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Have you thought of exosome injections into the ear? If you're in the US, this doctor will do them and also make house calls. I've received the exosomes but only as facial injections and intranasal. They don't help much for tinnitus but he has seen good improvement for some patients with...

I'm mot an expert in this area and I don't want to say anything that will influence anyone's decisions to take or not take certain medications. One thing you can take away from this is that you should never want to stimulate the 5HT2A receptor as it is implicated in cause or worsening of...

I'm only on 10 mg of Nortriptyline which is somewhat low - that helped the central pure tone "whistle" sounding tinnitus in the middle of my head but it did not seem to help the central "electrical" zzzz sound. But I am a low dose so I wouldn't say that's definitive answer on whether it helps...

Yes, it's more of a zzz electricity sound, not really a hum. When it starts to get lower on a medium day the "electrical stream" in the center of my head becomes less solid and starts to fizzle out.

Thanks for the info. I know it's easy to get hopeless but if it's gone in the past, there's no reason why it can't go again. Please do check back in with us soon and let us know how it's going. Also, you probably know this already, but even a switch over to another antidepressant can sometimes...

Mine somewhat started all at once but it fluctuates from being just in the ears to the head and the ears and alternates. Check out this related post, it might be helpful. My guess to all of this is that we all had some kind of "ear" tinnitus - noise induced or unknown and a recruitment takes...

Please let us know which antidepressant you switch to. I would highly advise against Celexa. If you're going to take an SSRI, Sertraline has been the one better tolerated for tinnitus from what I've read. I'm on a low dose of Nortriptyline (10 mg) but that has not helped the head buzzing...

The stem cells didn't do much for the tinnitus (perhaps for the reactivity a little bit) but it had small permanent improvements for hyperacusis every time I did it.

I had IV stem cells. I usually notice the improvement after about 2 weeks or so - but as mentioned, it's minimal.

I'm not really sure how those were produced but I think they are all generally produced the same way for the most part. I have a tiny improvement in my hyperacusis as I get each time I either do this or stem cells. Tinnitus is slightly better but that fluctuates on its own so I'm not really...

Sure, it's Dr. Ed Park from Recharge Biomedical. He doesn't claim to "cure" anything but he's always willing try different treatments and methods. I've known him for almost 10 years (before I even had tinnitus). He's in the US in Costa Mesa, California but he also sometimes travels to NY...

I just got exosome injections behind my ears for better access to the facial nerve branch. I get sharp pains in these nerves every now and and then for the past few years since my ears were damaged so I'm hoping it will help the tinnitus & hyperacusis. Nothing to report yet as I literally just...

Exactly what I have going on. The electrical is impossible to mask because it seems like it's already in the auditory cortex before the ears sounds (or external sounds, music, etc.) make their way there. It also has a very reactive quality to it and worsens hyperacusis on those days. This...

Hi @Lurius. I already had the electrical quality but I feel like it made is slightly worse. I can't say permanently or not because I feel like electrical quality has been unpredictably going up and down over periods of time. I also felt like an unstable teenager (I like how you put it that way)...

I have had similar results, mine was prescribed as well. I feel like the electrical quality tinnitus (brain) felt worse. That is basically the one I'm trying to treat. The tonal isn't that bad and can be more easily be masked. I wish there was something specific to help this particular type of...

COVID-19 Novavax vaccine is different from the others in that it is a "Protein Subunit Vaccine". So far the mRNA vaccines (Pfizer, Moderna) have been iffy at best and J&J (Vector) seems to be in the same boat. The purpose of this thread is discuss why these vaccines have been randomly causing...

I plan on dosing with 1200mg of NAC for at least a few days leading up to the vaccination. It might also lower anxiety if you know you're going in with some kind of protective measure.

25 mg once per day, I am already on 10 mg of Nortriptyline which causes blurriness so I couldn't go any higher with the Lyrica so I stopped after about a month - little improvement with hyperacusis but perhaps too small of a dose to impact the head buzzing.

