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Has anyone had steroids help with hyperacusis spikes and/or have them reduce the pain and sensitivity? I'm literally in pain from every single noise. My hyperacusis has worsened severely over the past two weeks. I don't even know how I could get to the hospital without even further destroying...

I had digestive issues and GERD for 5 years - really badly for a year. Then Neomycin gave me tinnitus and hyperacusis that have just gotten progressively worse over the past 6 months from both noise and taking practically any medication. I went from just not being able to stand loud restaurants...

I'm more interested in applying to be a part of this study... I have a great audiogram but horrific hyperacusis along with significant tinnitus, and definitely have the speech in noise and music distortion issues. This could be a total cure for me. I wrote in on their contact us page but if...

I'm sorry I did a little browsing but didn't really see anything clearly laid out, if I'm on a relative budget but want to try LLLT for my hyperacusis, what sort of device would I look to get and what's the standard protocol for usage?

All this talk of hyperacusis pain being tied to the trigeminal nerve, has anyone tried carbamazepine? I'm assuming it's super effective for the "vascular compression" kind of pain but not this. I don't know about anyone else but it is SUPER clear to me the link this lingering pain has to TTTS...

I used earplugs AND earmuffs. I've taken one dose of Gabapentin before, spiked my tinnitus with a new hissing tone. I'm thinking more that it was ototoxicity from the medications (particularly Lyrica, like Gabapentin it's actually a pretty harsh medication). Steroids are effective for that too...

My sound tolerance was very low (spending a minute outside three times a day, listening to one song on low volume, etc.) and last week I was then forced to drive hours to a mental hospital, then back and forth to their day hospital all week, sit in noisy rooms with people talking for group for...

Please, is there nobody who can help me at all... I don't want my life destroyed because I don't have anywhere to go...

I have taken them in the past 24 hours but things still seem worse each day. Extremely sensitive, feel raw and open, facial neuralgia, what feels like fucking seizures from sound. Your profile says ototoxicity, did you get hyperacusis too or just tinnitus? From what drug? And did you feel...

This is a pretty desperate plea for help. I'm currently suffering tinnitus and severe hyperacusis, discomfort and burning pain from even low levels of noise and small sounds. I've been living with my parents but they are now convinced I just have an anxiety disorder and they are forcing me to do...

I don't know, I often feel like this is the case when I'm "feeling good" or when my ativan is really kicked into gear, I feel like my sound tolerance is better than usual but if I do a lot with it, it seems to catch up with me later. At this point though I would be happy without taking enough...

I'm seeing an audiologist and need to do sound therapy with noise generators, however when sold through the audiologist they are like $1900. I swear I've seen websites you can buy noise generators for like $300-$400. Does anyone know where you might be able to buy these directly, and if they...

I'm basically being forced to try psych meds for my "anxiety" so I'm trying to figure out what meds might actually help me, most antidepressants have gone poorly (citolopram, paxil, amitriptyline, remeron) the only one maybe left to try is nortriptyline. Taking suggestions there. For nerve...

Seriously, so much anxiety around T/H and benzos are bad news, nobody has tried Buspar?

My tinnitus is mid-moderate and my hyperacusis is severe (housebound), I'm starting a taper off of Ativan and it's already going poorly. I feel like I need help controlling my anxiety and my brain, I'm wary to try more drugs (they've all gone pretty bad for me almost immediately) and I'm also...

How long after your H onset did you get HBOT?

I have very bad hyperacusis, and what feels like very bad TTTS. So bad it almost feels like much of my discomfort and ear pain is driven by the spasming and TTTS, and then I get trigeminal nerve and ear canal burning afterwards. Has anyone had experience with getting this surgery? I honestly...

Difficult when those I'm dependent on are trying to force me off of them ASAP. Also, the pain in the ear is both awful and the facial neuralgia makes me think "acoustic shock" and somehow idk if Jastreboff can really help me... I also can't afford Jastreboff despite having the appointment so...

I'm really curious about peoples experience with TRT and white/pink noise therapy, since I still have an appointment with Pawel Jastreboff...

Yes this is exactly what I'm going through, it's awful. The consistent in-ear pain only started this week, after I drove 20 min total to see a doctor, then stopped by the CVS for 20 minutes for my prescription. Wore muffs and plugs the whole time, minus talking to the doctor in the quiet patient...

