Recent content by Stu

  1. Stu

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I'm wondering this too as I have acquired some Trobalt but don't know whether I should take it for this exact reason... Anybody?
  2. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    I’ve had 2 rounds of injections and I can assure you the decision of having tympanic injections was not something I took lightly. I therefore did my research prior to making that decision and found although many people experience hearing loss and an increase in Tinnitus volume post injection...
  3. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    I experienced hearing loss too during both my first and second rounds but I can't sress enough that it was temporary. I won't be going back for a third round as AM-101 has made no difference to my T at all. (IF ANYONE KNOWS OF ANYONE NOT EXPERIENCING ANY IMPROVEMENT UNTIL THE 3RD ROUND THOUGH...
  4. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    40% Placebo 60% Real Drug
  5. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    Like I said in my post I’d update within a couple of weeks and I intend to keep the thread updated on my progress… The unfortunate news I’m afraid is that at this stage I can offer nothing positive - It’s now day 27 and this second round (first 100% guaranteed dose open label) of AM-101 has...
  6. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    So it's quite subjective then as to whether there is any difference as a direct result of the drug? I'm on day 19 of round 2 and I'm still not back to baseline yet.
  7. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    You sir, are an inspiration to anyone unsure about the AM-101 trials. Given the stage I am at with mine, your post was exactly what I needed to read. Thank you!
  8. Stu

    AM-101 Clinical Trial — Participants Updates and Discussion

    Okay so I'll come out of the shadows and write something since the thread has quietened down recently... I've not updated before since I've had nothing to report. I'm currently enrolled in the trial. I had the first round of injections 3 months ago and like many posters here assumed I didn't...
  9. Stu

    Retigabine (Trobalt, Potiga) — General Discussion

    Mainly the Trobolt but any info helps matey
  10. Stu

    Retigabine (Trobalt, Potiga) — General Discussion

    Thats the usual response from doctors - what doseage works for you?
  11. Stu

    Retigabine (Trobalt, Potiga) — General Discussion

    What dose of each do you take mate and are they all prescribed?
  12. Stu

    Hey..! :)

    I can can provide an insight into that buddy... My T is around 15-16 KHz like yours plus I had a battle with Cancer myself 10 years ago which I survived and won. In all honesty, the Cancer was easier to deal with overall as I knew there was a cure and my chances were good. The complete irony of...
  13. Stu

    Saying Hello (...Whilst Feeling!)

    Thanks Valentina, it's nice to have the support of you guys!
  14. Stu

    Saying Hello (...Whilst Feeling!)

    Hey Danny, Without tempting fate, participation in the trials is looking good, im just waiting confirmation of my screening appointment for next Tuesday 21st... I'll make sure I keep the updates coming.
  15. Stu

    Saying Hello (...Whilst Feeling!)

    Thanks for the warm welcome Billie. Despite feeling desperate at the moment I know that the only way to successfully live with this is by accepting the initial stage for what it is and then find the strangth to focus on the positives as I ultimately meet the many hurdles and set backs I...