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  1. soundmachine

    Denver Man Gets Gene Therapy to Restore Hearing

    This is awesome news. If he is hearing any new sounds, then A. hairs cells are growing and B. There are nerves getting the signal to the brain. But it does show the brain will have to learn how to adjust to the new signal input over time. But the brain is plastic and can do that. And this was...
  2. soundmachine

    N-Acetylcysteine (NAC)

    I've been taking 600 mg per day for the past year now. I can't say it did anything for my T but it may be preventing further damage to what I have left of my hair cells. Any protection at this stage in my damage is helpful. I am basing this on the US Navy study with Marine cohorts at a firing...
  3. soundmachine

    Botox 70% Success Rate as a Tinnitus Treatment!?

    I know..those pics were just a gag..for laugh...not to be taken seriously. The serious part was the threads following those photos.
  4. soundmachine

    Low-Level Laser Therapy (LLLT) for Tinnitus — Experiences (Dr. Wilden, etc.)

    Just an update. I don't have *ANY* spikes now with the laser. Also, my T is very low. Probably a 3/10. It has been this way for a few weeks. I can't prove the laser did this but it is no longer loud T. I use the laser 5 times a week for 30 min. That is just my report...take it or leave it but I...
  5. soundmachine

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    This one is a long...long way off. They don't even know how the retinoblastoma gene leads to regeneration. Seems like something for 50 years from now. I"ll be dead so great for my grand kids.
  6. soundmachine

    Remeron Started My Tinnitus

    7.5 mg is all you need for sleep. But keep vigilant because you get tolerance really fast on this poison. Even some folks found getting off 7.5 challenging but they maybe were on it for awhile.
  7. soundmachine

    Remeron Started My Tinnitus

    Yes, you were on benzos longer than I was. But do not discount Remeron. I used it for years. I eventually got to 45 mg. Remeron caused me MORE anxiety and to add to it OCD (and about 20 lbs weight gain and high blood pressure). But WD was only sleep deprivation and a bad rash that continues...
  8. soundmachine

    Remeron Started My Tinnitus

    Unfortunately, yes. I had to come off of Xanax once. Piece of cake. I did a taper but jumped off in a week's time. Mirtazapine is a whole different story. I did a 10% taper. I had an average of 2 to maybe 4 hours of sleep while tapering off. It took me two months before I got my natural sleep...
  9. soundmachine

    Remeron Started My Tinnitus

    Yes, the withdrawal is hell. You will get insomnia, anxiety, and...since it is a weak antihistamine on some receptors (H1 receptors), you will get what is called histamine intolerance. That is not a drug to play with lightly. It is a SNRI type drug. It is one of the hardest to get off of. You...
  10. soundmachine

    Tinnitus and Masturbation

    Who would have thought you could put those two words in the same sentence. Wow! Well, like they say...if you don't use it...you lose it. I wouldn't worry about T.
  11. soundmachine

    Remeron Started My Tinnitus

    Remeron..AKA mirtazapine did not make my T worse. I took it a long time. Now, I did have hell getting off of it. It was as bad as any benzodiazapine. I would recommend never taking Remeron again but I don't think it would make T worse. Many people on this board take Remeron for sleep (a bad...
  12. soundmachine

    Depression

    Have you looked into TMS? http://www.hopkinsmedicine.org/psychiatry/specialty_areas/brain_stimulation/tms/ http://www.health.harvard.edu/blog/magnetic-stimulation-a-new-approach-to-treating-depression-201207265064 http://www.medscape.com/viewarticle/804736 "This is the first study to examine...
  13. soundmachine

    N-Acetylcysteine (NAC)

    Yep...I used that brand too. A good company.
  14. soundmachine

    N-Acetylcysteine (NAC)

    I've been taking NAC @ 600mg after 1 month of onset and it definitely helped my H but for T not so much...if at all. But my H was so bad I was going deaf. I really think it saved me. I didn't start to recover until I started NAC and within just a few days I noticed improvement. I take Life...
  15. soundmachine

    Regeneration of the Cochlea: Notch Inhibition + LLLT — A Theoretical Approach

    830nm may be too long. Check some of the more expensive lasers and see what they are using. Like the famous Walden laser. Seems too low freq. As I understand it, there are ranges of wavelengths for zones of hearing freq.
  16. soundmachine

