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  1. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Agree, some of us wrote pretty detailed posts about this here. All in all: not worth it - potential short time relief followed by potential liver problems, urinary retention, chronic eyes floater, blurred vision, even worse T. All happened to me after almost 2 months with the higest dosage. In...
  2. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    @dj_newark dont take it personally, christian78 has a hard time expressing him since he has been totally destroyed by the severeity of his condition. It is just the way he writes. It can come over as offensive. I have the same progressive kind of T with about 10 different loud always changing...
  3. snow86

    So, Now I'm 28 and Have Hearing Loss, Is This Guy Saying I Now Am Losing Brain Function Too?

    Telis just forgot to use smilies...You know he has real debilitating T (in contrast to jd09) It is just his way of saying what people with killer T think about Jd's daily threads.
  4. snow86

    vibrating always changing and worsening reactive bass (+high pitched) sounds crushing my head...

    vibrating always changing and worsening reactive bass (+high pitched) sounds crushing my head. Like chronic severe pain. Just unbelieveable
  5. snow86

    What Happens After Someone Suicides or Dies?

    You're not gonna stop with these threads are you? In every thread you open on TT you are lookin for the "OK" to kill yourself, based on some internet posts. In your other thread you asked for advice, people took their time and posted you super long answers and you dont even read them. Even if...
  6. snow86

    Keine Sorge, wenn du wüsstest welch eine Tortur ich täglich erlebe ;) Wunschdenken hilft leider...

    Keine Sorge, wenn du wüsstest welch eine Tortur ich täglich erlebe ;) Wunschdenken hilft leider nichts.
  7. snow86

    they're gonna play some concerts in germany this year. hue hue ;)

    they're gonna play some concerts in germany this year. hue hue ;)
  8. snow86

    RL648_81: Synthesis and Evaluation of Potent KCNQ2/3-specific Channel Activators

    Man you're so clever ;) . Its all black and white. What you say, is true for "normal" T...Habituation will happen sooner or later, if the person is able to habituate. So it basically doesnt matter, its not like a person if fighting against it. Before I got debilitating T, I had a normal one...
  9. snow86

    or highly dysfunctional \o/

    or highly dysfunctional \o/
  10. snow86

    You can never come back. When you're out of the blue and into the black.

    You can never come back. When you're out of the blue and into the black.
  11. snow86

    having good days would be a blessing :|

    having good days would be a blessing :|
  12. snow86

    How Many People Have Committed Suicide on This Forum?

    You wrote in your other thread that your T doesnt really bother you. You just keep obsessing over that medium hearing loss and you dont give a shit about any of the countless advice that has been given to you. (Hearing aids etc). You just chose to ignore it ("I will maybe try hearing aids at...
  13. snow86

    Seen Everyone. No Help But It Isn't Their Fault.

    You people should get together and make more generalizations (of yourse ceauses likes your post lol) Yout dont know how bad and loud T can get when multiplied by abstract stuff like rTMS. How can you? Yet you make generalizations because you think the severity of tinnitus is maxed out by the T...
  14. snow86

    Seen Everyone. No Help But It Isn't Their Fault.

    I knew it was the right decision to put you on ignore =) Your such a... (ceauses97) I compares to 90db on the outside, 90 db on the outside doesnt even mask it...so what? what is your point? it surely feels like 90 db or more. go troll somewhere else like you do
  15. snow86

    Seen Everyone. No Help But It Isn't Their Fault.

    who cares about "usual" T when Telis is writing about extreme T and cia methods? He clearly is not talking about your over the counter "eeeeee" Tinnitus, where you have to concentrate to notice it. My T could be easily used for torture (thats what it does to me) 90+db and several deep sounds...
  16. snow86

    Tinnitus Research Initiative (TRI) 2016 Conference

    It is a university and many of those papers/publications were probably used to earn doctoral degrees. Much of this research is gonna be theoretical.
  17. snow86

    Tinnitus Research Initiative (TRI) 2016 Conference

    Most of that research comes from Universität of Regensburg led by Prof. Langguth and Winny Schlee. (Part of TRI) I wouldn't get my hopes up too high. "number of projects" means quantity...As well as that may be..Most of these soft-approach projects are pretty ineffective (im my opinion...
  18. snow86

    Reiki Treatment, Anyone Tried It?

    Don't waste your money. Someone touching your head is not a treatment :) Self relaxation/awareness training like qi-gong or autogenic training is one thing and it works for many people... but having someone just touch your head because you believe him to have healing powers. That's not...
  19. snow86

    Can Someone Please Give Hope for Hearing Loss Cure?

