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It seems like it's been quite a while since @gillme and I was at ARO this year. If you recall, Tinnitus Hub had a booth there, and one day, Stephane Maison, an audiologist and well-known tinnitus researcher from Harvard, Mass Eye and Ear Hospital, stopped by to let us know that he would be...

Hi @Josh59, I've heard back from Stephane Maison. The publication associated with his ARO poster is available at this link. About solutions that could reduce hyperactivity in the brain he replied: I ran a PubMed search on Polley DB and got about 79 hits. Some of the publications are...

Hi @ZFire. The NHANES definition of tinnitus is one of several others that make pooling data across countries difficult. Last year at the ARO, Christopher Cederroth related that they ran into this while studying whether there is a genetic basis for tinnitus. I recall a new study was needed...

Hi @Josh59, I went back and looked at the Neural Signatures poster; the title of it is 'Evidence of Cochlear Neural Degeneration in Normal-Hearing Subjects with Tinnitus.' Unfortunately, it won't download from the conference website, so I'll have to find out if it's OK for me to share it. In...

Hey @Nick47, your interest in AC102 is next... The authors of this podium presentation state that the underlying pathology of tinnitus is associated with cochlear neural degeneration and the brain's reaction to it. Although tinnitus is associated with hearing loss, often individuals presenting...

Hi @ZFire, I'm starting to answer some of the questions related to the ARO 2024 meeting. So here goes: This poster explored the use of MEMR as a biomarker of cochlear injury in tinnitus (although the abstract mentioned the use of OAEs and EFRs, only MEMR data was presented). The study asks if...

I just looked at ATA's website. The vast majority of board members are audiologists. There are 3 researchers - Dr. Zhang who is recruiting for his clinical trial for blast-induced tinnitus, Marc Fagelson who is an educator of audiologists and Phil Gander who, according to people we met at ARO...

Today I attended, as a guest, a Zoom meeting of the Friends of the Congressional Hearing Health Caucus. There I virtually met Melissa who has a non-profit, The Ear Community, which is advocating for the US Congress to pass Ally's Act. Passing Ally's Act would make it a legal requirement that...

Hi @Watasha, many thanks for flagging this! I sent a thank you message to Texas Roadhouse thru the contact page on their website. I can understand why they donated to the ATA, however given the size of the donation I do hope Texas Roadhouse will, in some way, advise and hold the ATA...

Received this update today from ATA. I guess COVID-19 is the reason for the 1 year delay. Look at the bright side, May is only 3 months away! :whistle: -TC "The NIDCD is in the process of developing their 2022-2027 strategic plan now. They hope to have a draft available for public comment this...

Wow, it seems like eons ago that we sent in comments to NIDCD. I recently emailed them to inquire about when we might see the draft of their strategic plan and be able to comment. They have responded that it will be available sometime this year but they did not have a date yet. So we are...

Love this! I just submitted my comments. Thanks for posting @Diesel!

Even tho it is the same, it's progress. No one knows what people at the ATA do every day. In fact exactly how many people there are at the ATA seems to be a closely guarded secret. Compare that to BTA who are very transparent and actually doing things they believe will help the tinnitus...

I've been considering that. Something that suggests we would like to hear about the mission of the task force, what options they will be considering and ultimately the reason they've come to their future final decision. If the email address we used did not reach the board, we could ask if our...

It may be a standard response but this is progress with the ATA. They actually sat down, composed and sent a response. Knock me over with a feather! Amusing that they hope we'll continue to follow their activities. They sure don't make that easy to do. And, 'follow' may mean a little more...

Well, I'll be.... Received this response just now from the ATA. Dear Linda, Thank you for touching base with the ATA to express your interest that the bequest we received be used to advance research. Yes, research and greater awareness of tinnitus are key to ending our battle with tinnitus...

@Watasha Done and dusted as they say. Thanks for bringing this to our attention, happy to help out. @Felipe and your templates were extremely helpful. @Felipe, welcome to the forum! @ajc, you crack me up :LOL: TC

Healthcare professionals need to understand that the quality of life of a person with tinnitus is compromised. And, while someone with tinnitus may eventually habituate and live their life, it will be a life of compromises and one prone to isolation if care is not taken. Depending on how...

@ajc, @all to gain, @david c, thank you for the come back. @ajc, if I were to email David Stockdale, assuming I knew his address, he wouldn't tell me anything more than what is available to the public. So if you all have not heard anything, then there is nothing to be heard. Take care, TC

Did anything come out of the BTA activities during Tinnitus Week, specifically the petition and roundtable discussion? Thanks, TC

Thanks for another awesome podcast! Great job @mrbrightside614 and @FGG, thanks for those important and well thought out questions and explanations. I'm excited to think there may be something on the horizon for you and others like you. As for Frequency Therapeutics and Carl LeBel - who...

