COYS

COYS

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  • COYS
    Havent been here for a while. Hope everyone is okay
    View previous comments…
    COYS
    T is better but still there. Kind of used to it now
    T
    Do you still have ear spasms? 1 month and seems to get worse. Reacts to doors closing, faucets myself talking etc.
    COYS
    I do sometimes but its definitely improved. I dont notice it as much as I used to either. The spasms I could deal with but the ear pain was horrible
    COYS
    Feel almost back to normal now. Back cycling, playing football and sleeping isn't too bad either. It can get better :)
    COYS
    Sleep is almost back to normal. 7/8 hours straight the last 4 nights
    Lilah
    Are you taking any supplements/meds for sleep?
    COYS
    Nope. For me it's slowly getting back to normal. I use a waterfall sound to distract me from the T. At first I was getting barely any sleep at all
    COYS
    Woke up today to actual silence. Plugged my ears and I still wasn't sure I could hear it. Anyone else ever get this ?
    Strife_84
    I can only hope. My T and H got worse again after being at barbershop... But I am glad you have it better!
    M
    Wow you did. That's great How is it now?
    COYS
    Not a great nights sleep but bad nights are less common these days. Guess I should be thankful for that ...
    COYS
    First proper bike ride since T . No ear pain etc so all good hopefully !
    Jack Straw
    Went for a ride yesterday as well! Nice to be in nature.
    COYS
    Think it does me good to take my mind off it and the excercise obviously
    F
    Has your TTTS/ear spasming to sudden noises gotten better?
    View previous comments…
    F
    Right on, yeah mine is triggered from noises in a more quiet environment (my own voice, crisp packets like yourself, cutlery hitting etc). Not sure if I should baby the ear (keeping an earbud in the problem ear seems to stop it from spasming at all) or just carry on as usual. Shame that this issue is not well understood.
    COYS
    I used to get a tingling sensation around my ear as well. Its very on and off now and seems to be getting less and less. I dont have ear pain from noise specifically just the spasming or popping sensation. Its very irritating. I went with the logic of dont over protect them against everything but protecting when doing DIY etc.
    F
    For some reason I can't find the area to respond to your conversation COYS. Can't find a place to type to respond.
    COYS
    Realised today that crisp packets and the microwave beep feels okay to my ears. Progress ...
    View previous comments…
    COYS
    Don't want to jinx it but I'm assuming it's a positive
    Strife_84
    That is positive! But I found out if I overwork my ears, the beeps and so on start to feel bad again. So it's physical?
    COYS
    I guess it is! My spasms seem to be getting less but then the odd day they come back again
    COYS
    If Lenire can get my T permanently down to my "just woke up can barely hear it level" I'll be over the moon
    COYS
    Closest to silence I've experienced so far this morning. High pitched eeeee was gone completely ?! Then returned
    M
    Yeah mine seems low in the morning as well. Is yours in both ears? Mine is just one ear. But it seems to be moving to in my head. Idk anymore.
    COYS
    Mine is mainly in the right. If I plug each ear separately the right seems to be louder
    M
    Is your T still fading? What would you say it is on 1/10?
    COYS
    Hello. No I'd say mine is ok average 2 and sometimes a 3. When I wake up in the morning it's sometimes a 1. Which makes me hopefull that it's fading
    COYS
    Tingling has been better the last two days having done nothing different. I'll take it though
    COYS
    I think I've worked out that it's TTTS causing my tingling. It was spasming with my head on my pillow and now that ear has the Sensation
    COYS
    T is getting better, music sounds better (I think). Spasms and tingling sensation are so anoyying !
    COYS
    Never both ears at the same time. Sometimes my left sometimes my right. What does that mean?!
    Strife_84
    Yes, the spasm are worst and the strange tingling sensation.
    COYS
    I mean don't get me wrong I'd rather that than sharp pains. But it's so random that's it's only ever one ear at a time
    COYS
    Why is my ear pain back for no reason. Went to bed with just right ear pain. Woke up with just left ear pain. :(
    COYS
    Good news: sat in a quiet room at work 45db ave and not sure if I can hear my T. bad news: Ear spasms are more noticeable than usual! ARGH
    COYS
    Just woke up In a quiet room and had to strain to hear my T for almost ten mins! Closest to silence I've had for months
    rdz
    That's good. Hopefully you wont be able to hear it anymore.
    Contrast
    You are making good progress, but please focus on protecting your ears so you make the best recovery possible.
    COYS
    I definitely will be . Just want to recover as much as possible :)
    COYS
    @Contrast was your healing linear in terms of the ear pain and spasms ? Mine was really good for 3/4 weeks and now it's back slightly for some reason
    COYS
    Fire alarm went off at work 2m from me and didnt affect me that much. Is this a sign my H is getting better?!
    View previous comments…
    COYS
    Ears didn't hurt either... but cutlery still makes my ear spasm!?
    Contrast
    just because the noiceptors in the cochlea aren't activating doesn't mean you should expose yourself to noxious noise. Pain hyperacusis will come back
    GSC
    Plugs your ears next time. Don't test what your ears can and cannot handle.
    COYS
    No ear pain for just over two weeks. Hopefully this continues and these ear spasms disappear too
    Strife_84
    They will disappear. My ear spams have reduced to almost zero. Let's keep fighting!
    COYS
    4 months in so far. Still hopeful they will stop
    COYS
    First time cycling since T. No spike or pain and good to be back on the bike :)
    View previous comments…
    PDodge
    Same here, If my ears are shit, they are for the day. at least sports takes the mind off it. I hear my T less out in the wood mtn biking
    COYS
    I agree. My ears didnt hurt so ill take that. T didnt really spike that I noticed so I'm going to carry on cycling.
    erik
    Good for you! I mountain bike often and play soccer 3x a week. Both always spike my T but it's not permanent. It usually settles down by the next day. Regardless, I won't let T deter me from doing the activities I love spike or no spike!
    COYS
    Don't want to jinx it but have been sleeping much better. Need to get back into cycling and get exercising again !
    COYS
    Ear fullness and Tingling is getting me down today. Wish I just had T I deal with that better :(
    View previous comments…
    Strife_84
    Do sounds make it feel more like that? If I am exposed to sounds, it startd to feel like rubber ball is behind my ear, inside my head.
    COYS
    Yeah its a weird sensation. sometimes for no reason at all then it can be fine for hours on end.
    Strife_84
    I think it might be cochlea Imflammation.
    COYS
    Why can't my T stay at the "just woke up not sure if I can hear it level" 30 seconds of bliss
    View previous comments…
    Drone Draper
    Fingers crossed, Sir. I'm sceptical by nature. I've got some hope now that I can at least function with this level of noise. If it never improves beyond this, but doesn't worsen, I think I can live a decent life. I hope you are well.
    Bill Bauer
    Unless you experience a new trauma, there is no reason for your T to not continue to fade. Of course, the more it fades, the slower it tends to fade, but nevertheless all of this fading eventually begins to add up.
    Drone Draper
    Thanks, that is my hope. I've been told that I'm prone to catastrophic thinking, so I'm trying not to focus on the possibility of it getting worse on its own. I'm doing all the protective measures I can and will stay well away from concerts or clubs for the foreseeable future. I would ask how yours is doing, but my understanding is that you've stopped discussing it in public.
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