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Hi! I think I have used too much B6 vitamin and a search took me to your post in 2020. I just wanted to know what you took to get rid of it from your body and if you managed to get rid of your tinnitus. Also, what was your tinnitus like? Was it very bassy? Thank you

This is exactly it. I've had tinnitus for 17 years now, and exactly like you said: - first year: nightmare. - second year: let's see how I can live my life with this. - 3-10 years: it's ok but I'd be happy to live without it. - 10 years: new tinnitus on top of the exiting ones, some new...

Hi everyone, I'm having a stuffed ear this week, along with feeling dizzy etc. which makes me think a lot. My tinnitus started at the age of 19, it's been 16 years now. For 16 years I've been regularly wondering why me and not my friends who went through the exact same life adventure, if not...

I can't wait for that moment when people will figure out FX-322 is efficient at restoring frequencies above 8 kHz and no ENT in the world will find that relevant as frequencies above 8 kHz are considered useless or pretty much "meh, who cares?". Some marketing work will have to be done, A LOT...

Hi, I know your post is 1 year old but just to say it's better to have a high pitched tinnitus than a low one. I have both and by far the one that is the worse to deal with is the "full" one. It seems "physical". Plus, you never know if the sound comes from your environment or from your head...

Hi everyone, I am interested in feedback about Wellbutrin (Bupropion) as it is a different AD from all others, specifically targeting anxiousness and not depression. Actually I don't seem to be depressed, only stressed/anxious which I try to manage using different natural methods. But I also...

Hi everyone, 80+ pages, I confess I only read the first one and this last one. Have you spent 80 pages to decide if this is a scam? Or did you find some success for some of « us »? :) I agree it’s hard to perform a scam with free stuff hence my post here... (Unless he’s working for Koss...

I went a few times in night clubs between 16 and 19, it was hell to me I was socially forced to do so. Every time I got out of a night club I had tinnitus but it would leave my head after a good night of sleep. Until it didn’t (and I’m here today 15 years later). So it took certainly a few...

I'm 35.

My hearing is great from 1 Hz to 10,000 Hz. Above 11,500 Hz I can't hear anything. Cause: concert at 19-year-old.

Agreed with FGG. We have nothing to win except short-lived happiness. Let's wait for official statements in March. It's only a season away :)

The point about FX-322 and others is they can heal some parts of your body and therefore reduce your tinnitus but to me those chemical approaches are only here to mask your symptoms. I guess many of us will be very happy to mask their tinnitus but to me the point is to find how to heal the...

Oh... well! :( So now do we have another ongoing trial targeting synapses? :D What an adventure :ROFL:

I guess one important point will be the ENT's ability to inject the liquid as far as possible too. Not sure if it's as simple as injecting the liquid right behind the eardrum or if it's way more technical.

Trust me, you are stronger than you think. I was 19 when my life changed, I'm now 35. I can still remember my 20th birthday with the family. In my country we have an idiom "we're not 20 everyday" as if we should enjoy life before it's too late. Now when I hear "we're not 20 everyday" I always...

If two shots are improving tinnitus, I'm in for as many shots as needed to restore my ear cells. The question is "if 4 shots are safe, are 10 safe as well?". We may never know until one tries...

I may be missing something; why would recruitment be easier for Phase 3? By the way would there be any Phase 4 to expect?

Thanks for the link, interesting abstract read. Stress is definitely something to consider as we know how far our sympathetic nerve system can go when it comes to inflammation process (immune system at the front called by TNF cytokines, etc. that same TNF we try to fight in many auto immune...

The Phase 2a day-90 readout will assess all efficacy and safety endpoints following single or multiple doses of FX-322, or placebo. I was looking for the end of Phase 2a since I couldn't find it in the last pages. So just in case, sharing it here again: summer 2021 at best. Will Phase 3 last...

Yes, there's something related to inflammation behind the tinnitus process. Ear is hurt and some inflammation occurs to deal with damages just like in any wound. The point is that at some point the inflammation must leave. Some people use curcumin, others anti-TNF, etc. For most of them it...

