Tinnitus Talk Support Forum

It depends how stable we are. Mine seems moderately stable. Movie theaters, concerts or anything with loud speakers would probably give me a permanent spike, but I can still see family and go to restaurants. I've never noticed a spike after any loud restaurant, even without earplugs, but they still make me very anxious, so I wear them anyway.

Are you able to do any social activities without spiking?

I pretty well lost everything. Plus now I've got leukemia and am tired all the time. Got covid + permanent brain fog, tell me about it.

My social life is now just as busy as it was before my life with catastrophic tinnitus (now: mild/moderate), with the minor difference that I seldom go to loud and overcrowded places. Though I have to add that today I had a political event (handing out flyers) with other activists at one of the most busiest open markets of Western Europe.

@Juliane - I try to live a little. Canceled many outings with friends but do the odd get together with family. I am fighting so hard to not let this bother me. Today I buried it down. Every time I do a little better I get killed with higher T. I'm fighting but I don't think i am going to make it. I am so scared. It is consuming me. It's so loud and gets worse with most food. :(

I pretty much have no life now lol

@HearingHell I see my boyfriend, obviously, and invite friends to my place for one-on-ones. That's about what I can endure. Even the tv spikes me. I will never go to a restaurant, party or family gathering again in my life. So socializing is a part of my life thats over.

@object16 I am so sorry to hear that. I truly am. Hope you have family/friends who support you ❤️

@Christiaan I am happy to hear you went from catastrophic to moderate/mild. That is incredible, no? Do you know what helped you improve?

@4Grace Sorry if I am saying stupid things but I wonder if your symptoms come from some kind of neurotoxicity? Could this be checked?

I have been wondering if this is the case for many of us. Did you get the covid vaccine?

@crescentsky I am sorry. Same :-(

I didn't have much of a life.. so not much changed lol.. just my sanity...

@Juliane - never a stupid question. Only T is stupid. I reluctantly got 2 vaccines. Did it for my daughter. Shortly after vaccine I got Covid and had 4 days 100 percent insomnia. I always slept like a baby.

@Juliane - no question my auditory nerve was damaged by trying 3 ADs for a short period. Plus major noise trauma plus 45 min screaming in ear when I was not well. Stress and no sleep for months. I am much more in control now just that my T is insane. My two cents. I'm am not sure if hiding from life is going to work for me. I can't do that for 20 - 40 years.

@Juliane I never took pills for anything during this time I also had an injury and was taking Tylenol and Advil for pain. For a week. Way too many meds in a short time. I T form everything that causes T. Always loved loud music too.