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The treatment in this study involved more hours per day, over a longer period of time. It makes me wonder if the same will be true for the Susan Shore device.

Thank you for your response. I’m still wondering why this study isn’t getting more attention. I don’t quite understand the concept of residual inhibition, although I can look up the term to read the definition. You mentioned a “narrow group of patients”—does this mean the treatment wouldn’t work...

Can someone sort of “dumb this down” for me? Aren’t these results really impressive?

Correct.

Erika, about 15 months ago, I was considering a “tympanic neurectomy” for ear pain. As a diagnostic procedure, Lidocaine was injected into my ear canal. The diagnostic procedure made my tinnitus, hyperacusis, and ear pain worse. There are a number of people who have had this done. It is my...

With all the kindness and respect I can express in this message, there is no reason for any sort of negative speculation on Tinnitus Talk. Please keep it to yourself. You have no idea what the treatment outcome will be if 1.) used longer than a half hour per day 2.) used longer than 6 weeks...

To be clear, I’m not trying to argue. Can you point me to the reports of resolution of hyperacusis, noxacusis, etc, as an outcome of the surgery? I’d like to read about them.

I’m sorry. I meant to write that there are two DBS trials. My mistake.

There are actually two trials happening for Neuralink...

How long should it take for a non-invasive device?

I meant “available to us.” Both doctors have ongoing trials at present. Of course, that is speculation on my part.

There are two doctors working on slightly different approaches to this. Sounds to me like they are 3-6 years away. Dr. Carlson is at Mayo Minnesota and Dr. Djalilian is at UC Irvine. There is a separate thread on this subject on Tinnitus Talk.

@Watasha, I just want to go on record as saying I agree with you. I believe the electrical stimulation is the answer to our problems.

Yes, that must be the article I was thinking of.

What is the “tinnitus questionnaire”? I am familiar with TFI and THI. Is this something different? Dr. Steven Cheung has done research in this field. He seems to be working on some sort of non-invasive stimulation. But I am not clear exactly what he is doing. Does anyone know what he is doing?

Stock price movement seems to be about acquisition of a drink to lower blood alcohol content...

Just remember, if someone takes a drug and it causes tinnitus, the likelihood of them going to the trouble of reporting the outcome to the FDA (or other appropriate party) is low. Not sure how low, but certainly low.

I applaud what Dr. Shore and her team are accomplishing. Question - the TFI and dB reduction seem highly correlated. But there seems to not be high correlation with the THI results. Can anyone offer an explanation for this?

Did you get the cochlear implant for hearing loss or tinnitus, or both? Did you have hyperacusis? Are you glad you got the implant?

i am glad that you have had improvement. How would you rate your tinnitus before this treatment? Do you have hyperacusis?

I don’t understand how this device is “implanted” or “powered”? Can some explain?

Why is this post not getting more attention? Is it because of no “double-blind crossover”? Results, if real, seem substantial to me.

She calls them Phonak Bi-Cross hearing aids.

It is interesting to me, that in the Hearing Aids thread, @Quiet please talks about significant relief from hearing aids which transmit the sound from one ear to the other ear. She says she got this relief after years of no relief from normal hearing aids. (Her posts start on page 24 of that...

Can someone explain the difference between "primary completion date" and "study completion date"?

For those with access to this paper - does it overtly say that there was no reduction in tinnitus volume, or rather is it that the tinnitus volume was not measured?

@AfroSnowman, this is a great point. i appreciate posts which offer hope. For all we know, the slope could continue to zero tinnitus. Thank you.

So I offer this as a more of a question than an assertion. Wouldn't Dr. Shore's numbers make sense (15-20 pt TFI reduction, 12 dB sound reduction) if the average participant had a TFI which was, say, in the 30s? I believe I read somewhere that the "average" dB of tinnitus is 20 dB. So, if...

What is the status of this trial? Is Dr. Newman retired? Is another doctor going to publish results?

This sounds fantastic, but aren’t they saying the next trial is going into 2026?

