I ended up going to a Swedish Hospital in Seattle, because of my insurance and the reputation of their Neurosciences Institute. Keep us posted on how it goes with your new ENT on Tuesday. Best of luck to you!
I sure hope the ENT at the Cleveland Clinic can help you find some relief. It sounds like ear infections may be the culprit. I have heard really good things about the Cleveland Clinic, and considered going there myself at one point.