How long did you have it for and when/how did it go away? I think many times non-painful and painful hyperacusis can be linked and lead to one another. For example when I first developed it very little of it was painful. It's just that over time the pain related symptoms have emerged as the...

I can only say I'm interested too, as someone with such severe crippling hyperacusis I want to literally die, and I'm five months in when it started mild. My literal only hope is that my Ativan/benzo usage has made it worse and getting off will make it better, but then that brings in getting...

I have light/motion sensitivity, sometimes eye twitches, regular floaters... hard to tell if its my T/H or if its the benzos im on that I desperately wish I could get off of.

I'm poor, jobless, stuck in my parents basement. Leaving the house even with hearing protection feels very uncomfortable, and theres jets going by overhead constantly that seem to make it downright severely dangerous for me at this point. Unless anyone out there in MD has something to offer me...

I am at the point where practically any sound brings discomfort. I think my brain and my ears are both broken... time has only been my enemy so far. Almost 5 months and never an improvement, always worsening. I think it is time to end things soon. Jastrehoff wants almost 3.5k for all the tests...

Hello, For anyone following my posts and the chat, I have severe and seemingly endlessly progressive hyperacusis that I can't seem to figure out how to help. I had a positive Lyme test and IV antibiotics that were completely brutal in December, I'm still on 1.25mg Ativan daily definitely with...

I have this too. Idk how severe your H is, mine is quite bad, but the sensitivity to vibration means no driving even with ear protection, leaving me housebound.

Before withdrawal? I'm trying to figure out how likely it is that benzos have been making my hyperacusis worse over the past four months, and whether withdrawal might eventually make it better if I can get through, or if I can only expect worsening. I continue to get worse constantly and I'm...

So is this a no? With the trigeminal pain from my TTTS and the fluttering sometimes sounding like "typewriter" or morse code tinnitus, I was considering trying carbamazepine. Or Lyrica, since some on H-chat said they found it reduced their H some. I don't know what it is about antidepressants...

Did anyone ever find that getting off benzos actually (at least eventually, post any withdrawal) made their sound sensitivity and migraines and other symptoms better, instead of just worse?

Did anyone ever find their sound sensitivity and migraines actually went down once they got off benzos?

I feel like I have a lot of possible compounding/underlying factors, have suffered a lot of setbacks, and just continually get worse. After four months of that, it's hard to see the trend turning around. In the meantime the suffering grows. I'm trying to hang in there. But hope feels at a...

So as the title says and my initial thread has talked about, I have really bad acid reflux. If I don't take my antacid, I have constant throat pain and irritation from what seems to be aspirated reflux as my esophageal sphincters seem pretty badly functional. It causes GI distress and now even...

Hyperacusis is the reason my life is over and I want to kill myself. This doesn't sound like an hyperacusis cure.

What potential treatments are possibly coming this month? Just curious. I'm in a bad spot and recently posted about it but I've perused the forums a bunch before this and always see people talking about the next breakthrough coming soon, and it's always just been disappointment. If I knew real...

Thanks, I will try and watch these videos the next time I feel capable of tolerating electronic sound; I wasted the hour or two of post-traumatic-venture-into-world numbness on playing a little bit of my Switch because I miss actually playing games with sound. Sadly it seems I've already reached...

I mean, this sounds like less than what I already do every day? There's random household noises and I talk with my parents some each day. There's generally a limit to what I can tolerate and then my ears start complaining more and more... I don't understand how my brain works anymore. Something...

The audiologist assessed my LDLs (roughly 50-55) and my hearing (notch down to 20-25 around 2k and 30 around 16k, otherwise normal/good) and gave me a task of finding a noise that doesn't sound/feel unpleasant and listening to it every day for 5-10 minutes, says I'm not ready for sound...

Has anyone ever been to the tinnitus and hyperacusis clinic at UMMC in baltimore MD? I have an appointment there tomorrow morning and wondering just good of a specialist I should be expecting to see, if I should get my hopes up at all of them knowing how to help.

