Tinnitus Talk Support Forum

H
I feel obliged to say 'hang in there' but just hanging in there is no form of life. All I can say bud is I'm genuinely rooting for you and hoping things turn around for you.
H
From reading your journey extensively, it's certainly one step forward and two steps back with you it seems. Just keep making those steps forward. Has to get you somewhere eventually
T
So sorry this has happened to you.
ErikaS
Ugh Dean this makes me so sad and mad. Fuck this awful shit!! I know for spasmodic dysphonia, when the vocal folds go into spasm they use Botox to weaken or relax the muscles. Is this an option in your case with your throat muscles or no?
DeanD
@ErikaS - the worst is being left to suffer by the medical system.
This morning bradychardia (58 bpm) , body shakes, body compensating with adrenalin - just a shitshow.
There is only so much a person can suffer.
My neurologist mentioned botox injections - but even at $400 an appointment everything is too slow.
No urgency, no compassion, hospital just send me home. No fight left.
Leila
I'm so sorry you seem to be unable to get a break from this sh%§! Sending hugs and lots of positive thoughts your way!
DeanD
I have a bit of stress, no anxiety and average heartrate of 64 bpm all day.
I feel calm despite all this and I am so used to it now I don't get worked up anymore - but I am low, sad and at rock bottom with suffering.
Tinnitus is screaming, so loud I cant hear some things, yet I hardly notice it. These other symptoms are so much worse.