Recent content by ShellyW

Does anyone know please who /where performs MVD (microvascular decompression) of 8th cranial nerve in England or the US?

Thankyou

@Greg Sacramento Thank you for your concern Greg. No, not yet found anyone in Sydney who performs this for middle ear. Continuing the search.....

@Mishal how did you go asking your doctor / neurologist about Carbamazepine / Tegretol? It takes a while to gradually increase the dosage.

Hello. Does anyone have any updates please where boxtox or steroid injections are offered for middle ear myclonus in Europe? (Germany, Uk - anywhere....?) On the hunt! thankyou

Hello Mishal. I hope you are going ok. I have been thinking of you. You might also look into nerve blocks. These are administered by pain specialists. Reasoning is that the movement of the tensor tympani and stapedius is innervated (caused) by the 7th cranial nerve. Therefore deaden that section...

Hello. I have middle ear myoclonus and live between London and Sydney. Has anyone had a tenotomy of the tensor tympani and/or stapedius muscles in either city and can please mention the surgeon? Thank you!

Hello I am in Sydney, Australia and am researching other countries that might be more open to performing tenotomy on someone with unilaterial middle ear myclonus. Does anyone know any ENT surgery clinics that perform this elsewhere? Thank you

Mishal you might also try googling Tonic Tensor Tympani Syndrome, and see if your symptoms fit.

Thank you

Hello no, I have not been prescribed these.

Yes, this is the most difficult time in my life. The neurologist should prescribe the medication (not saying that an ENT won't). Also see a Pain Specialist and if they can apply nerve blockers (I don't know if this is possible, this is what I am also pursuing). No, I don't have a cricket sound...

Hello. I have intermittent tinnitus in my left ear of 9 month's standing, following an accident. I hear fine - then static/vibration and pain. I am being treated for possible Middle Ear Myoclonus. Does anyone else have pain with their sound? what are you being treated for? With thanks.

Hello I am being treated for possible MEM. I recommend: see a neurologist, ask to be prescribed carbemazeine (Tegretol) or similar anti-convulsant. Also ask ENT to do audiology test called Time-lapse Tympanometry. There is no imaging they can do for the movement of the stapedius. However, it may...

@GregSacramento Thankyou though I didn't find stroking that muscle made a difference. What kind of therapist would deliver the muscle therapy you mentioned please? I have intermittent sound and pain. Thanks for kindness in writing.