The point is I read so many publications and each of them often say the opposite while demonstrating scientifically... I don’t trust isolated publications anymore. Just like the scientific community, unless it’s published in Nature magazine one thing needs to be supported by several studies and...

I agree with you, I should have said "poor" evidence instead. Of course I wish it works and I agree there is a possibility for that. I meant I read many people here who look to be so sure despite the fact it’s still unsure to me, just a possibility, that I don’t know what is going to happen to...

No one knows. Many people around here tend to think so though (with no scientific evidence).

I'm going for Etanercept on prescription. It may be Humira instead... it will depend on my doctor's advice but in the end it shares the same goal. It's pending my blood test results, it has to be clean before starting an immunosuppressive drug.

Well, while reading LOTS of publications about our immune system related to chronic inflammation, I noticed we have developed some very "high tech" meds like anti-TNF alpha antibodies for example, but there are also plants we discover have anti-TNF alpha properties... So it makes sense that some...

Yes, it's around 7 years depending on the country but... most of patients do give up before and some will live their whole life with the wrong treatment. Because most doctors will treat you for fatigue, local pain, anxiety etc. one by one and no one will ever think all those symptoms are part of...

Chronic inflammation is an auto immune disease if not fed by a virus or a bacteria. Do you need more than this? I guess if the members of this forum did an immunoanalysis of their blood, it would be very interesting. That's what I did, this is a based on facts, this is science. My pro...

Well I'm starting anti TNF alpha aka Etanercept very soon. My doctor wants me to try Humira (a competitor) before maybe but I may suggest the one I wish to try first. Also, Artemisia Annua (a plant) is known for its anti TNF alpha properties. You may want to try. It takes up to 6 weeks before...

Hi, can anyone see me? I'm posting but my post from yesterday has disappeared. Humira, Remicade are the most common anti TNF alpha, but there are plenty of others. Patients have to try many of the before finding the right one for them. When you're done with anti TNF and none of them have worked...

Hi everyone, I have had tinnitus “in” both ears for around 15 years now, it’s constant, never left me, around 9 kHz with a unilateral one at around 2 kHz as well in the right ear, acting more like some morse code. For many years I read the research papers/forums/publications. Most research...

Hi Justin, thanks for the excellent communication with all the members here. I was being curious: do you plan to test it on yourself anytime soon? Or maybe have you already done that? I'm not sure if the pill is still under improvement or if it's just being tested on trial common phases.

"Breakthrough Therapy status"? What do you mean? What is fast track doing anyway? Having shorter test periods? Skipping some phases? Not sure if skipping phases is a good thing honestly. I'm dealing with tinnitus for years and years, I can wait for one more year if they make sure it works...

OTO413 + FX-322 are supposed to come out with results by the end of the year. 2020 is quite something at the moment... let's hope it finishes with good news.

I’m reading a lot of information on this board... Can anyone remind me when to expect the next announcement related to results? I think I remember next September is supposed to be the end of the current testing phase isn’t it?

Well if it's a one-time cure, I guess most of us are ready to spend $10,000 or maybe even more to get rid of tinnitus for the rest of our lives. We buy $400,000 houses, we could spend 10% of that to get rid of what may represent the greatest pain point in our lives. And companies know that very...

Phase 2a is supposed to end next September. Any idea about Phase 2b?

Alright, I'm keeping hope then :)

So at this point we still don't know if the cure we're looking for is the one healing the inner ear, the nerve or the brain. The bet in this thread is that healing the inner ear with FX-322 will imply a healing of all the rest while reactivating the nerve and brain controls. It is still a bet...

Slide 31 is basically saying only 10 dB improvement at 8000 Hz on 27% of patients? Isn't it very bad news? If I read the slide correctly then our last hope is that a higher dose has a better effect...

"Funny" because it's the opposite for me: Playing white noise for minutes, hours or a full night is fine, but when I'm stopping the white noise and switch to room silence, I feel like my tinnitus explodes.