Yes, please do. I hope the video is captioned because I cannot seem to tolerate electronic noises like tv, videos, music, games, etc. though I don't really know why. I can't go outside, can't drive, can't fucking do anything and haven't been able to for a month or two now. This honestly sounds...

They say not to overprotect for hyperacusis, but even not wearing ear muffs around the house seems to be too much for me because my tolerance continues to collapse further and has been doing so for 4 months. Should I go with heavy overprotection instead then? Unless it's the nexium, or the...

Please, give me everything you got. I'm desperate. Each day since I was in the last psych ward and on the antidepressant is worse than the last, I'm afraid I'm going to kill myself soon. I tried just a little bit of 5htp and L-Theanine last night, thinking maybe I could get the "good" feeling...

Does anyone else feel like they get headaches and like, body sensations of anxiety on hearing sound? Have I just between my anxiety and possibly benzos gotten my bodies emotional/limbic system wound up and/or kindled? How do you even go about addressing or reversing that phenomenon? It feels...

I feel like when I take magnesium (glycinate) last night it made me feel sleepy and sedated but made the T and H, which were already spiking, worse. Isn't magnesium supposed to help? I'm worried I'm deficient but maybe that's not my problem; last I checked my blood levels were right at 2.5 being...

Feels like a lot of potential leads but yet, a lot of stuff that's hard to pin down and could be a long expensive goose chase. Ototoxicity, GI/food/nutrient issues, TMJ, neck/throat issues and nerves, lymes, benzos, anxiety. Treatments like steroids, HBOT and LLLT that I probably can't afford or...

If I tap the back of my neck at the top of my spine, I get the same sensation down my back/up my neck as when I tap my upper jaw. Is it possible the problem isn't even in my ear, but in my neck?? Or is this normal for H. I also did gymnastics in college and fell on my head/neck a couple times...

Does this mean that not just TMJ might be part of the issue physically, but the vertebrae in my neck? If I reach behind my neck to the dips directly behind the tops of the ears, the middle bulges more to the right side of my head than the left noticeably. There is also noticeably less space...

Do you think steroids or HBOT or LLLT might even help me, at four months out with progressive worsening/setbacks? Last hearing test I had came back all "normal", a very mild cookie cut dip of around 15-20db in high frequencies - it was actually even slightly better than the hearing test I got...

Your profile says ototoxicity, what drug caused yours? Maybe with some similarities in our stories you could give some advice. Unfortunately I have about $1k to my name at the moment, a large amount of that being a gofundme through friends that raised that money for me to see the hyperacusis...

Well good thing is switching insurances means that I'll have brand new doctors to look over everything and get a second opinion, I'll keep this in mind. I'm taking 1.25mg a day now, been taking Ativan a total of 4 months. The first two it was roughly .5mg a day. I'm wondering just how fast I...

Well... I had a CT scan checking for SSCD and I'm assuming would have caught that too, so I don't think I'm going to be so lucky. This truly feels like an impossible burden for any person to bear. I feel like I died four months ago and this is just death in slow motion. It's truly insane how...

What caused your H, how long did it take to get better, and did it get worse like mine has before getting better at all? I wish someone really knowledgeable on benzos could advise me on what to do with the Ativan. Like I said it used to really take the sound sensitivity edge off, then I think...

I feel so cursed and this feels so unfair. Why is this happening like this to me? Did the neomycin just fuck me up THAT bad? Did I just expose to too much noise, not avoiding crowded places like Rennfest and getting an MRI? Did I just re-fry my brain too much with all the meds I kept trying and...

Tinnitus is one thing, honestly if I had JUST tinnitus even as loud as my loudest spike I talked about a few nights ago with the amitriptyline, I would take that in a heartbeat. The extreme discomfort and sensitivity to sound is insanely debilitating. Any sort of impact noise even quiet ones...

I don't know about antihistamines, Benadryl spikes my tinnitus. The drugs I've tried so far are: Citolopram- Before onset actually, small part of pill due to family history of poor response to SSRIs, felt warm/good for an hour then a long sleepless night of GI upset, anxiety, shaking, brain...

Hi everyone, I had chronic larypharyngeal reflux/sensitivity and digestive problems for about 5 years that I personally swear started after I did MDMA two or so times that Fall while in college. I was on Nexium 20mg every day after the first year. Well last August/October after a large round of...