Tinnitus Talk Support Forum

@Lurius Thank you so much for your message and your kind thoughts, I think about you often even if I'm always too shy and scared to bother anyone to reach out. I've read your profile posts, I'm so sorry to see how painful and distressing things have been for you lately...

@Lurius I'm doing well despite a slight setback these last few days, but I'm feeling much better today. I have 95% silence most of the time, not a day goes by that I don't wish the same for you and everyone here.

@Lurius I can't imagine how cruel the news regarding the machine must have been for you... You're in my thoughts, healing can't come soon enough. Sending my love to you and anyone reading this.

I don't understand what you mean by 95% silence. Do you mean actual silence or you just don't "hear" it anymore because you've habituated? Glad to hear you're better.

@SarahMLFlemmer I mean actual silence. Most of the time if I plug my ears during the day, I hear nothing but a sound so faint I would even hardly qualify it as a noise. I hear it a bit more at night, but I'm not talking about habituation. Loud tones and suicidal T have slowly disappeared these last 2 1/2 years since onset, and I am left with what is nearly complete silence.

So incredibly kind of you, Ondine. I wish I could give you a hug. I'm so happy you got some peace again. Today I had pretty crazy visual snow, even with some "thumbprints" in my field of vision....fortunately it disappeared. I just learned about GABA and now I know I have GABA-dysfunction, so I'm talking to my doctor about what can be done about that.

@Ondine PRAISE GOD!

@Ondine did you stay home in silence for over 2 years for these tones to go down? (I'm in the same situation with several loud suicidal reactive tones)

@Lurius how did you find out you have Gaba-dysfunction?

@Utdmad89 I'm autistic so it comes with the territory.

@stacey Immediately after onset, I was on sick leave for 3 months, came bach to work for 2, then quit. I stayed home for 9 months before finding a "quiet" job in a museum for 6 months. I've been home since last november and been unable so far to go back to any kind of work.

@stacey But if I did stay home, I didn't stay in complete silence. My sound tolerance lowered at the beginning, as I damaged my ears by masking my T with music at lowest volume in my headphones ; my fiancé was very careful with noises around the house and dealt with the loudest ones (vacuum, dishes...).

@stacey But I still went out sometimes, plugging my ears when the car door closed, foam earplugs ready anytime I left the house, doing groceries when shops were empty... If it ever got too loud or uncomfortable, we left. I avoided loud events or places like the plague, still do.

@stacey At home, I always kept low music in the background during the day, as I couldn't bear to be in complete silence. But I forced myself to go to bed with no masking whatsoever, as I felt my ears needed to rest.