Tinnitus Talk Support Forum

just1morething
Nooooo! You are way too young. Everyone's life is precious including yours. I hope you can improve somehow. I'm doing better today but most days are very difficult. I wish there was more effective tinnitus treatments.
BrOKeN_1
It's crazy. I know. Takes me a good 30min or so to shake those feelings off. Waking to silence for even 5 minutes would be nice.
RunningMan
Mornings are often the worst for me, but sometimes I'm miserable about all day. Hang in there - better days can follow.
MatthewR
@4alien2 I know it's hard.. I regret my accident every single day.. but please please please keep your head up as much as you can. Get sunlight, exercise, do what you enjoy. Stay close to God! I really can relate to your posts "I'm not the same person" I really wish our hearing could be perfect I pray it improves but remember the mind is very powerful. I care about you my sister
MatthewR
Think as positive as you can.. I don't ever want you to think suicidal @4alien2 please don't. There will be better days ahead I promise you
just1morething
I fell asleep with my Bi-Pap on and my left ear noise is bad again. I understand people want to be normal again. I see jaw surgeon tomorrow, same one as 2 years ago.
4alien2
@just1morething @RunningMan @BrOKeN_1 @MatthewR Thank you all for your support, friends. I have debilitating ear congestion and each time it becomes blocked the tinnitus gets worse day by day. I have been struggling with the congestion problem every month for 2 years and there is a very severe ringing sound when I open my ear. If only I had constant tinnitus and no congestion, I would actually live with it.
4Grace
@4alien2 - hello - so sorry. Hard to find the words. We love you. Honest. You are not alone. I understand.
4alien2
Daphne91
You can do this! I know it'snso hard to accept it as a new reality but I promise once the shock of "is this really what my life is going to be like/ will I keep waking up to this sound/ why me" wears off and you replace with ..
Daphne91
… a new narrative that only YOU can decide "I'm so strong despite this/ I may have this handicap but it's made me more empathetic/ I'm going to use the suffering to do something impactful" whatever it may be, the fewer the days we pity ourselves (and I know those days won't be zero) the sooner our brains will get on with it and stop seeing it as debilitating any more..
Daphne91
..and then it won't be!
Daphne91
And also, when I started on this "journey" in 2016 there was pretty much nothing on the near horizon that sounded promising treatment-wise. Don't go crazy monitoring updates all the time and speculating, but from what I've read and heard and discussed I DO feel hopeful about the Auricle treatment (susan shore) that's meant to be approved within 2024!
Daphne91
so there is hope! But even more hope from the number of people who have gotten to a MUCH better place with the condition that they ever thought they could..you can do it because your brain is wired to if you let it :)
4alien2
Thank you very much for your nice words Daphne :) actually eustachian dysfunction is the hardest thing for me it's killing me @Daphne91