    Thats why you need to get hearing aids. Thats what I and other people told you WEEKS ago. What you are describing will happen when you get HAs. But you would rather complain than get a free trial. How many times did you reject advice now, even from people who are/were far worse off and know...
  20. snow86

    life-crushing tinnitus is what happens while you're busy making other plans.

    life-crushing tinnitus is what happens while you're busy making other plans.
  21. snow86

    Is Your Tinnitus High or Low-Frequency? What Was the Cause?

    Below 8k is not 'lower' . Try having tones below 100hz. It's whole different kind of torture when your head is really full and feels like having a bass box near your ears. I can only agree with Ben since I have both extremely low frequency tones but also several ones above 6k. Don't really...
  22. snow86

    Wisdom Tooth Extraction: Will It Make My Tinnitus Worse?

    Use the search. There were several threads on this topic. Dental surgeon + general anesthesia if you want to be on the safe side. Depends, if it is an "easy" pull or the tooth is buried. If it is a complex pull and hard to reach I wouldn't go for a normal dentist + local A. Speaking from...
  23. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    No, it actually had the biggest and quickest impact on empty stomach (surely not really healthy). I think you're just getting the roulette random side of trobalt. I experienced all effects with trobalt and low frequency drone t - better for minutes or hours / no effect / worse. It pretty much...
  24. snow86

    @jimH same here / 2 HAs ...but i dont mind them. Life can be good with it. But not with extreme...

    @jimH same here / 2 HAs ...but i dont mind them. Life can be good with it. But not with extreme reactive multiple T + H
  25. snow86

    @Sailboardman sign us up, at least there will be free rum. @Blackbird26 thanks... same family...

    @Sailboardman sign us up, at least there will be free rum. @Blackbird26 thanks... same family situation, grandfather + grandmother + father = hearing loss but no T...
  26. snow86

    feels like being inside the engine room of an oil tanker while alien ships are landing next to...

    feels like being inside the engine room of an oil tanker while alien ships are landing next to me. No escape.
  27. snow86

    Why Doctors Are Usually Worthless (Minor Rant)

    Depends on where you live :/...In germany you will get all these things from your insurance. The insurance is automatically paid from your salary. If you dont have a job the state will provide insurance for free. Theres at least that. Too bad none of these things help with extreme T. (yes as you...
  28. snow86

    Would You Recommend TMS for Me?

    @Beste Speaking from experience: I wouldn't do it. At least not after a month. A month is pretty much nothing in terms of T. You still got a lot time to get better. My first "normal" T got a lot better after a year. Even with hearing loss. (I assume you have normal hearing so your chances are...
  29. snow86

    AC/DC

    lol, way to spread awareness about the severity of this condition. His Eardrum bursted, blood came out. He was playing in ACDC and hes like "you forget about it after a week". Well, why would anyone worry about this if the price is seemingly just one week of suffering.
  30. snow86

    im a tone collector too, I can offer any sound...whos buyin ? -.-

    im a tone collector too, I can offer any sound...whos buyin ? -.-
  31. snow86

    Inappropriate, Jon.

    Inappropriate, Jon.
  32. snow86

    Opinions on Cause of Tinnitus?

    The possibility that Lexapro is making your T worse is very realistic. Lexapro and Venlafaxine(Effexor) gave me several additional new tones, which never went away. I agree with ATEOS. I have been given several ADs like candy. I regret visiting psychiatrists, but with extreme T there comes a...
  33. snow86

    For Those Contemplating Suicide

    Why would we need a treatment when 99.9% of the people can seemingly just talk away their tinnitus :rolleyes: (back to s.) Something comes to mind, what a fellow extreme sufferer wrote to me
  34. snow86

    Can You Still Hear When Unconscious? General Anesthesia

    Wish the doctor would have recommended that to me. My extreme T started 3 days after having my wisdom teeth removed. It was a normal dentist who decided to pull them out with local anest. It was extremly painful/stressful and took an eternity. He had to add injections all the time. So many...
  35. snow86

    End This...

    You sound like me...7 years of tolerable T at the same age, then got the same shit as Telis. And it has been worsening for 2 years now. Guess these are the anti-stories to all the mild tinnitus "wonder"success threads. This shit can get worse. But in order to get really extreme T you need to...
  36. snow86

    I Am Starting rTMS in March

    Good luck. You're not the first person here to do that. (my experience from this can be found in the rTMS thread) RTMS was my biggest mistake. Instead of helping me with my extreme T, it made it like 20 times worse. Added several new sounds, everything got louder, I can feel the sounds like...
  37. snow86

    Citalopram and Existing Tinnitus

    Citalopram made my T worse and after tapering off it wasnt the same as before. I would be careful with giving out guarantees like that :P
  38. snow86

