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  1. Emma33

    If Your Tinnitus Improved, Did It Improve Very Gradually?

    Hello El Buzz, Yes! It has slowly continued to improve. It got worse for a few months, but not as bad as the other times, and now it has dropped back and doesn’t really bother me at all, which is AMAZING. I am grateful for it every day. I hope you are also doing well.
  2. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    They were two separate sections - he talked about the Bluetooth and he also, in a different section, talked about why the treatment can make tinnitus worse (temporarily). Sorry, that wasn’t clear in the way I wrote it.
  3. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Thanks to @Hazel and everyone involved in producing the podcast. I thought you did a great job of covering the main issues. I was especially interested in the part about the Bluetooth and his theory on why the treatment can make the tinnitus temporarily worse. (I did have to Google “Benelux”...
  4. Emma33

    NICE Tinnitus Assessment and Management Guideline — Feedback Committee

    Hi, I don’t have a lot to add (I’m not in the UK). But, I agree with your call for more research and funding of possible treatments for tinnitus. I also like the suggestion above of what NOT to say. My GP (general practitioner) told me that Id always have tinnitus and it would keep getting...
  5. Emma33

    Mindfulness for Tinnitus Relief

    Hi all, I want to do a 30 day mindfulness challenge, where I spend 20 to 30 mins a day doing guided mindfulness meditation focusing on sound, mainly on my tinnitus. I feel like I’m in fight or flight a lot with my tinnitus - I’m scared and panicked. I think that using mindfulness to explore...
  6. Emma33

    Hi Markku I just saw Hazel's post about the interview you are preparing about Lenire. I...

    Hi Markku I just saw Hazel's post about the interview you are preparing about Lenire. I wanted to know if there is any volunteer work I could do to help with the podcast. I am a fairly fast typer, so I could do transcription. I’m good at writing, project management and researching, so I...
  7. Emma33

    Seeking Balance / Rock Steady — Joey Remenyi

    Valeri - I came across a question she got on her Facebook page asking why comments had been disabled on her YouTube vids, and she said it was because people were asking for medical advice. That MAY be true, but she may also be trying to control any negative feedback.
  8. Emma33

    Seeking Balance / Rock Steady — Joey Remenyi

    I just wanted to thank everyone on this thread for their balanced opinions on this program. I stumbled on one of her videos on YouTube yesterday, and went down the rabbit hole a bit. I signed up for the free email resources, and listened to them, starting to feel like I was in a slow moving sale...
  9. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi Bartoli. What is the Brai3n clinic? Is that a typo? I’ve googled, and am not coming up with anything.
  10. Emma33

    If Your Tinnitus Improved, Did It Improve Very Gradually?

    Thanks Kelvin - glad to hear you are doing better!!
  11. Emma33

    If Your Tinnitus Improved, Did It Improve Very Gradually?

    Thanks everyone for those helpful responses - it does help to know that improvement is often non-linear, so I shouldn't panic if things are a bit worse today!
  12. Emma33

    If Your Tinnitus Improved, Did It Improve Very Gradually?

    Hi, If you had tinnitus, and it improved, did it fluctuate as it improved? (With some days bad and some days good, but gradually more and more good days?) My tinnitus seemed to be getting worse, but over the past 2 months I've had one quiet period for 3 days, then a month later another quiet...
  13. Emma33

    Tinnitus Getting Worse — Why?

    Hi, I just wanted to come back and say that since I wrote that post, I started to see some marked changed in my tinnitus. About 3 weeks ago, it dropped by about 70% for three days. Then it came back worse. Then, a week ago, it dropped again and has been quiet for almost a week (I really just...
  14. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    In the research study, people with hyperacusis were super-responders, meaning they responded better than people with just tinnitus.
  15. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I listened to the Tinnitus Talk interview with Neuromod, quite a few times they mentioned the parameters are set using your hearing level - they don't change depending on tinnitus level. Hope I remembered that correctly!
  16. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    There is an airport bus which goes directly from the airport to Lucan (where Neuromod is). It takes about 35 minutes. I don't know of any cheap hotels, but look at airbnb.com - there are some reasonable options around the Lucan area, much less than the hotels. (Around AU$60 a night... not sure...
  17. Emma33

    Wife Died Suddenly — Stress and Tinnitus Spiked Considerably

    I am very sorry for your loss. I just wanted to share that my tinnitus doesn't spike when I experience the normal stresses of life, but when I have had big, sudden shocks it does spike - but for me it goes down quite quickly. I really hope it is the same for you. If you had a really enormous...
  18. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I'm Australian, but am planning on being in Europe from September for three months. Going to Germany would be more convenient for me than Ireland, so I rang Neuromod and asked if I should book in with them now or wait to see if Germany would be an option. The woman suggested waiting if I was...
  19. Emma33

    Lenire — Bimodal Stimulation Treatment by Neuromod

    In Neuromod's media release from about a month ago, they said they were getting ready to roll-out in Ireland and Germany. Does anyone have any idea when Germany might happen and where the clinic would be located? I'm Australian and have been thinking about going to Ireland, but Germany would...
  20. Emma33

    Tinnitus Getting Worse — Why?

    Yes, it was very weird, it got worse and worse for two years then just went away overnight (pretty much, it went down to a 1). I am praying it happens again. I haven't had my ears check for wax, but my hearing seems fine, and I'm not blocked up in any way, so I doubt wax is an issue.
  21. Emma33

    Tinnitus Getting Worse — Why?

    Hi, that's a good suggestion to get a hearing test. I went to an audiologist 8years ago, when I first got tinnitus, but he was pretty useless, so I didn't think of doing it again. It probably isn't a bad idea though. When you say sound therapy, what do you mean? (Is that TRT?)
  22. Emma33

    Tinnitus Getting Worse — Why?

    Hi all, I got tinnitus 8 years ago, after using an ear-bud. It gradually got worse over 2 years before pretty much disappearing very suddenly (after I listened to some loud music one day). I had 6 years of peace, until I knocked my ear last year and it came back. It came back bad, and got...