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I have been too scared to take any drugs. My experience of them is that they're more dangerous than what they're trying to cure - but that's just my own experience. I do take Paracetamol if the tinnitus causes a bad headache, but that's all. Also, re the driving. I've found that it's the...

Now 10 years from the start of T for me. Salicylates play a major factor in the noise level. When it's loud it stops me being able to think.

I would have thought that there were more than 367 cases of tinnitus strongly linked to a vaccine just on this forum - perhaps WHO is trying not to frighten us?

@CathyJ - If Aspirin causes tinnitus then it is highly likely that you are 'salicylate sensitive'. Salicylates cause my tinnitus & they are hard to avoid. If I manage not to eat food with moderate to high salicylate content then my tinnitus disappears. If I eat or drink or 'breathe in' something...

Nine years since it began. Food high in salicylates, salt & lack of sleep bring it on. Get the balance right & it disappears.

JM - can you let us know whereyou managed to get hold of a book on ototoxic drugs please? In the UK they start at around £175! Thanks Click

@Markku Hi Markku, I'm trying to figure out whether B12 Methylcobalamin should be taken on its own or whether it's better to take it with Hydroxycobalamin or take hydo instead. Have read that all the wonderful claims about methylcobalamin may not be accurate... to quote one site...

ok - cheers linearb. Not sure I trust anything much on the net, even the ones that aren't 'selling' could be set up just to boost the SEO of the ones that are selling... I found the depression bit whilst trying to figure out whether B12 Methylcobalamin should be taken on its own or whether it's...

Have just read that 'depression affects 62 percent of people with tinnitus' (at: http://articles.mercola.com/sites/articles/archive/2017/04/05/magnesium-tinnitus-relief.aspx ) Is this true? Are 62% of us depressed? I'm not & never have been but am interested in responses to this. Click

Screamed like hell yesterday - GONE today...

Up all night - annoying!!

The medical profession, tinnitus 'centres', clinics etc. know so little about tinnitus that they really should be stopped from giving 'absolute' advice. When they have definitive treatment and a cure that actually removes T then they will be qualified to make statements like 'earplugs don't...

Salt seems to affect t volume for more people than carbs or sugar. Most who have T that is affected by their diet say that salicylates are the thing to watch out for. I spent ages trying to figure out whether they affected my T. Have decided they do ... then decided they don't, then changed my...

@Louise - got a phone call this morning - the consultant who was doing my op tomorrow has to fix someone's broken jaw so mine has been delayed until Dec 1st - I don't know whether to celebrate or be upset about it :o)

Has anyone managed to find Coenzymated Vitamin B1 (or a Coenzymated B Complex) without magnesium stearate in it? I seem to be getting nowhere with this! Thanks.

Thanks Louise. I'm not sure if it is making the T worse. I think the fact that the eustachian tubes are screwed though may have a lot to do with my jaw and uneven bite - who knows? I'll let you know if I survive :0) xx

Wow - so many posts saying that people are cruel etc. I disagree. I think that the majority of people are kind and caring. Often 'life' gets in the way so they can't necessarily show their kindness in the way that they would like to. Unless you are unemployed, time is limited, especially with...

Hopefully it will go down instead of up one day for you Louise. It must be sh** - having it increase every time anything happens. Mine is different - it goes up and down - but they say that it can change to permanent screaming T - that's what I'm worried about. But - the op should 'fix' the bite...

I'm just hoping they don't - but I don't think they'll be allowed to if I say don't... God you were brave to have it done Louise - I'm assuming you had no choice?

Apparently wearing plugs during it will make the noise worse because it's mainly 'bone conducted'. It's dreadful not even knowing what we should do to protect - to try and not make it worse isn't it. I'm taking in masses of information - all the salicylate high drugs - all the ototoxic ones -...

@Louise I stayed up for that too but I have the volume so low - and I use the subtitles now - can't understand a thing without them because the volume is so low. Well noise is the most 'known' cause for T so I suppose giving noise a miss must allow the body to heal in some way. I rarely use...

@Louise Weird thing happened to me recently. Never suffered from wax in ears before but after 10 days of not being able to hear out of left ear (ignored it because of thinking it was probably associated with T - so no point going to GP etc. etc.) I went to see the local nurse who told me my...

@KelsterB How did it go? Were you ok? Let us know please.

Op that may help to correct 'bite' coming up. The general - drugs- jaw stretched open - neck etc. God knows what it will do to the t volume.

Fewer quiet days now... yesterday loud - today silence. Hoping, but not really believing anymore, that one day it may disappear forever.

For it not be the focus of your attention it needs to be something that you can 'get used to' - something that your brain can sense as not harmful, which is much easier if it's not constantly changing. The brain is alert to significant changes and that's what we have - an ever changing noise...

That's great Sam. That's the key to it really - the fact that it doesn't change much. Mine changes all the time, gets hissy, gets very loud, gets screechy, goes away... My brain doesn't have the chance to habituate and, quite often, it's like I've just started T all over again - a new sound...

@Sam Bridge I have them all plus a hundred more Sam but when the tone is ever changing or it gets really loud, then no - masking doesn't always work. Quite often the masking needs to be so loud it gives me a blinding headache! How is your T Sam? Tell me about it - hearing about someone...

@Louise Wish I knew. Mine has also got louder and the days when it isn't there are far fewer. I've come to the conclusion that mine has been made worse by problems with my jaw and bite. Having a general in a couple of weeks to have some teeth out to correct the bite - scared stupid! Not because...