This makes sense to me in so many ways. I think of the ear/hearing as the surface of a drum. When the tautness of the drum surface is messed up, there are symptoms galore. Can someone post the full paper?

I don’t see Pipeline Therapeutics listed as a presenter at the June 21/22 conference. Am I missing something here?

Can someone explain why it takes months and even years to publish research results?

Tau, thank you for your posts. Before your treatment you said you had hyperacusis. Would you describe it as “loudness hyperacusis” or “pain hyperacusis”? After your treatment, you said your “sensitivity” was improved. Are you using the term “sensitivity” to mean the same thing as “hyperacusis”...

I am bothered by my tinnitus quite a bit. I would seriously consider the DBS if I was convinced that it I would likely help me.

But my question again is as follows - you know someone in the trial. My impression is that the person you know responded well to the treatment. Yet, the trial page says they are not yet recruiting, which would lead me to conclude the actual trial has not yet begun. Am I missing something here?

Ela, forgive me but I am confused. You share that you know someone in the trial, but when I click on the trial link, it says that the trial is not yet recruiting participants?

I watched it and would summarize as follows: 1. The first half was like tinnitus 101. Discussion of causes, TRT, CBT, etc. 2. Then the professor discussed his research. I would characterize what he said as follows - he has had issues with his RL-81 in terms of what I think he called toxicity...

Is this something to get excited about? I realize her study is not highly sophisticated or peer reviewed. s this just a glorified TRT? Has anyone visited this clinic?

Otonomy is up 10% today at more than twice the normal volume?

@ploughna, thank you for your posts. Do I understand correctly that this doctor will prescribe Oxytocin treatment outside the trial?

@Sentinel, thank you for your posts. They are encouraging. Did the trial administrator just ask you how long you have had tinnitus?

Lukee, can you share more about what you know about the outcomes of this treatment? Any more you can share about the results? How invasive is it? I previously had a phone appointment with Dr. Djalilian and found him to be a very smart guy.

Why in the world is the FREQ stock up 14% today?

Hang in there. I will say a prayer for you. I will pray that happy days (and quiet) are in your future.

Grate_biff, how are you doing?

Not trying to be argumentative, but I think that Otonomy has never indicated the treatment is for acute cases only. Rather, cases of short to medium term duration were part of the trial inclusion criteria, which caused people to “assume” the treatment is for “acute” only. Someone please...

You need to find a neurologist/neurosurgeon who treats trigeminal neuralgia. Better yet, you need to find one who treats atypical trigeminal neuralgia. There are a lot more of the former than the latter. They are going to want you to get an MRI. Then you need to find a lower noise MRI...

Read about geniculate neuralgia. I am certainly not an expert. I do know that most doctors know little to nothing about it.

2021 is great news.

TomBradyGoat, did you ever have the surgery for nerve compression? If so, how did it go?

For those of you who have brought the Lenire device back to the United States, is there any issue with charging the device in our typical 120V outlet? Do you just buy the typical converter plug? Thanks for your help.

Sorry if this is a dumb question, what is ME?

I am perplexed as to why we are not seeing "user reports" or "user reviews" from those using Lenire. Has someone asked these people to presently refrain from reporting their experiences?

@Shoutout, I will swap with you if Neuromod is agreeable. I have attempted to PM you. Not sure if I did it correctly. My appointment is in October.

Healthy hair cells = no hyperausis. Damaged hair cells = hyperacusis and tinnitus. Regrown hair cells = less hyperacusis and tinnitus.

What does it mean when they say “available for clinical use”?

@linearb, did you participate in the University of Michigan trial (the first one)? If so, what was your experience?

Thank you for responding. Please continue the updates. Very best wishes.

John Adams, thank you for your reports. I admire your tenacity. I have a couple of questions if you might be kind enough to reply. Are you suggesting your tinnitus is 1% of what it was previously? Also, I see you say you have slight hyperacusis. Was your hyperacusis slight before the treatment...