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I think the French petition performed better because it was spearheaded by a somewhat known figure, Frederic Derban. He is an actor from a former French soap opera: Sous le soleil (not real famous but famous enough I guess). But even then I have no idea of its impact. To the best of my knowledge...

They haven't tested in humans yet in terms of efficacy. They did the phase I safety test on healthy subjects so no indication on whether it works in humans as of now. The one month tinnitus test was done on mice models.

Thank you so much to everyone involved! That was an awesome interview to hear. It really highlights how much Hough Ear Institute cares about bringing an end to hearing disorders. I rewinded this part many times: "Phase 2 for the pill by 2020". I'll have to wait for the transcript to go full on...

I mean yeah, from the look of the votes people just go by the titles of the studies. I think the DMT one would never be as high if people saw it was only tested on mice. Thank you for the post, I began to do one like it but you beat me to it :ROFL:. I have more or less the same choices of...

I mean the Cochrane review on CBT is not a bad paper. It actually highlights the lack of proof and efficacy from the protocol. If people voted for it thinking like "we need more research on what the establishment think is a cure to debunk it" then why not. I don't know. There's no really good...

Sorry, the ATA is too busy posting videos about how life with tinnitus gets better and everything is good.

Not much but their blog gives a little bit more info: http://www.gatewaybiotechnology.com/blog/blog2/ Notably that they're working on refactoring anti-epileptic products for hearing loss. Here are two papers by Jianxin Bao, one of the CEOs, for you nerds :p...

Make it 5000 good people https://www.change.org/p/matthew-hancock-mp-commit-more-funding-to-tinnitus-research

Hi @Frédéric, I might have gotten ahead of myself saying I shared it. I am not part of this group anymore so I sent a PM to one of the moderators notifying them about the petition but apparently it wasn't shared afterwards in the group. Glad you did it then!

It hasn't been stated enough how awesome this report is. I finally read the whole thing and I am thoroughly impressed by the amount of work it must have taken. Top notch!

Again the petition hasn't been around for 5 days per se. Sure it was created around that time but the BTA only started to promote it yesterday, kicking off Tinnitus Week. Same thing on Tinnitus Talk, the hard promotion started yesterday. 1700 in one day isn't a bad number, far from it. These...

There were articles today in the Independent, the Times and the Daily Mail. Television-wise I don't know...

More than 800 signatures now. For a first day of mobilization on this I think it's actually quite good. Especially for tinnitus. It will only garner more attention during the week if we keep at it.

LMAO I hesitated to share this when I saw it. But if even @JohnAdams can put aside his differences with the BTA for a little while and sign, why can't you?

Donated!

500 signatures let's gooooooo to 1000 https://www.change.org/p/matthew-hancock-mp-commit-more-funding-to-tinnitus-research

I shared the petition on r/tinnitus and r/tinnitusresearch, on French tinnitus Facebook group and emailed it to the French tinnitus association (for whatever good it will bring :dunno:). 350 signatures at this time, keep sharing!

This pipeline is an older version, you can see here the one sent by @Frédéric is the newer one: https://www.decibeltx.com/pipeline/

https://www.hearingreview.com/hearing-products/hearing-aids/speech-noise/researchers-find-two-biomarkers-involved-in-speech-in-noise "A pair of biomarkers of brain function—one that represents “listening effort,” and another that measures ability to process rapid changes in frequencies—may help...

Again you may see that in the light you want. It's not all black and all white. Of course they're a business, at the end of the day they have to make money. That doesn't mean they don't care about the people they're trying to help. They're open to dialogue and to tinnitus advocacy, I don't quite...

I would love Lenire to be straightforward but guess it’s not. As someone who’s more neutral (in my opinion, like I do have an appointment pending so not that impartial I guess…) I’d like to give my two cents on the matter in order for this to help maybe some of you. The positive: First...

@Hazel & @Markku Hi there! I really don't want to add more on your plate as I know January was a busy month. But I like the monthly updates and wanted to know if you'll keep doing them? :)

My appointment is on the 14th of April, yay. Past me would be thrilled but I know a little better now... I guess I'm still theoretically someone who would best respond. The uncertainty of this condition is just the best... I applied in late October/beginning of November just in case people...

Otonomy Announces Multiple Presentations at Association for Research in Otolaryngology Annual Meeting They have a few presentations during this event: Joint presentation with AGTC related to the GJB2 gene therapy program: "Ex vivo assessment of AAV capsid variant tropism and safety in rat...

Yeah, I guess I have to start to differentiate. Tinnitus trials =/= Good news.

This is not directly linked to UNITI and as I understand it, has more to do with TINNET but as the research world of tinnitus is rather small, you kind of find the same people in both and I thought I could share this paper here: Tinnitus healthcare: a survey revealing extensive variation in...