    Regeneration of the Cochlea: Notch Inhibition + LLLT — A Theoretical Approach

    It's not just strength...but wavelength. Putting any "IR" array or DIY laser together has to meet both power and wavelength...otherwise..you probably have worse than a Chinese laser. For example: 660nm @ 0.5W
  17. soundmachine

    Four Hours of Sleep in Last 48 Hours, I Need Some Reassurance

    Didn't know that one either. It goes for 16 USD on a website I use for supplements. In liquid form. I might try that along with Lemon Balm.
  18. soundmachine

    Four Hours of Sleep in Last 48 Hours, I Need Some Reassurance

    Try Belsomra..Ambien is Z drug related to benzos. Belsomra acts on the orexin receptors and not gaba. Not that I would suggest taking it for over a month but it's supposed to be "non addictive" (well much less than Z drugs). I also got ototoxicity from ambien..It damaged my hearing even more.
  19. soundmachine

    A Message to Frightened 'Anxious Newbies'.

    So much for stats...I'm almost 1.5 years and it's still going strong. I have times when it gets very low...but I guess I'm one of the unlucky 30%. I pretty much think most of those stats are bogus anyway. But we all can cope. Glad to read a positive report!
  20. soundmachine

    Screaming Tinnitus

    Yeah...I almost cracked about two weeks ago when it spiked and I thought I damaged my hair cells yet again. I thought it was going to stay at that level. Plus my hearing went way down. So not only could I not understand people but I had bad T. I almost lost it again. I started my LLLT and...
  21. soundmachine

    Screaming Tinnitus

    Sure hope so. But keep in mind that drugs lose their effect over time as the body's tissue and liver adjust with enzymes and receptors. So let's hope it can be given intermittently so the body can't reach tolerance. If not..well...back to square one.
  22. soundmachine

    Lying Doctors

    That is a good point. But that has to be a case-by-case basis. Docs give benzos, sleeping pills, antidepressants...all without knowing the exact outcome of that particular patient beforehand. An anti-epileptic drug is not different. You don't have to have epilepsy to take it. People with...
  23. soundmachine

    Lying Doctors

    Hey buddy...you need a prescription from a doctor. You can't just buy it on the street corner next to the weed and crack. Some folks on this board need drugs that only doctors can prescribe. Hence, that is why they are frustrated, mad, and have posted here. Read from the top of the thread first.
  24. soundmachine

    Lying Doctors

    I want to try other modes first (I just know what I read). I like my LLLT and supplements. I just said it was not *my* bag...it may work great for others. If I tried all the other treatments and they did not work, I would go to TRT or CBT.
  25. soundmachine

    Lying Doctors

    Ah...it was not in the doctor's corner profile (where it should have been!) but hidden in a thread. https://www.tinnitustalk.com/threads/dr-stephen-nagler.5936/ I genuinely hope you want to help those with T using TRT. It may work for some. Not my bag however.
  26. soundmachine

    Lying Doctors

    No...I was patently clear I was talking about ENTs. Sorry you missed that. But I do find this interesting: In the corporate sector, between 2002 and 2004, Dr. Nagler was Vice President for Clinical Affairs at Neuromonics (then known as Tinnitech Ltd), and between 2010 and 2013, he was Director...
  27. soundmachine

    Lying Doctors

    Thanks, I got it was only one....a general surgeon as I posted above.
  28. soundmachine

    Lying Doctors

    I didn't see anything that says you're an ENT. Am I assuming something wrong? It says you were a general surgeon. http://www.atlantatinnitus.com/dr-stephen-nagler.php http://www.healthgrades.com/physician/dr-stephen-nagler-ysbhc Specialties General Surgery Colon & Rectal Surgery We are...
  29. soundmachine

    Lying Doctors

    FEW....which is why I was hoping one of the FEW would join the board. One would be enough. Maybe the US is a bad shot. There are ENTs all over the world..the UK...Germany, France...etc. It doesn't have to be the US. In fact, probably better it is not given the medical field in general is not too...
  30. soundmachine

