Tinnitus Talk Support Forum

Joshua Macleod
@Mo8409 I now have upwards of 12 tones (not a contest, I know!) and I'm probably, mentally, better than I've been for the past year. T is bizarre, but please don't let it defeat you.
Tryn2BHopeful
Sorry to hear that. Would you consider it overall better than 3 months ago?
RunningMan
Yeah, things can change. My primary tinnitus sound always changes between the single tone and hissing in both ears together, fairly balanced between ears. The low frequency tinnitus is only in the left ear. Sometimes I have a noticeable mid-frequency tone in just my right ear.
RunningMan
My recent TTTS fluttering can be in either ear, but it's never been in both at the same time. And the clicking I sometimes hear the last 4 years is only in left.
Mo8409
@Tryn2BHopeful Is it better? hmmmm. It started on my right side and maybe that's a tiny bit better, not by a lot though. It can still be loud most days. Now I have to adjust to my left ear. I've noticed some days I've had periods of forgetting I had it and then days where it's louder then I wanna deal with. The ears are connected so it's inevitable that tinnitus will be in both eventually.
Mo8409
@RunningMan How often do your sounds change? Hourly? Daily? Weekly?
Mo8409
@Joshua Macleod How in the heck do you get 12 sounds?! Thank you for the positivity. I need all I can get!
Ryan Scott
At this point I honestly feel like we have no control over T. It just does what it wants.
Joshua Macleod
I have two bilateral tones, one a very high E and another very low almost-pulsatile hum. The latter is quite soothing, sometimes. I then have +10 unilateral tones. My left is currently worse than my right, with two hyper-dominant, loud tones. Both have many little tones that can sometimes become more noticeable, but I typically have to focus to tune into them.
Tryn2BHopeful
@Mo8409 What I dont get if its in "our brain" how are we recognizing it on an ear at all? Sometimes I think I hear it on a specific ear, but most of the time it feels like its in my head. Ugh!
RunningMan
@Mo8409 It can change between the hissy vs. tone in a matter hours, and no longer than a couple days. But it's a gradual change, or I wake up to it having changed. And intensity can vary over hours on its own, and exercise will ramp it up. There's definitely no set pattern. I prefer the more mild staticy sound when it occurs.
Mo8409
@Ryan Scott Isn't that the truth. It seems when I start to adjust or tell myself it's gonna be okay,nthis condition switches and I start back at square 1.
Mo8409
@Tryn2BHopeful So how this happens is that our auditory nerves are both connected to the back of our brains. Looks like a wish bone of a turkey almost. The nerves then branch out to each ear. Above our ear is a tiny piano looking keyboard that plays the difference tones you hear.