Hey Erika, yes, see if it might be something you're interested in giving a go.
Tbh, I've been having a really tough time as I've been essentially homebound since a new symptom (feels like partial facial numbness) has popped up for me. My TMJD has also been quite bad, & ear plugs only worsen it... & of course I can't go out without them.
To add to that, I really feel like I should get checked out for a variety of persistent, worrisome symptoms, but the hyperacusis complicates everything of course. So yes, fun times!
I am so so sorry to hear that @MadeleineHope .. where are you located? Are you able to set up a remote appointment with a doctor? You could you captions instead of the sound, and maybe have your spouse or someone speak for you.
It sounds like you have nerve pain/issues around the ear and the face? There has to be a medication you could try, I know Tegretol is an anticonvulsant but also used for facial pain/Trigeminal neuralgia. Have you tried any meds?
Unfortunately my doctor doesn't do virtual visits, only phone appts (aside from in-person in office), so it's either travelling to the office or having someone talk on the phone for me (or at least listen for me), but I'm worried that the latter option would be too complicated (the two ppl I have who could relay info back to me are not the best candidates for something like this).
Yeah, definitely seems like a facial or trigeminal nerve issue. I'm thinking it's either a result of hyperacusis, my worsening TMJD, or my sinusitis. I know an MRI would be best here, but it doesn't seem like a good idea with my hyperacusis. So yeah, tough times!
Oh, & no, I haven't tried any meds so far... just natural supplements. Too worried about side effects, but I may have to give in to something at some point. I'm honestly just worried about what's causing the nerve symptom... wouldn't want to end up with permanent neuropathy!
I understand. Also hard when you don't have someone that is best able to do that communication part for you over the phone. The medication intervention is a very hard decision in our position. I am 9 months in, have avoided an SSRI even though my mental state very much suffers.