Recent content by zoid

I have loudness and pain hyperacusis. I think I took Retigabine for max two months, and took quite a high dose at the end. During the time taking it, I already started seeing some strange “blips” in my vision. But the whole floater/visual snow thingy started a month or two after stopping taking...

Your post triggered me. I don't know if I posted it at the time, but I also took Retigabine for a while. I can well remember the first night I took it. I woke up in the night, and I really had complete silence. I woke up my girlfriend and yelled like a maniac, it works, it works, and even went...

Thanks @brokensoul!

@MRItechssuck I signed up around September. I’ve got an invitation for April. Really doubting if I must go or wait. I need some more confidence that the treatment is really working for a large number of people, but at the moment it doesn’t look good so I’m really curious about the outcome of...

I know you already said it somewhere but when can we expect the results of your study? I’m asking because today I received an e-mail from Neuromod with an invitation. Really in doubt if I will go. Thanks!

I said this before, but I was told they would like to offer the treatment sometime in 2020. I’m Dutch speaking and the email conversation was in Dutch, so no translation errors or something like that. I wouldn’t set your hopes up too high for a starting date of selling in January.

Brai3n clinic told me they would like to offer the treatment sometime in 2020. My interpretation of the e-mail is that they are talking with Neuromod but there is nothing definitive yet.

Good work! I really appreciate it. Still in doubt if I should apply to the clinic in Dublin or wait for clinics closer to home (The Netherlands). I don't want to fill up an appointment slot if I'm going to cancel it anyway.

Lol, I see the doctors are joining this thread. :D

Very niche? You know 1 in 10 people experience chronic tinnitus, and if I remember correctly 1 in 100 suffers from it. I think you underestimate how big the market is.

@Kam75 I think what John says is true for most tinnitus sufferers. I had a 3 month old baby when my tinnitus started. I was suicidal and thought my life ended. The tinnitus was really driving me crazy. For me it was a slow healing and habitation process, it took almost two years. Now, almost 5...

Could someone with the device on hand post a sound clip of the sounds being played by the device? Really curious how it sounds.

@drcross, thanks for the write-up!

@Tomas80 No official announcements or dates of availability in other clinics yet.

No, please don't think so. You are absolutely doing the right thing! The money is nothing (it's just money) and the chance for an improvement is real.