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  1. suze

    Anyone Tried Mirapex (Pramiprexole)?

    Hi Tigo, did it help?
  2. suze

    Tinnitus Anxiety and Lymph Nodes?

    Hi Bramblewood. I have ringing pulsitile tinnitus with hard nodes down my neck, anterior and posterior, with a few next to my cervical spine. I noticed them shortly after my T started pulsating 3 years ago. I suspect they may be interfering with lymph drainage or blood flow. Unfortunately, no...
  3. suze

    Somatic Tinnitus — Chiropractic Success (Initial Report)

    I have a friend who told me she found complete relief after chiropractic care. She had upper cervical spine adjustments for C-0 through C-3. It's been on my mind for a while to give it a try, but they scare me a bit. I know my C-3 is hurting, clicking and cracking. Please keep us updated and...
  4. suze

    A Good Pulsatile Tinnitus Paper to Bring to Specialists: Imaging and Differential Diagnosis

    Very nice! Fantastic find, thank you for the link. Please post if you find more. :)
  5. suze

    Put a Spotlight on Tinnitus Research

    Why do we have to register with Frontiers? The login is difficult and asks too many personal ID questions for me to be comfortable registering. Any feedback on this?
  6. suze

    Neuroscientists Identify Brain Mechanism Responsible for Tinnitus, Chronic Pain

    re Dopamine question posed by deathbymigrain: Try researching Mirapex for restless legs, it is supposed to increase Dopamine. There are anecdotal reports of T relief.
  7. suze

    Tinnitus and Anxiety Do Not Always Co-Exist — Study

    ..."other behavioral assessments may be needed"... Behavioral? That's insulting. Physical brain patterns should be looked at. See the article posted by Jer "Brain regions responsible for Tinnitus".
  8. suze

    Tinnitus Grading...?

    If T can be seen on fMRI and MEG, can't it also be measured? Definitely it is the loudness of my T that influences my coping ability, not psych crap.
  9. suze

    Vinpocetine — An Honest Opinion

    There is a really good research site called examine.com. where you will find recent research about Vincopectine. It seems to increase blood flow to the brain. For this reason it has been used post-stroke and for certain types of headaches. There are some preliminary tinnitus studies.
  10. suze

    Intermittent Fasting for Tinnitus Relief

    I believe the fast mimicking diet has the best science for neuroregeneration. Google: Valter Longo or fast mimicking diet. 72 hours of reduced calories showed nerve regeneration using damage from MS as a model.
  11. suze

    Studies Confirm Tinnitus Improves Over Time

    Waste of research time and effort if you ask me. My coping ability, my "depression", my irritation, my loss of concentration, are mine to deal or not deal with. I can change my reaction but my T does not change. Research dollars would be better spent on some real science that might actually...
  12. suze

    Do You Have Tinnitus When You Are Asleep?

    Tinnitus can be seen with real time imaging. They first saw it while treating a man with Parkinsons. I would think this question would be answered by scanning an asleep T sufferer........ I wish someone would do that.
  13. suze

    Lipoflavonoid for Tinnitus? Helps or Not?

    Tried it....didn't help. Don't waste your money.
  14. suze

    So My Doctor Thinks I Have Endolymphatic Hydrops...

    Oooops, you're right. I receive numerous medical articals in my email from JAMA, Medscape, Up to Date etc. Jotted down references in a hurry this morning to follow up on later....must have mixed them up. Don't have time now but will try to find the references for you when I can. Sorry for the...
  15. suze

    So My Doctor Thinks I Have Endolymphatic Hydrops...