I have tried Lyrica as well but only a small dose (then it made my vision blurry so I stopped) - what dosage are you on and have been further improvements with the brain sizzling?

Not sure if there is another thread on this, but these guys, "Otolith Labs", officially have a tinnitus trial. Here's the qualification link: https://otolithlabs.com/tinnitustelehealthstudy/

Well perhaps that means it will likely go away. If not, the study will probably be active for several months.

I just received this email today from [The Shore Lab] - I think the criteria looks more lenient and the trial has officially resumed. Dear Inquirant, Thank you for contacting us about the Shore Lab Tinnitus clinical trial. We are pleased to let you know that our study has resumed following...

I just wanted to repost the criteria info here because I want to emphasize that two of the points include the word "preferably". So they might be willing to accept participants who are close to these parameters but perhaps do not fit them exactly. Which also means you may not need to fit within...

Mine gets lower by pushing/tucking my jaw. The criteria change is insane and I'm approaching 4 years, this makes me lose some hope in this treatment for sure. Looking at it from a more positive perspective, I guess they did that because even though it might be able to help others with...

Sorry if I missed something here but are the current trials for FX-322 already using an enhanced delivery method different than the previous trial or is that something they plan on looking into in the future? I'm hoping to be accepted into the study in my area. I will know after they receive my...

Filled this out - thank you for well-written info.

@JasonP Hi Jason! That's an interesting connection. Unless I read incorrectly, the orotate should decrease the sensitivity of the norephenerine receptors which would have the opposite effect on POTS. I'm sure you've researched it more than I have though ;). I've been experiencing something...

I actually ended up losing the device which was a bummer. The Konftec laser is pretty close, around $800 if you want to save some money. I felt like the Wilden device was a little better. Overall, improvements were minimal and hard for me to track since I fluctuate so much.

Perhaps we should remind them of the billions of dollars that get paid out to military related disability for tinnitus each year that could potentially go towards their salary.

Hi Chris, can you let us know where to send the email for the FDA and also provide your template?

@Telis Please PM me - over time, I've read your posts and noticed we had a lot of similarities (I also have the sound reactivity when someone uses the letter "s"). I'm hoping maybe we can help each other. Take care.

Please keep us posted on if they are able to remove the white noise sound. I also get increased tinnitus from the same types of sounds.

You guys may have already seen this but I just received this notification from the university - perhaps a continuation of the previous study. I'm a bit behind on keeping up with this one so I apologize. Study of Bimodal Auditory-Somatosensory Tinnitus Device Ann Arbor, MI The purpose of...

I don't think it's that expensive, I just received a newsletter announcement from a local medical office office in San Diego - "Our first Spravato patients will be starting next week, and all 3 of them are paying less than $40 out of pocket per treatment." I read one of the side effects during...

I was hoping they might be opening the study up again sometime soon. But the design of a wearable device is definitely a step in the right direction.

Do anyone have a link to the correct study page?

Is there something very specific that happens when one is getting fitted for the device in regards to settings, etc.? Aside from it only being approved in the UK and having to purchase it in Ireland, what's the benefit, if any, of getting this device from an ENT?

Can someone point me to the URL of the actual study details? All I'm seeing is a completed one for safety... Thanks!

Sleep is the main modulator for me. If I have a low day and wake up super early, that low day can continue into the next. My theory is that if I wake up right after slow wave sleep (around 5am) I'm good to go – if I try and go back to sleep and start dozing, I find that the "early morning" sleep...

Once again, it really depends on how much take - that's the same with most OTC substances. Here are some VERY positive comments from Amazon: https://www.amazon.com/product-reviews/B000VHCU8M/ref=acr_dpproductdetail_text?ie=UTF8&showViewpoints=1

@JasonP 3-4 lithium orotates per day is A LOT. I have tried a lot things in the past with no success and didn't expect anything from the LO. I had taken a half pill as one of my first doses and noticed my mood had picked up considerably about 2 hours later and I realized that's why. I get where...

