Has it changed in any way over the past three years?
Tinnitus Talk Support Forum
Hi Bill! Thanks for taking news. Well, T is now fluctuating during the day. Pretty much boring at wake up, quite gone in the evening or sooner. I would give it a mean of 2 over 10, from 0 to 4 under stressful conditions/lack of sleep/hangover.
Would you say that you had mostly habituated? Or do you still get a strong emotional reaction when it is at 3 or 4? Also, do you remember how it was when you were at around the 2-year mark? Had it also been between 0 and 4 back then? Thanks!
Unfortunately I don't get the habituation concept. When T is at 4 (less and less however, and a hummm) I feel physical pain, so my tolerance has not decreased: migraine/eye pain/head skin pain/tiny muscle pain behind the ear hard as wood and rolling under my finger, on my T side, the left one, so I can compare with my healthy right ear. Year 2 and 3 I was on Trobalt 200mg a day (6 to 8 hissing year 1).
It is absolutely shocking that the doctors can't help you with the pain and a muscle that gets spasms!!! I mean, they tell us that T is due to brain neurons, and it is difficult to do anything about the brain. But things like a muscle experiencing a spasm?! Sometimes it feels like we are living in the 19th century...
Unless it was Trobalt that caused your T to fall from a min of 6 to a max of 4, hopefully your T will continue to fade (albeit incredibly slowly). Are you noticing/being bothered by T when it is at 1 or 2? I am glad that at least your T hasn't spread to the other ear. For many people (myself included) it spreads to the other ear at around month 9 after the onset...
T is apparently not just a sound. My ENT tried Lidocaïne local infusion whitout success.No one can explain so far. I learned not to complain (Typical answer: "some kids die from cancer you know it's far worse than your condition bla bla"). So paracetamol/diclofenac ointment/massage... One day I'll cut it with a blade !
It did spread on the other ear the first 2 months, but much lower and sounding like a fridge compressor. And gone. The first Trobalt intake acted like a T "succion" which made it instantly disappear. Afterwhile, the side effects were really scarring, and I became tolerant: Trobalt then made me so high I could forget T.
I'm still under anti-epilepsy drug : lamotrigine which is a mood moderator and anti-depressant. I'm keeping busy, making sports, listening to Metal (at a very very reasonable level: high frequency guitars relieve me), and sometimes, I can even make a nap (with T coming back afterwhile).