    The NEW studies on Tinnitus and Hydrops are just coming out! (See recent Medscape info on Dr Connor Liston, Nature Magazine Dec 5 2016). Endolymph will increase with salt in your diet, it has linked to Tinnitus for decades but with fMRI NOW THEY CAN SEE IF YOU HAVE A BUILD UP! This is new and...
  16. suze

    Cause of Phantom Limb Pain in Amputees, and Potential Treatment, Identified

    Years ago we started flooding fresh amputations with local pain meds to stop phantom pain. I'm not sure how effective it was because I only worked with inpatients. Nerve cells learn pain and some don't shut off ... they will fire in a petri dish for no reason other than they were taught to fire...
  17. suze

    Magnesium

    Magnesium is frequently given IV for cardiac arrythmias and to alcoholics to prevent seizures.
  18. suze

    The Lymphatic System and Tinnitus

    Calin: The GLYMPHATIC system drains and clears waste from your brain during sleep....INCLUDING GLUTAMATE! This is well researched and new information. Personally, I believe this is key in pulsitile T. Astrocytes (a form of glial cell) also control fluid build up which might be why we get...
  19. suze

    It's a RED FLAG Symptom... WHY Will No One Listen?

    Well..........welcome to the wonderful world of Tinnitus. Sorry to hear what you are going through. At least you are in good company here on Tinnitus Talk.... :) A carotid bruit will sound kind of hollow, like wshh wshh instead of thump thump. Happy Birthday and I wish you many...
  20. suze

    Intermittent Fasting for Tinnitus Relief

    The point is to put stress on your body. The research studying multiple sclerosis on the Fast Mimicking Diet shows neurogenesis on day 3. The FMD diet restricts calories, isn't actually fasting. You can read the science by googling 5:2 diet or fast mimicking diet, also Kamal at examine.com or...
  21. suze

    Been Through the Worst

    Feel grateful for that shower time. It used to be like that for me and many others, now nothing ever diminishes it. I should have cherished my no-T shower time more than I did.
  22. suze

    The Cure for Me and Hopefully for You!

    I have pulsatile and continuous T in different tones. Tried cranial-sacral therapy with a trained physical therapist and cranial osteopathy at an OMT clinic. Neither helped at all.
  23. suze

    Anyone Tried Mirapex (Pramiprexole)?

    I have seen some older posts and research success involving Mirapex and Tinnitus, but not much follow up. Does anyone have any new information. Have you tried it?
  24. suze

    Poll: When Do You Hear Your Tinnitus?

    I would like to know what % of responders picked all of the situations. How many would pick the "I always hear it" box?
  25. suze

    Who or What Do You Blame for Your Hearing Loss, Tinnitus, or Other Challenging Thing?

    My Rhumatologist for putting me on Plaquinel then upping the dose without knowing that after increasing the dose you are supposed to titrate back down! She says Plaquinel, a quinine drug, cannot cause tinnitus.
  26. suze

    How Loud of a Noise Does It Take to Mask Your Tinnitus?

    Spent an hour at a large casino today on the slots. Lots of pitches and tones all around..... Still the T rang right on through it all. It seems to come from my head, not my ears. It feels like it buzzes as it rings with my heartbeat. Maybe the difference is that my T is probably from a Sjogens...
  27. suze

    Health Tools to Recover Faster from Tinnitus

    I recently read research by Valter Longo at USC that showed neurogenesis on day three of his 'fast mimicking diet'. MS patients improved. I don't know how to post a link, but the science is solid. Google fmd diet or Valter Longo.
  28. suze

    Concentration Problems?

    TEL: In retrospect I can see how negative my previous post was. Please don't despair. In many cases of pulsitile tinnitus the medical cause is found. Sometimes it just goes away on its own. If neither of these happens for you, take heart and remember what Karen has said, she seems very wise. ♡
  29. suze

    Concentration Problems?

    Yes! Terrible concentration problems since it started. Found myself on a 12 hour shift with two critically ill patients. I NEVER had problems calculating and keeping all my drips in my memory before. Scared me to think.....only one tiny miscalculation and I could kill someone... Had a massive...
  30. suze

    Intermittent Fasting for Tinnitus Relief

    According to the anti aging researchers at USC, neurogenesis in the brain is found ON DAY THREE of the 'fast mimicking diet'.....at least in mouse brains. They are studying humans now. Google 'Valter Longo' or 'fast mimicking diet'.
  31. suze

    Nerve Block for Tinnitus Relief

    GABA can be increased by meditation. That's been one of the mainstays of panic disorder treatments for two decades (Claire Weekes, Herbert Benson, Pelletier (sp?)). If increased GABA helps or quieting the nerves helps, wouldn't monks be T free? They call meditation induced T dibba-sota. I...
  32. suze