Thanks. For the next infusion, I was going to move up the dose a little. I will keep everyone informed of any changes.

My experience: I thought this was a logical approach for trial so I made my own trial out of it since their method was pretty basic. I decided to get infused at a local ketamine clinic. I was accepted to receive the infusion ($250). Because I might be sensitive due to prior experiences with...

This a weird drug in terms of mode of action, it's hard to figure out why it would impact tinnitus. Does it have something to do with circulation?

So far, it seems very promising and I think it's definitely worth trying even if it doesn't work for some people.

Isn't the equipment being used in this study is already out in the field so just the protocol would have to be mimicked? I sent the study details to a doctor who performs electrical stimulation and qEEG brain mapping and asked him if he was able to figure out what they're doing. I'll report back...

In regards to inner ear issues (myoclonus/TTTS) this paper was interesting in terms of diagnostics. https://www.ncbi.nlm.nih.gov/pubmed/24232057 @Tinniger We do have to do everything ourselves including seeking out the right kind of help. The only urgency that exists for this condition is our...

I think you will find this info helpful and perhaps you may have some guidance for me as well. I have several different sounds and as well as different symptoms but in regards to TTTS, I have hyperacusis and a couple of sounds which I know for sure are related which I would like to point out...

This is an old thread but I wanted to clarify here that Zyprexa is Olanzapine (an antipsychotic) not a benzo. It is available via injection but seems like a pretty aggressive treatment for a panic attack.

@Craig W - perhaps I am more qualified to provide a diagnosis than most ENTs or least I'm willing to try (which many of them are not)... The problem sounds very mechanical to me especially because it increases with chewing. Do you know if have TTTS - do you have ear spasms or a fluttering...

@Craig W You might have some mild hyperacusis but I'm certainly not diagnosing you as I obviously don't have the qualifications to do so. If noises like vents, fans, running water, crinkling of plastic bags, etc. bother you, then you might have H. Not to be confused with "Noise Induced Pain"...

@Craig W sorry to hear you’ve been suffering with this. My guess is that you have some form of hyperacusis if certain sounds that aren’t very loud are causing you to have spikes. My “electrical” sound goes hand in hand with hyperacusis. On the days where I don’t have that particular...

Women can also get an iron deficiency due to their periods.

Watching movies if the H isn't too bad

On my lower days, once every 3 days, I can somewhat ignore while I'm working by listening to low level music. On the loud days, unfortunately nothing seems to help except knowing that the day will be over. Using a fan or other noise on the loud days makes it worse (on those days the tinnitus is...

I also agree with 10 minute sessions. For me, it was the 30 min sessions that caused the ear pain. I'm seeing some improvements as well. Whether they are directly related to laser, I can not say for sure. The last time I saw some improvements with H, was several months ago with very short 5-10...

How long were you on it? 25mg 3x a day sounds very high for this medication - that's probably why your side effects were so bad. I would think 25-50mg max. My mother took Nortriptyline for around 7 months or so for fibro. She said she "felt weird" for a while, maybe for several weeks and that...

@Cheza I loved your section on cycling tinnitus which is exactly what I have. I also agree that someone with this type of tinnitus is a novel test subject since they can be ultimately tested against themselves. I have really been researching this in depth and I feel it seems to be linked with...

I thought I knew them all but Serax is probably the only benzo I haven't heard of until now. I'm glad you got it under control. It gets scary when we're barely used to a certain level and then things suddenly shoot up. Yes, the whistling noises can get pretty loud - especially in the morning...

I'm pretty sure the hissing is nerve related from all the cases I've read here. Seems also that many people with Hyperacusis have hissing which is most certainly linked to nerve related issues. I also think jaw issues (also nerve related) can create a hissing/buzzing sound as well just from what...