Recent content by Tony Joy

  1. Tony Joy

    where are you based

    where are you based
  2. Tony Joy

    no not using anymore have virtually habituated ,with just spikes now and again,Trobalt isnt...

    no not using anymore have virtually habituated ,with just spikes now and again,Trobalt isnt made anymore due to the side effects
  3. Tony Joy

    Safer, Non-Ototoxic Alternatives to Bisoprolol, Atorvastatin, Ramipril, Omeprazole?

    Just came out of hospital after a defibrillator being fitted. I was put on a group of meds for high blood pressure and others. They have made my tinnitus go right up. Does anyone know of any equivalents that are not ototoxic? The meds I'm on are Bisoprolol 1.25 mg, Atorvastatin 40 mg, Ramipril...
  4. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    Well @david14433; I have just come back from Malaga in Spain, and it is still available from the pharmacies there, and they are still selling it without a prescription. It is a bit expensive though.
  5. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    I've had tinnitus for years now and the only positive has been using Trobalt. I use it now like an aspirin, as if I had a headache. I've tried most things and this is the only relief I ever have, so there has to be something positive in it. It is a shame that it has been discontinued, it was...
  6. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    I have been taking Retigabine, as I would an Aspirin for a headache, i.e. when the tinnitus is worse I pop a 200 mg tab to calm it down. This I have been doing for the last three years, and it's helped me habituate. I still have enough for a year to 16 months, but hope I will have totally...
  7. Tony Joy

    did you say you are now tinnitus free

    did you say you are now tinnitus free
  8. Tony Joy

    Hi ,the effect is reducing it with each 200 mg tablet,on some bad days i need 600 mg to take it...

    Hi ,the effect is reducing it with each 200 mg tablet,on some bad days i need 600 mg to take it down from a 10 to a 4 ,those bad days are usually stress days or following a night down the pub
  9. Tony Joy

    Hi Danny how`s it going,for a fellow Bristolian ?,I am still on Trobalt,but take it like an...

    Hi Danny how`s it going,for a fellow Bristolian ?,I am still on Trobalt,but take it like an aspirin for a bad headache,,only the odd floater which isn`t a bother,Until something else comes out I`ll stick with this,hope you are finding some relief,all the best Tony
  10. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    RTG has in my experience got no long lasting effects on tinnitus.What it does have is it gives you time to habituate,thats all you can expect.You meet long term sufferers ,you talk to them ,and they say "i dont hear it any more",how can they say it,but its true if you stop fighting it, ie...
  11. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi Gintas,,No I haven`t got H,or reactive T
  12. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    Sorry typo,was saying don`t know how I got down the description of coping,just hope it is useful to someone out there.As for a cure ,it would be lovely to go back to enjoying Silence,like I used to,when a cure is on the market,I for one will grab it,habituated or not
  13. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    Jahhsoul,yes you can buy regitabine in Spain,any pharmacy will supply you,you don`t need a prescription,I have done this twice.They may not have it in stock the day you call,but they will order it in takes afew days only,or go on to the next one till you find one that stocks it.You must ask for...
  14. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    The only effects I have/had are like I have just drunk five or six double spirits ,near enough,ability to remember things was my worst problem,which I got round by writing things to do down on a list.I forgot the number of times I mislaid my glasses!Yes in a minor way my vision was a bit...
  15. Tony Joy

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi Valeri,No I held that dose for 6 weeks,the reduction came in the first week.The relief at not having the previous level of Tinnitus encouraged me to maintain the 12oomg dose ,which I split into 3 x 400 mg /day.At the start of the 6 week period the hit lasted about 4 hours then started to...