Suffer for now, hope to improve later (good chance)
Tinnitus Talk Support Forum
@Wrfortiscue I think this ship has sailed. I've worsened 5x times since the onset - I used to have only a hiss, now
1. Baseline has changed
2. Multiple tones were added - I cannot even count them
3. Hyperacusis is making this even worse
1. Baseline has changed
2. Multiple tones were added - I cannot even count them
3. Hyperacusis is making this even worse
So to sum up - two months and I am way worse and I can't even stay on one level. I try to not go to loud places (except the mistake with the cafe). I protect with earplugs when doing dishes, going outside, even when talking with more than 1-2 people, cause it huts my ears.
I spend a fortune going with taxis for work in order to avoid the subway (as I fear it might worsen things) and even this is not enough). How do I manage it? I don't even want to mention the sound distortions. I know and I feel it - I am a bad case and I just wonder how much will I endure. I am struggling to function and I can't imagine the feature like this.
If it has stayed with the hiss - I would have been way better mentally by now. But nooo, no no. It must never be easy for me - I have to had Hyperacusis and the most reactive shit of tinnitus which keeps creating new sounds and increasing the baseline. It keeps me away from socializing and living at least a little bit normal.
Nevertheless, I hope thins do improve for you. You seem very supportive of others and surely you deserve it.
Just make it your mission in life to get on the other side of this. There are things to try
@danielthor , What I am trying in the next few months for sure is LLLT and Stem Cells. But if this does not work - I think I am done. I am at least lucky enough to have a supporting family and this will not leave me broke after the SC. Bad cases like mine have two options - either live like a hermit, homebound, not enjoying anything and just surviving or die. There is no in between. Please correct me if I am wrong.
I'm right now in the process of running through a long list of possible remedies. I'm keeping you updated as I go. I'm glad you can have stemcells. That is probably what I will end up doing as well, although for something other than tinnitus. This hermit-life does not neccesarily have to be for life. With all the scientific advancements that are being made right now I doubt we still will have this 5 years from now
What is LLLT? Btw
LLLT is Low Level Laser treatment. You can look it up. It has helped some people, most of them did not experience improvements and it made things worse for others. Like everything for tinnitus - it is a shot in the dark and you are basically playing the guinea pig