Staff and doctors have bills to pay, they don’t work for free, especially when it takes years.

Lol, I was 20 when tinnitus started after a night in a club. I was like you with imagination about the year 2020 and cars flying. The reality is that I’m 34 today and we’re in 2020, research did not find anything in 15 years... (and cars are still not flying). I read about promising treatments...

Will be interesting to know if your device was working fine. I’ll stay tuned around here for some time :)

When I say 1 kHz, it’s « around » but can be a larger range. I guess we may hear the same thing. And no I don’t think I have a jaw issue. No pain, no sound from it. I truly think the nerve being squashed in by muscles or vessels is a great possibility as when yawning or stretching you...

I was taking Oligosol (liquid state), it's "over the counter".

Hi, I have had tinnitus for around 15 years now and it's all been about constant pure tone very high pitch. For 2-3 years now I have experienced another, very different, tinnitus which by reading this forum seems to be pulsatile tinnitus / somatic tinnitus. It's by far more difficult to...

Hi, just to share my 2 cents while I was checking this section for the first time. I have tried lithium too and trust me I tried many many things like gaba, theanine, and dozens of other stuffs, well, lithium seemed to lower my tinnitus for real. I’ll have to try again to make sure it wasn’t a...

I'm coming to this thread every ~6 months and I'm amazed when I see posts here nearly everyday whereas Frequency Therapeutics may only publish some info twice a year.

Hi, interesting reading from you. First time I read about that glutamate storm. And how would that storm induce something permanent? I haven’t read a lot about those two OTO drugs. I may give Curcumin a try with a few grams per day but I have tested so many things over the years... Curcumin...

Is there an easy way to know our amount of TNF in the blood or in the brain? It would be interesting to compare our levels with “regular” people.

Yes, first half of 2019 = this summer. And these results won't be thaaaat interesting. The ones we are all waiting for will be the ones which the current phase will allow if it's successful. So we can come again on this thread in 2020 :sorry:

Hi Lane :) Oops my bad, it’s 200ug (micro) and not nano. It is said to be 133% of reference intakes... so I’m a bit surprise you talk about milligrams as high as 12.5! Are we talking about the same thing? Here are the pills I’m talking about...

Depends on what fullness means... large debate. I have it too. Could be a temporary hearing loss (weird), could be your skull/neck muscles, could be your sinus... could be a lot of things. I'm still trying to fix that (gives me dizziness feeling too) without trying to fix tinnitus.

Well well well... 2018 has brought its share of hope, let's pray for 2019 to bring us results :)

Hi Lane, did you try iodine supplement? Actually, my thyroid seems fine as TSH, T3 and T4 are ok. We noticed my iodine level was a bit low so what you are saying is kind of ringing a bell... I just bought some iodine (200 nanog pills), it doesn't cost much and who knows, maybe I'll notice...

Thanks for all the information. I have an MRI planned for early 2019 to check my neck but I don't expect much from this. I have multiple thyroid nodules also but the whole world I've met about this told me there's nothing to worry about and my symptoms CAN'T be from this when it comes to...

Well, I did some search in France and it seems there's nothing like in the NL. HOWEVER, I have been told destroying nerves from the spinal column is a common thing and we can find specialists who do that rather easily in hospitals, especially when it comes to sciatic and very common stuff like...

Ouch, just had an answer from the clinic: "Unfortunately we wont be able to help you in our clinic, simply because you don’t have a dutch insurance." :( Well, too bad since I'm ready to pay for the surgery with my own money... I'm wondering if there can be another way.

Hi RicoS, I had read your thread a while ago and now I think your help is more than needed for me :) I explain: I have tinnitus for 13 years (well, actually 14 years in a few weeks... ahem, time goes by...). I was ok with it after a few years, although I wish I had it removed one day. Then 2...

I haven't said every one wouldn't. I'm trying to explain some people (and maybe most of them) wouldn't and why. Don't get offended that's not my intention. I guess from dozens/hundreds of people we can indeed expect a few feedbacks :) Maybe during next phase. And you're right. I've always...