    Lying Doctors

    I wish I knew a MD that actually could treat tinnitus. That is why I am on this board. Because I can't find one (nothing to do with they don't have time...they are just hard to find) Dr. Hubbard is a psychologist...not a MD. https://www.tinnitustalk.com/threads/dr-bruce-hubbard.4559/ Not that...
  31. soundmachine

    Lying Doctors

    I guess, I and many others, find this statement specious at best: "... is that no matter how much your doctor studies and no matter how wonderful a person he or she might be, in terms of your tinnitus you would be no better off than you are right now." There is more than TRT etc. Off label...
  32. soundmachine

    Lying Doctors

    While I am sad to read that, hacking should not stop a board. You harden your site with the right software and keep going. There are ways to do that. I'm sure this site does that pretty well. Maybe that was a long time ago. In any event I am pretty sure that a "Researcher's corner" would garner...
  33. soundmachine

    Lying Doctors

    Invite some ENTs (you seem to know some from a practice co-located I believe). Invite some MD PhDs (medical scientists that are not just board certified but actually do research on Tinnitus and hearing loss such as at the NIH). Just some suggestions..take it or leave it.
  34. soundmachine

    Lying Doctors

    I'm glad you had a good experience. I will keep that in mind if this gets worse again and I can't manage. Right now, I am trying to stay off all psychotropic drugs. But an anti-epileptic may help and I'm glad you could get it. I will have to find a doctor that is willing to do things like this...
  35. soundmachine

    Lying Doctors

    Good proof that some off-label stuff does work...even if there are side affects...it sure is better than hell. Most folks just have to go to a psychiatrist and get antidepressants. That not only did not work for me...I got addicted and had severe withdrawal symptoms coming off. I could not get...
  36. soundmachine

    Lying Doctors

    Well informed doctors give well informed directions that might lead a patient to a lower tinnitus outcome. The "bitching" comes form doctors not being well informed, hence people flock to sites like this for answers (thank God one exists). Well informed doctors guide people to off label...
  37. soundmachine

    Lying Doctors

    Perhaps yes. There are treatments (as you go on with TRT for example) and there are some drugs (off label) that seem to work for some folks. So I think there could be some better help....even if they are a "surgeon", they are the first line of contact (other than a family doc).
  38. soundmachine

    Lying Doctors

    They have the doctor's corner but what I could suggest is the Researcher's Corner. Maybe Markku could bring that in. And meetups too (like meetup.com) but better.
  39. soundmachine

    Lying Doctors

    I wish we could also get more research scientists to join. Or have a weekly blog on this site by scientists. That would give more credibility to the site and bring in more health professionals that want to learn.
  40. soundmachine

    Lying Doctors

    The ATA (for the US) should also have a link to this site and work with folks here too.
  41. soundmachine

    Lying Doctors

    I agree. This thread should not be "lying doctors" but "paying doctors".;)
  42. soundmachine

    Two Year Anniversary with Tinnitus

    Happy anniversary! In a few months, I'll have the same. Time to grab a beer and drink to a new sound of music. I pretend it is an electrical instrument from a grunge band. So much for being one of 70% that have no tinnitus after a year. We are special and should be proud!
  43. soundmachine

    Lying Doctors

    Yes, a computer system that patients, patient outcomes, and peer reviews, can be feed into a scoring system. Based on the score, you get paid. Actually someday, computers will be able to replace most doctors (except surgeons until robots get a bit more adept). Most GPs can be replaced by a...
  44. soundmachine

    Lying Doctors

    Tinnitus suffers will naturally go to an ENT. So ENTs SHOULD be better trained (even if they are surgeons) in treatment options (there are some). It is said that 10% of the US population has Tinnitus. So one would think that is not an insignificant part of their business. So being better at...
  45. soundmachine

    Lying Doctors

    Good God..and in the UK. In the US it tops at 200K for family practice (unless it is Beverly Hills or something).
  46. soundmachine

    Lying Doctors

    Yes, but if you don't get "rich" as a programmer...and you are not a great coder, or are old, you may be out of work. But a doctor pretty much never has to worry about job security at all. Old or incompetent. At the very worse, they can work for an insurance company denying patients health...
  47. soundmachine

