Tinnitus Talk Support Forum

Hey @ErikaS thank you so much for thinking of me.
No, no brain stem tests. Everything is taking FOREVER despite paying private.
I had a barium swallow and the conclusion is my swallow is strong, but I am fighting chronic spasm. My neck lymph nodes can get swollen.
I am pending an ultrasound, a follow up with my neurologist in 2 weeks and to see a Prof Bance (an ENT who specialises in the middle ear) in 3 weeks

@ErikaS - thank you for the link. I do believe my ears are involved with the throat spasm, which in turn is making swallowing more difficult and inflammation making breathing more difficult.
Despite seeing so many doctors and consultants I am yet to find anyone who has been able to put the pieces together.
My neurologist wants to send me to a special neurologist who specialises in automonous body functions

@ErikaS - Ive been reading with interest the procedures you are trying and just how validating, supportive and knowledgeable your practioners are. Wish we had something similar in the UK (we do not).
Wishing you all the best and fingers crossed for you!

@DeanD is the swallowing and breathing spasms still random/intermittent or have they become more chronic?

I feel like an EEG would be possibly beneficial at this point, neuro didn't find reason to do one yet?

@ErikaS - the spasms are chronic (which it has been since 12th March now) , the breathing is intermittent. I had a sleep test done last week and results today showed mild sleep apnea, but nothing the pulmonary GP was worried about.
I had an EEG in Dec (before the throat) at Brai3n which showed elevated stress, normal anxiety amongst other things

@ErikaS - I doubt the consultants here have even heard of an EEG or rTMS, rTDCS etc...
As a result of the EEG Dr De Ridder offered rTMS but said it would only help a bit.
That was before the throat onset.
I will ask ny neuro about an EEG, he's very old school with old school methods. If he dismisses it I may get a second opinion.

@ErikaS - although still there with the help of my SaLT Im eating better.
Pasta bakes, sausage rolls, fries with ketchup and up to 2500 calories a day.
Eating isnt easy. Its hurts and feels uncomfortable but I try and push through. Eating isnt a pleasant experience for me.
Its still tough, feel congested, inflammed, glands swollen and painful everyday.
No one has a clue and every test shows normal.