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    Back to the original TPP theory: chronic alcoholics are always thiamine deficient. They always get a "banana bag" of B vites high in thiamin on admission to prevent withdrawl seizures. I would think they would have T.
  33. suze

    PQQ (Pyrroloquinoline quinone) and Neurogenesis

    Some otoxic drugs decrease glutathione, which is neuroprotective (thats the mechanism behind Tylenol causing T). DebinAustralia is right...cysteine is needed for us to produce glutathione, you can't just supplement with it. 'Everyloop'; PQQ isn't depleting glutathione, it is USED by PQQ for...
  34. suze

    Lumbar Puncture Has Stopped My Pulsatile Tinnitus

    Pretty common to have pulsitile tinnitus from elevated ICP. Usually happens in overweight females (no reference to your personal situation intended). Did you have your shunt yet? Which test found the fluid? Wishing you the best of luck ♡.
  35. suze

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    Don't know if this would relate chemically, but I have taken care of many patients with lactic acidosis. Of course most of those were septic, not simply making ATP anaerobically. None complained of tinnitus. However.....it is interesting that Fibromyalgia and chronic fatigue syndromes are...
  36. suze

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    Azariah; I have been following this thread of yours.....(have had some questions about the Krebs cycle and lactic acid involvement also). Have you looked at information online about the glymphatic system? The thought is that astrocytes (glial cells) pull back or shrink during NREM delta sleep...
  37. suze

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    My pulsitile Tinnitus also started at the dentist. I have had neck problems from many years of bending over my patients as a cardiac RN. My T also becomes louder when pressing on the temples and quiets when pressing on the back of my head. The only time I don't hear my heartbeat is when it...
  38. suze

    Announcement Tinnitus Neuromodulator Sound Generator — myNoise.net Collaboration

    Disappointed in this. Maybe it only works for softer T? I hear RING RING RING RING RING.......with undertones.
  39. suze

    Gamma-Aminobutyric Acid-Benzodiazepine-Chloride Receptor (GABA/BZ/Cl)

    GABA is deficient in people with chronic stress. Tinnitus causes stress. Mind-body stuff increases GABA. This has been known for decades. In all probability the horse (Tinnitus stress on the limbic system) preceeds the cart (low GABA), not the other way around.
  40. suze

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    I get a few seconds of silence after pushing on the side of my head. First it screams, then it's quiet......then it comes right back. :(
  41. suze

    Can Patient Data Be the Best Tool for Tinnitus Researchers?

    Nice post. Path Finder posted an article questioning the direction of present research. The term it used was barking up the wrong tree. I agree. If something worked, it would be working for us. Joining the dots is a wonderful idea. Maybe it will lead us to the right tree. LOL Reminds me of Dr...
  42. suze

    Awareness Idea for Patient Research: Join the Dots

    I like your question (hypothesis) and the way you phrased it. Because outcomes need to be measurable maybe add something like 'as measured by pre and post Tinnitus Handicap Inventory score change of > 7 ?
  43. suze

    Awareness Idea for Patient Research: Join the Dots

    Back to the dots.......It would be hard to bring together group data. Easier yet, would be to individually use the Tinnitus Handicap Inventory. It is accepted by reseachers and easy to score (see Florian Zeman, a statstics and probability expert or a simple example in the 'ArchesTinnitusFormula'...
  44. suze

    Awareness Idea for Patient Research: Join the Dots

    Sounds to me like some basic research and satistics tactics would be helpful here. ie start with: a hypothesis, a method, a way to collect data, a way to analyze the data, start and end dates etc...otherwise it's all anecdotal. I would like to participate if it comes together. Seems like you...
  45. suze

    Music Composition for Masking Tinnitus?

    As a composer you might be interested in a new tinnitus theory suggesting that instead of masking (which doesn't work for me, my tinnitus is very loud) the tinnitus range should be deleted from music you are listening to. It's the opposite of habituation theory. Check it out. Google Dan Polley...