    Lying Doctors

    Absolutely. Bedside manner is nice to have. But competency, due diligence, and a good patient history is woefully lacking in many. Pharmacology is the one thing that they get very little background in. They get one course in pharmacology in med school, then the rest from drug reps. I even had to...
  48. soundmachine

    Lying Doctors

    Oh...that's so they can collect $250 for the consultation to tell you that there is no cure. They speed away in a nice Mercedes to the golf course. You go home $250 poorer to the serenading sound of a bad mariachi band. That's what I love about the medical profession...tons of $$$$$ even if...
  49. soundmachine

    Lying Doctors

    LOL....I said the exact..almost verbatim thing after seeing one. They know of about 5 neurotransmitters in the brain and macro regions of the brain...a few neuroreceptors...and even fewer medications. They don't even understand tolerance over time with ANY drug...
  50. soundmachine

    Lying Doctors

    Yea...that sort of happened to me. I did not get corticosteroids when I had full blast T and SSNHL. The dip-shit doctor just told me it was stress and refused to refer me to an ENT. One month later when I knew what it was and forcefully got to an ENT, it was too late for steroids. Game over...
  51. soundmachine

    How do I turn this sound off!?..There must be a switch somewhere...

    How do I turn this sound off!?..There must be a switch somewhere...
  52. soundmachine

    How do I turn this sound off!?..There most be a nob somewhere...

    How do I turn this sound off!?..There most be a nob somewhere...
  53. soundmachine

    Tinnitus Got Worse and I Can't Sleep

    Ambien is actually ototoxic and similar to a benzo. So like you said, it lost its effect. The withdrawal can be similar to a benzo so stay away from it. I am a big advocate of non pharma stuff but to transition to the less dangerous stuff, try Belsomra (assuming you are in the USA)...
  54. soundmachine

    The Alpha-Stim — Transcutaneous Electrical Stimulation for Tinnitus

    There is a study at Harvard Medical School that low field magnetic stimulation (LFMS) may give immediate relief to depression. How it does that, I'm not sure they know. http://news.harvard.edu/gazette/story/2014/07/new-treatment-for-depression-shows-immediate-results/...
  55. soundmachine

    Is the Tinnitus Fading? Or Is It Just the Valium...

    yes..but valium. If you do get addicted, you may wish for T again...no I'm serious. Valium will not cure your T so it will continue in its severity when you stop the valium. Hence, you may feel it is ok to keep taking it. Then insomnia sets in. Now you can't sleep without it. Trust me...life can...
  56. soundmachine

    Is Xanax Safe to Take Just Once?

    I would go for Belsomra. Expensive as hell but safe to take for month at 20mg. It did not cause any increase in my T. It also has a calming affect at night too. It does not do anything with the GABAs .. only orexin receptors. Benzos are not safe. However, Belsomra is new. So I can't vouch for...
  57. soundmachine

    Is Xanax Safe to Take Just Once?

    Many moons ago, I took Xanax . After awaile, it actually induced insomnia. I was very relaxed but could not sleep. I tapered off at about a 10% dose until off. Never again. A couple of times can lead to every night. Then you are back to square one and addicted. Z drugs like Ambien can cause...
  58. soundmachine

    I Was a Guinea Pig in the Autifony QUIET-1 Study, Great Results

    It's not a cure but maybe an effective treatment to lower T. Probably something that will have to be taken long-term with hopefully tolerable side-affects. But that is better than nothing and better than that AM-101 garbage. Great to read this.
  59. soundmachine

    Botox 70% Success Rate as a Tinnitus Treatment!?

    Yes, maybe I could see somatic etiology but acoustic..not possible. But in behind the ear can be risky as there are nerves that can be damaged. Since this is not a standard, approved procedure, I would be a bit worried about the medical staff doing that injection (even behind the ear).
  60. soundmachine

    Botox 70% Success Rate as a Tinnitus Treatment!?

    I'm not saying that a toxin in low doses administered by qualified medical professionals can't be a treatment. But I think for tinnitus, that is a risk not worth taking. Yes, you almost did the wrong thing. Thank goodness your senses kicked in or you might be on another board (one for deaf people).