"Resaphene Suisse AG, based in Roggwil, Switzerland, is a medical technology company that was founded in 2015 and has been selling a tinnitus therapy device under the name tinniwell since 2016." Yeah well I think that's all I need to know....

Resaphene Suisse AG: Charité Ethics Committee in Berlin Approves Study on Tinniwell Tinnitus Therapy The Charité's ethics committee has approved the double-blind study on the tinnitus therapy device tinniwell with Resaphene Suisse AG, ISIN CH0367465439, WKN A2JG91. A total of 60 people took...

Yeah, should have figured that one out :LOL: I see that they are part of COOPACOU, do you have to go through an ENT of their network? So that everyone can know: in France there are actually structures "specialized" in tinnitus or at least better equipped than your average ENT (though they...

Idk, in fact nobody knows. The talk is that they're processing the data before starting phase 2 but there's no news or statement about that. They could just as well not have pursued this further. People say that it could be Lenire 2 based on the fact that Hubert Lim (the head of study at the...

Any particular reason you go in France for this? I'm actually very intrigued as I live in Paris.

I might be wrong but because it's a "Class II" device it only needs two phases of test in clinical trials.

Time for the old lady conspiracy! Apart from that, are they following their patients long term to collect more data? Because that's the only explanation I have for her to be at the clinic right now if she got her tinnitus cured with the trial.

That's totally it yes. Just to add a little more for everyone: for measuring tinnitus, only THI and MML exist. Both are subjective measures of the tinnitus and right now there is no known way to distinguish between a tinnitus sufferer and a healthy person. You basically have to trust the word of...

Welp, bruxism. Hopefully work on that and the effect on tinnitus will show.

From this website : https://projectreporter.nih.gov/project_info_details.cfm?aid=9907138&icde=48273554 Abstract Text: Project Summary Tinnitus or “ringing in the ears” is a hearing disorder that disproportionately impacts those who are or have served in the military. There is currently no...

Kind of the opposite of that I think. Unless you consider @threefirefour the elite. From my outsider perspective, they never really excluded anyone. It's just a community that has developed its own functioning and humor. And I totally get that they don't want everyone to stay after the...

Auris Medical still kicking. Auris Medical Announces Notice of Allowance for European Patent Application Hamilton, Bermuda, January 10, 2020 – Auris Medical Holding Ltd. (NASDAQ: EARS), a clinical-stage company dedicated to developing therapeutics that address important unmet medical needs in...

Done and shared on the French Facebook group

Yeah I figured you did, it was more a collective you :LOL: Yeah it was my initial thought but in the history of the Cochrane paper they published the protocol to assess the effect of CBT back in 2017. So the study was kind of in parallell to the European guideline. Just... weird, but a...

It's just so weird to find three of the same actors strongly recommending CBT in the European guidelines for tinnitus and then saying the effects of CBT on tinnitus are sparse in this study. (I recommend you to read the European guidelines though, I think it's quite a good paper minus the part...

Gotta ask the same question that always pops up :LOL: : When did you register? FYI people, I asked Neuromod in December when I could get an appointment with an October registration. This was their response: "We are currently working through the waiting list and sending out 2020 in batches. As...

Phase I completed in 2015... Man that sucks to read everytime.

(hope this hasn't been posted before, don't have the courage to skim through all of these pages)

Dug a little to find the supplements they used, it's one tablet of this one : https://www.lambertshealthcare.co.uk/multiple-formulas/multis-for-the-over-50s/multimax/ once a day. And one tablet containing 300 mg A-lipoic acid per tablet twice a day. Might give it a try as the results of the...

I might be wrong but as long as we don't have access to the results of the clinical trials, this is something we don't really know. When asked about it in the podcast, Ross mentions the fluctuations in loudness (not permanent) that everyone reports as well as headaches in some patients...

Sensorion announces €5.6m non-dilutive funding to support SENS-401 Phase 2 study in Sudden Sensorineural Hearing Loss French ministry of armed forces to participate in the study https://www.sensorion-pharma.com/images/press-release/20191223-PR-SENS401-PATRIOT-PSPC.pdf Good news I guess even if...

Okay but whatever happened to Minnesota though

Wow that's amazing. Thank you!

Sorry, sometimes keeping track of everything here is hard. Which trial are you referring to? Audion/Regain?

Hello, I have some bits of info about this and specifically on Zeta Technologies. So basically, the founder of Zeta Technologies, Robin Guillard is kind of active on the French Facebook tinnitus group. This enabled me to know more about the study. I will try to translate with the best of my...

Yes, Sensorion was a start-up here too. I don't know how it works on clinicaltrials.gov but the study isn't up to date and is completed. They didn't publish the results as of yet but Zeta Technologies did a presentation about it in September. I think I will post more about it in your thread...

https://fora.ie/neuromod-ross-oneill-tinnitus-4929648-Dec2019/ Nothing particularly new here but it's a good write-up of everything that has been going on this year for Neuromod.