@Louise SO TRUE - when it's low it's fine - when it's high it's intolerable. Mine is making weird noise today that is filling my head and I can't seem to mask - so annoying when you're trying to study! Hang in there Louise - have often wondered how you are. Click

Hope the t volume is going down Glynis and that the NHS are treating you well. I have what they've called Menieres and spondylosis too, as well as all the jaw & ear stuff with TMJ so can empathise. Glad you're coping - you must have been scared. I have to go in for an op on the 26th & it's...

@Nonna Here are a couple of links Nonna - http://toomuchmag.com/are-your-veggies-attacking-you/ http://www.millhousemedical.co.nz/files/docs/factsheet_8_salicylates_in_foods.pdf http://reclaimyourhealth.com.au/foods-high-in-salicylates-amines-and-glutamates/ Just make sure you don't cut...

I am convinced that new Pilates moves caused a pre-retinal formation in my left eye many years ago. It took a top private eye consultant to even be able to see it (after 6 eye specialists failed to)... So it was mild even back then and I don't notice it anymore (unless I stare at a blank white...

It's probably the salt. Reduce the salt - radically - and there's no need to fast.

Why what? Sorry... not sure which bit wasn't clear Codaz. Yes, of course B vitamins can be taken as supplements but I don't take them. Yes, liver contains a great deal of vit B12 (along with vit A & others & other good & other bad stuff) - this was why I tried it... because B12 is said to...

Vitamin supplements make my head go fuzzy - always have ... since I was a teenager - so I don't take them but, having read so much about B vitamins helping some people with T, I began eating chicken livers - fried. Totally disgusting. Did it for 3 days and had more periods of total silence than...

Did you have them out with a local or did they put you to sleep with a general? Glad it's not made anything worse!

Gosh this really is 20 questions isn't it - obviously you are a man of few words ofaisalo :)

@ofaisalo So has your doctor fixed it? Any solution given to you? Please tell us more.

It's in other threads so apologies for repeating this information... @erniej It could be your chewing - jaw movement - that is making it louder after a meal. Or... it could be salt and salicylates. Both put the volume of my T up - too much makes it screech to hell & back. Are you having...

Can you bring us up to date? Did the splint help at all?

Possibly both. I wish I had the answers for you - and for me - but T's relationship with food is complex. Also, salicylates are higher in many 'good for you' foods, so there is a natural reluctance to reduce them. Berries, with all their wonderful antioxidants, are tremendously high in sals. I...

Mine is definitely related to food. Cooked, concentrated tomato paste on pizza is extremely high in salicylates. Salicylates are injected into laboratory animals to induce tinnitus. It is a fact that aspirin can cause tinnitus. Aspirin is almost pure salicylate. One pizza may have no effect...

Yes, I can feel my T. The sensations are sometimes worse than the noise itself. If I have a whole day of T, the next day it feels as though someone is pushing down on my head - even if the T has gone away. I also get intermittent pain in the ears - like a poker being pushed in.

Yes. It goes away completely... nothing is there -however hard I listen for it.

Trying to find people with same type of T as me so that we can compare symptoms etc. (including tinkli bells :) ). My T can buzz for three days and then go away for a 10 hour stretch. Sometimes T will be there first thing in the morning and then disappear for the rest of the day (and night)...

I believe that having a healthy diet could make T onset more likely if something that is not normally consumed is introduced. I too had an extremely healthy, organic diet pre T. I moved from Hampshire to Cornwall 3 weeks before my T began (stress was not a factor) and on arrival there was no...

I tried an anti inflammatory diet about a year ago because of this (lots of pineapple!) Unfortunately it kept spiking my T because of all the fruit. I could live on fruit... practically did before T... but the fact that it's so high in sals made it really hard. I gave up in the end - needed my...

Hope you're ok Markku - my floaters are also increasing. SO annoying. Take care. Jane x

My tinkle tinkle bells are also in time with each step... must be something similar.

Ahh - I know the one you mean:) I thought of that as tapping! Thank goodness for that - hate to think of you thumping yourself!

@Marie79 I can understand this causing anxiety for you Marie. Please ignore anyone who says that you should be grateful because their T is louder, more intrusive and so on, than yours. Applying that logic means that none of us should be worrying about our T because there are other, worse...

You thump the back of your neck??

@Cityjohn I'm not sure I can describe it differently. It's a tinkle - actually a double tinkle. I heard it this morning when I covered my ears coming down to open the front door (the doorbell is near the stairs & I don't want to be near it when it rings!) - it's very light but you can hear it...

@Azariah - did the T go away again? Nothing from you since February...

My eardrum probably vibrates too and, if I concentrated when this happens I'd probably be aware of it... but I try not to think about it when it happens. I tried to establish a cause & discover a cure for the first couple of years of T, reading everything I could get my hands on and trying so...

During the first 6 months of my T my ears 'crackled' frequently. I also discovered that when walking quickly on hard surfaces, if I pushed in the tagus on each ear (done because of walking by roadworks) I could hear what I can only describe as a tinkly bell sound - seriously weird. Four years...

I agree with what you've said Eric, we are what we eat, but, unfortunately, the only way today, to ensure that the food we eat is really healthy, is to grow it all ourselves, preferably on virgin organic soil with organically produced seed. Over production of food during the war left UK soil...

SO true!!!

Interesting fact... CS Lewis had a secret life, hidden from all his religious friends (once he'd stopped being an atheist & gone back to religion). He's also said to have been an advocate of S&M & used to try to persuade people to let him spank them.