Tinnitus Talk Support Forum

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Hopeful1
I am in the UK .... where are you based
E
Hi hopefull i am based in France. Did you spoke with the doctor about this side effect. Is there somebody else in your center which got the same issue ? Thank you
E
You told me that your T was reactive before AM101 but not as it is now right ?
Hopeful1
My T Is always been reactive......but is has got slighty worse but i an not sure if it is because of AM 101
Hopeful1
No i did not speak to my doctor about this as i did not think it is due to AM 101
E
Do you feel like having electricity that goes in and out your brain in accordance with the sounds you hear ?
Hopeful1
No...i just hear the activity in the brain sometimes more areas when it is high....less areas of brain when T is low
E
Yes and it is very difficult to manage the T. Is there any small improvement from your side ? How long since the last injections ?
Hopeful1
There is no improvement as i see it...its been 40 days since injections
...if any thing it got slightly worse
E
why do you think that it is not linked to AM101 ?
Hopeful1
Its always been fluctuating...last few days have been good..so impossible to tell
E
Hi hopeful1 how are you ? T still fluctuating with sound ? See you. Cheers.
Hopeful1
I am good thank you...yes it always fluctuates with sound...i am just thinking how long i have bear this noise?....how is yours?
E
For me these fluctuations have begun 2 weeks after injections. Before I had hyperacusis but I was sensitive to some sounds and I had some pain. Now it is really different and worse. Instead of pain now it is spike of tinnitus with some noises. It is still difficult to manage. How can we live with this shit.
E
For you it was the same type of fluctuation before and after AM101 ?
Hopeful1
Yes, same or may more after injections
E
Thank you Hopeful1. It is summer Air conditioning is working a lot and my T spike accordingly. that is shit.
Hopeful1
In the UK it is always cool no air conditioner needed here.
E
Then you are lucky ;)
E
Where do you work hopeful? In my building with a lot of computers and air cond it is really difficult.
Cheers
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