    Why the fuck didnt autifony make it more longlasting :P

    Why the fuck didnt autifony make it more longlasting :P
  39. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Dude, you didnt get a single point of my post. Im talkin about the wars of the single users on this thread, which render this thread ridiculous. Not about the user experiences. Do you understand english :p ? Im in much worse shape than you and I have done 2 trobalt trials and have written many...
  40. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    This thread got really ridiculous. So many good user experience posts will be overlooked because people see the need to troll each other. Isn't there a general discussion thread for that? In august 2015 I wrote markku, if we could have another trobalt thread, where only people could post who...
  41. snow86

    +1

    +1
  42. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Im never taking trobalt again or "extreme side effects from overdosing" As some of you now I have extreme killer T (about 10 sounds which change all the time in very high volume) During the last weeks I was occasionaly taking 600mg at once before sleep (the highest allowed dosage is 400mg) to...
  43. snow86

    Hypnotherapy / Hypnosis for Tinnitus

    But it does. Its enough when I tell you if I got one loud tonal high pitched sound or 10 different loud ones at once. The level of suffering here is determined not by the reaction but by the mere amount of sounds and their nature. But you can only tell that when you experience both. There is...
  44. snow86

    Don't See the Point Anymore to Staying

    Ok. I see, its hard without that social safety net. Maybe you could at least try it out for 1-2 weeks for free and see if you feel different about your T when it is inserted. I have told this to some people who have hearing loss and T...they consider it but in the end they dont try it out...
  45. snow86

    Don't See the Point Anymore to Staying

    Dont want to sound bold but it seems you havent really read my post. Wasted words I guess. With "coming back" I meant coming back to living with an acceptable condition. Not coming back to work. At least not for now. So you want to kill yourself because of work or because your T is so...
  46. snow86

    Don't See the Point Anymore to Staying

    Didnt want to post here but im still gonna do I guess. Im 29 and Ive been wearing hearing aids for the last 14 years. I have inherited bad hearing from my family. (DNA lottery). My hearing was quite acceptable so I have only worn the HA to places like school or where i really needed to...
  47. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Sure. But calling it 'placebo' is wrong since it has pretty clear working mechanics. Well whatever. It didn't work out for both of us.
  48. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    You're pretty wrong with your assumptions. But you werent even registered here when some of us made pretty detailed trials. https://www.tinnitustalk.com/threads/retigabine-trobalt-potiga-—-general-discussion.5074/page-187#post-131655 It's just about the definition or "relief"...Trobalt is no...
  49. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Yes. just read the last pages...you will find such posts from me and @Christian78
  50. snow86

    Sailboardman, sounds exactly like mine. There should be a headphones output on our heads so we...

    Sailboardman, sounds exactly like mine. There should be a headphones output on our heads so we could show other people how (and how loud) this shit sounds. Maybe healthy people would take us seriously... Man what a great self pity party here
  51. snow86

    yeah...multiple, always changing tones are fun :^)

    yeah...multiple, always changing tones are fun :^)
  52. snow86

    My Mum Seems to Believe Antidepressants Are the Cure

    ADs and extreme T = vicious circle...T causes depression, ADs can make the T very much worse in extreme cases like mine and (@Telis )... I have been given like 8 different ones in the last 2 years. Some of that poison like effexor/venlafaxine gave me additional sounds and made everything louder...
  53. snow86

    What Has Tinnitus Taught You?

    Since my T is always worsening and multiplying
  54. snow86

    Andy Timmons

    Another one here...used to play electric gypsy (on guitar) back then when my ears could take it.
  55. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Yes, unfortunately I did this stupid "therapy". Big mistake. But thanks for the effort ;) https://www.tinnitustalk.com/threads/transcranial-stimulation-treatments-rtms-tdcs-tacs.326/page-3#post-142619
  56. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    :troll: There is no positive thing about having T. At least not when it comes to the extreme one, the one that will push you towards that death.
  57. snow86

    If Physical Diseases Were Treated Like Mental Illness

    This reminds me of all the tinnitus advice from people who don't have T. :troll:
  58. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Wait, what? You're high on trobalt while hunting with weapons ? :troll:
  59. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    What do you mean nobody? For example; I wrote several very detailed posts in this thread about my experience with Trobalt and extreme T but you werent even a member of this board back then.
  60. snow86

    Retigabine (Trobalt, Potiga) — General Discussion

    Well, I am "finished" too....As it happens I took 600MG yesterday before sleep too. Cause theres no way I could have fallen asleep. Had like 12 different sounds in orchestral volume. (deep drones, rotating machines, high pitched sounds) This is just f*cked up. Unbeliveable. I cant function...