chinup
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chinup

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Why I’m bullish about cures: the barrier is research + funding. Soon AI will be like having hundreds of cheap PHDs working 24/7 Aug 23, 2024

chinup was last seen:
Aug 24, 2024
    1. Zigs
      Zigs
      Also, sorry - after your worst setbacks (ie where you were homebound for months) how did you go about reintroducing sound? At what point did you start, if you can recall
    2. Zigs
      Zigs
      Hey sorry, me again. You mentioned in posts a few years ago that you used pink noise all night. Is that something you kept up? I find anything like that very irritating. I treat night time as the key ear rest time. Just wondered how you approached this
    3. chinup
      chinup
      Why I’m bullish about cures: the barrier is research + funding. Soon AI will be like having hundreds of cheap PHDs working 24/7
      1. streifzug likes this.
      2. BrOKeN_1
        BrOKeN_1
        Maybe AI will figure it out. Here's hoping anyways.
        Aug 24, 2024
    4. Dansco8
      Dansco8
      are you able to just sit in your room and listen to music?
    5. Zigs
      Zigs
      Hey, I have been reading all your posts and advice and I totally agree with your approach to pain H. I’m just wondering what did you during your first onset and then setbacks? I mean literally day to day, how did you keep going? It’s been a week of staying inside with ear protection and I’m losing it
      1. chinup
        chinup
        Lots of hikes in nearby nature with heavy earplugs, lots of gaming without sound on, browsing on my phone with sound off, reading books. The worst part was losing my social circle and not being able to eat at restaurants but eventually it all came back. Prioritize recovery over everything.
        Aug 1, 2024
        Zigs likes this.
    6. chinup
      chinup
      Feel like I have my life back from nox and loudness H, now if only they can make progress on that pesky T!
      1. Zigs, ECP, sandyknight and 6 others like this.
    7. BBBB
      BBBB
      Hello, after recently developing nox and soon meeting with a cbt specialist+audiologist, how did you handle these conversations at the start? Should I use earplugs for those moments for now too and only desensitize without plugs for controlled minutes alone for now? I've felt an increase in burning after simply talking with my parents without plugs all day
      1. chinup
        chinup
        Yeah I personally keep the plugs in and desensitize in controlled environments.
        Jun 30, 2024
        BBBB likes this.
    8. Dansco8
      Dansco8
      hi just wanted to know if youre able to go to restaurants at all and how your tolerance is at the moment
      1. gameover likes this.
      2. chinup
        chinup
        Yeah I can now go to restaurants without issue as long as I wear hearing protection. I’ve been to many restaurants the past year, it’s awesome.

        My tolerance is the best it’s been since 2019 when my H went from manageable to catastrophic. It’s back where it was before the major noise injury I suffered almost exactly 5 years ago.
        Apr 8, 2024
        sandyknight, gameover and Dansco8 like this.
      3. Dansco8
        Dansco8
        wow this is great news i wish you could go into even further detail for me. Youre one of the only people whos H is exactly like mine. Ginger has been a major help and after isolating for the past year along with taking ginger the pain isnt what it used to be. I just dont know what my tolerance to digital audio is and im still scared to try to find out
        Apr 11, 2024
        gameover likes this.
      4. Zigs
        Zigs
        @Dansco8 how is your pain these days? Can you go out and about much?
        Sep 1, 2024
    9. chinup
      chinup
      optimistic that we will all be cured by 2035. too much money and brainpower being poured into AI to reach any other conclusion. stay strong.
    10. Heal82
      Heal82
      Hey Chinup,
      I wanted to know how do you know that you have utilised a particular day's bandwidth. I am referring to your post about how you quickly took corrective action in order to avoid a setback.

      Thanks
      Fellow Sufferer
      1. View previous comments...
      2. Heal82
        Heal82
        Thanks a lot chinup for your prompt response. I somehow feel drained entire day due to this condition. I am just too depressed.
        One more thing I wanted to ask was that I am currently working remotely. Can you lists some of the dos and don'ts that I should follow? Please do not say don't work at all because it is not an option as I have an 8 year old and I am sole bread earner.
        Jan 10, 2024
      3. Heal82
        Heal82
        Hi @chinup, are you currently working ? I mean are you employed and going out to your workplace?
        Feb 5, 2024
      4. chinup
        chinup
        I work from home fortunately. I think that was a big part of my recovery. H almost seems like tearing an ACL but then having to run on a torn ACL every day. If we could just rest a few months we’d get better but we are bombarded by sound 24/7 so recovery takes forever.
        Apr 8, 2024
        Heal82 likes this.
    11. haha ear go eeee
      haha ear go eeee
      Hey, did you ever try Ivabradine for your POTS?
      1. chinup
        chinup
        I never tried it, dealing with other health stuff sadly. Seizures, possibly a brain tumor or just epilepsy. Have to get an MRI tomorrow and praying it doesn’t set me back…
        Sep 11, 2023
    12. KoolKat
      KoolKat
      I do think we are getting closer to some form of treatment, what do you think? From your point of view since having this since 2010 , do you think we NOW IN 2023 got all the ingredients for treatment or do we have more hurdles to climb. im seeing alot of new discoveries saying we mapped out the ear, and have ways to get drugs inside them. IDK.
      1. haha ear go eeee and Ken219 like this.
      2. chinup
        chinup
        I think we will be cured in a decade. I think we are at the forefront of a golden age of medicine. But it will take a bit of time still.
        Jan 10, 2024
    13. KoolKat
      KoolKat
      So sorry my brother that youve had this since 2010, 2010 was a pivotal year in my life and
      tho my life post 2013 sucked i just get sad when i think about people who've had their lives ruined
      like mine thanks to this stupid condition.
      1. NYCGuy likes this.
    14. GPL
      GPL
      Hello

      Could you tell me a little more on how Ginger has helped your Tinnitus please and whay quanities.

      I am about to order some some strong ginger suppliments if you think this might help my Tinnitus.

      Regards.
      Keith.
      1. chinup
        chinup
        Sorry for the late response. Ginger helped my Hyperacusis but never my Tinnitus unfortunately. Nothing helps that aside from avoiding caffeine and loud sounds.
        Jan 10, 2024
    15. ZFire
      ZFire
      Hey @chinup, How’s
      it going? I was just wondering what musician’ s ear plugs do you use?
      1. chinup
        chinup
        I use hearos high fidelity plugs. Blue package. Clear earplugs.
        Jan 25, 2022
        ZFire likes this.
    16. GamingT
      GamingT
      Greetings, you reported your tinnitus worse after taking covid vaccine...has it gotten any better since then? Does your tinnitus usually fluctuate if you take certain medications (asprin) or eat certain foods?
      1. chinup
        chinup
        It has slowly improved over time. It’s still not back to baseline but it’s manageable now. Some days are very close to baseline. Hopefully I’ll continue to improve over the next 6 months.

        Caffeine causes it to spike.
        May 6, 2021
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  • About

    Tinnitus Since:
    2010
    Cause of Tinnitus:
    Loud music