cjbhab

Yes!

ah the gaslighting that we love

gaslighting is so regular we think it is truth. I have had at least 3 Doctors basically tell me there is nothing I can do.

This is so true.

Wow - that’s nice. I have never had that

Funny thing for me is when that happens I forget to thank God. I almost forget that I have T.

And they will never get T!

@crescentsky nobody gets T.
T literally isn’t a thing. I know it’s unpopular for me to say that. Majority of society can blow an air horn in their ear for 24 hours and they won’t get T.

especially kids. they love those things.

my audiologist says vertigo and balance are the main symptoms (for meniere)

@2049v I have a conductive loss at 20b across most frequencies and at 6k it goes down to 40db then at 8k 50db. My bone conduction is on the 10 db line.

@MiaVIL, This means that there is no damage to the cochlea, which is a positive outcome since cochlear damage is neither treatable nor reversible. Do you know what is the cause of your hearing loss?

@2049v I must have some loss at 6-8k since it starts to slope downward so that is cochlear damage, just mild. No clue how I got this and no clue how I have the conductive loss either. Hearing aids aren’t helping with anything.

doctors and audiologists will tell you don’t worry about those sounds , they can’t cause any issue.

they are paid to gaslight us

@crescentsky they could get paid a lot more if they had a real solution for me. i’ve got a lot of cash and i don’t mind spending it lol

Not just the money, but the time wasted. Some people say it helps, but it could just be placebo. There was a new video of a pilot who said his tinnitus was now "zero" with Lenire. But I checked now, and that video is gone. https://www.news4jax.com/video/news/morning-show/2024/07/17/breakthrough-treatment-for-those-who-suffer-from-tinnitus/

There are also a handful of anecdotes on this forum about it becoming much worse after using Lenire.

I found a working copy of the video and also posted it to the Lenire thread. Is he a paid actor? https://www.youtube.com/watch?v=6qZUMmsoMBc

I am glad to hear they do not bother you too much! How did you manage to get to that point? For me, it has triggered immense fear of something being wrong with my eyes. And a chronic headache

@Juliane i think i am lucky and it is just mild so i didn’t really have to do anything. indoors i only occasionally notice it. when i am outside and look at the sky it is pouring floaters.

@cjbhab Pouring floaters do not sound mild:-( how do you do it? How do you work? I don't think I can handle this

I am willing to give a lot of money if someone really has a fix.

@Bob3382 same. i saw somebody scoff at 10K. id pay you 100K today no questions asked if you guaranteed me silence. probably more. i would take out multiple loans if i didn’t have the money too. i’d rather be bankrupt with silence than flush with cash and tormented all day.

we all won some kind of shit lottery.

Definitely. None of this is your fault. The world is set up as a "one size fits all" shitshow, which means that sensitive individuals like ourselves need to be EXTREMELY careful about whose advice we buy. We need to stay off all meds, live as healthy as possible and, if at all possible, move out of the city and to the countryside.

i have been doing okay the last 2 weeks. T has been pretty stable. When it is stable, it is manageable. it is Probably because i am on vacation so i am outside all the time and stress free. how have you been doing? PS i even went to twisters movie with earplugs and it didn’t seem to bug me. so that was positive.

I am sleeping better than previously. It feels like T is louder, but manageable lately.

Oh this is the worst yes. I can hear music and bass in the cars that are at least 40 feet away from me. And I can hear lyrics! I am so shocked. I'm getting spikes and worsenings just by simply sounds above 60 decibels yet they are blasting 110 decibels and totally fine. Life is cruel. I hate living

I view such people as stupid. For me, great sensitivity of the body is linked to intelligence so whenever I come across people like that (blasting loud music, being able to drink a lot of alcohol without getting ill, and otherwise "thick-skinned"), I automatically label them as stupid and lacking in all areas of life that are important. Not that it helps me in any way.

Love the sounds of birds and wind, and generally outside noise, helps quite a bit

@crescentsky the reason is that chronic T has nothing to do with noise imo. if being around constant noise like bars, concerts, nfl games etc caused chronic T, every single person i know would have it.

Think it’s something to do with the brain. Same as how some people get phantom pain and some don’t with missing limbs

I am constantly questioning why me, Lord, why me?

Probably access and money

@crescentsky i guess. load up a credit card . if you are going to die anyway , it’s not your problem.

I guess because they do not trust doctors and the "scientific" community due to multiple trauma caused by those exact people who were supposed to help. I, for one, fear doctors like the plague.

And because stem cell therapy can make you a lot worse.

I am sorry for you suffering this spike. I will pray that you have peace in the midst of the storm.

@MatthewR he’s gotta pick up his socks. I love certain musicians but i still critique them when they put out a terrible song.

He can. I know that. It has to do with whether He will or note. We know He does not heal everyone, and He has purposes that He does not always reveal to us. I'd encourage you read 2 Corinthians. He did not heal the Apostle Paul.

Fairytale.

Sometimes I go a few days with no spontaneous thumps. It's hard to say with the fluttering because that requires certain stimulus which I'm not always subjected to. I suspect it would start up within 10 minutes of watching the Shore webinar.

@RunningMan why? what happens on the shore webinar to induce thumping/fluttering?

@cjbhab Well, other videos with voices that don't have other background audio mixed in will trigger it also, like listening to a podcast from Tinnitus Talk, when I'm listening at my computer. Real voices can trigger the fluttering also. Typing on computer keyboard has triggered it a little bit.