But I also...
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SScruffiey replied to the thread How Do You Learn to Cope with the Uncertainty?.Sorry, when you said, “just to clarify, medical, not cosmetic,” I wasn’t sure what you meant. 😊 I promise you, I’m not trying to have a contest...
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SScruffiey replied to the thread Sound Pharmaceuticals (SPI-5557 & SPI-1005).Anecdotal, of course, but I came across someone on Reddit who claimed to have participated in the Ménière’s trial. While they were pleased with...
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SScruffiey replied to the thread How Do You Learn to Cope with the Uncertainty?.The comment about looking young was a joke—got to try and laugh a bit, haven’t you? That does sound truly horrible, and I’m sorry you went...
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SScruffiey replied to the thread Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration.Phase II trials are set to begin at the end of this year. I’m not familiar with Turner syndrome, but I would assume repeated applications of the...
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SScruffiey replied to the thread How Do You Learn to Cope with the Uncertainty?.Yikes, I’m sorry to hear that. Was yours sound-triggered, or was it a separate case of neuralgia? I haven’t seen too many success stories of...
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SScruffiey replied to the thread How Do You Learn to Cope with the Uncertainty?.Unfortunately, my tinnitus started as a typical ringing but then went through a two-month trial by fire before settling back down. Because of...