I would like the information in text form, supplemented with graphics where needed. A podcast with transcript would work as well. In both instances, it would be extremely helpful if a list of supporting references was included. Thanks very much. Your efforts are going to fill a huge...

If done on behalf of Tinnitus Talk, I think that would be @Markku or @Hazel's call. The announcement is on the Northeast Ohio Medical University's website, but Bao's company Gateway Biotechnology is mentioned.

There's nothing on SIBR or NIDCD's websites about the new grant. It could be that the additional grant money is to move up the tinnitus research. I think we need more info.

Dr. Bao/Gateway Biotechnology, Inc. has received a large grant from NIDCD to develop a drug to cure tinnitus. Read about it HERE. "Gateway Biotechnology, Inc., has been awarded a Small Business Innovation Research Grant (SBIR) grant of $972,613 from the National Institute on Deafness and...

Hi Autumnly, I'm glad you brought up the issue of heterogeneity and subtypes. I meant to include that among the questions because I find my view on this is evolving. Understanding subtypes and heterogeneity is important, but the research community may be getting ahead of themselves. If and...

Hello everyone, Having worked in midsize and large pharmaceutical companies for 27 years, I have spent most, if not all, of my career around research. I've had tinnitus now for about 3 years and have recently been asked about my impressions of tinnitus research. Of course I have them...

Noisy Planet is a national public education campaign, sponsored by the United States National Institute on Deafness and other Communication Disorders (NIDCD), designed to increase awareness among parents of children ages 8 to 12 about the causes and prevention of noise-induced hearing loss...

Hi Will, Thanks very much for answering my questions. I have a couple more and do hope I'm not taking too much of your valuable time away from solving the tinnitus riddle! 1. Could you say a little more about what is meant by precision in the context of your model? Is this the...

@Autumnly Have you read BTA's Tinnitus Manifesto, published during Tinnitus Week? It's available here. I just skimmed through and didn't see anything that resembled "most people don't mind having tinnitus." You've been a watchdog about this issue, more so than anyone - is BTA promoting...

@Autumnly I see your dilemma. Personally, I think that leaving comments may not be enough. It may be a mindset that has to be changed throughout BTA, starting with the Trustees. TC

I read this paper and there were no fur balls as a result. There were no surprises either. A guideline committee was involved in producing the NICE Guideline that included 2 lay members, David Stockdale and someone named Linda Parton. I can't seem to find anything about her except an old...

Hello Will, If I were to compare your theory of tinnitus using Predictions, how would it be similar and how would it differ from Josef Rauschecker's model of explaining tinnitus? Are you both saying that the tonotopic map in the auditory cortex reorganizes and begins to fill in for frequencies...

Are either of you familiar with or using reference manager software? Thanks, TC

Thank you both. I'll read this soon. TC

Too bad it's not open access. Then again if I read it I might just barf up a fur ball. - Tuxedo Cat

A big THANK YOU to everyone for sending their responses into NIDCD. If you haven't responded, there's still time. The deadline is March 31, 2020. If you would like to receive updates from the NIDCD, including updates on the NIDCD Strategic Plan, please visit their public website at...

@david c Yes, thanks to @Candy the comments from Tinnitus Hub were honest and did an excellent job of representing the concerns of people with tinnitus. As you know, Tinnitus Hub only recently became a stakeholder, but the NICE development process for the Tinnitus Guideline has been ongoing...

Attached are Tinnitus Hub's comments and the NICE response on the NICE Draft Guideline, Tinnitus: assessment and management. The Final Guideline has now been issued and can be found on the NICE website at the link in @Hazel's post above. In summary, Tinnitus Hub made 10 comments on the draft...

Glad you asked! Yes, Yes and Yes! Having Tinnitus is not a requirement!

Should be soon, I'm looking at the comments NICE made on each of Tinnitus Hub's comments and am also comparing the draft guideline to final guideline to see what changes were made in response to Tinnitus Hub's comments.

Hi Ed, Thanks for taking the time to put your response together and sending it in. Tinnitus and suffering occur all over the world. Plus it will help Tinnitus Talk be recognized by NDICD. Please let me know if myself or others can write to one of your MPs or some other tinnitus champion...

Ed, its been on my mind to ask you if there is any way members of Tinnitus Talk, irrespective of nationality, could do something similar for you guys in the UK. Is there a certain MP to whom we could send emails? As Hazel explained, Chris is involved with this type of lobbying here in the US...

@GregCA, @Bobbette, Thank you both for your submissions. If you have any family and friends that might communicate their view on tinnitus research to NIDCD, please invite them to take part by submitting a response. It would be very helpful if they mention they were made aware of the...

Everyone, Tinnitus needs more research. When it comes to research some of us may have our favorite approaches to causes of tinnitus and where an effective treatment may be targeted - some are more "ear" people and others may be more "brain' people. But the bottom line is the same, tinnitus...

Hey guys, I haven't really looked at the letter. Will do this week. I'm not real sure where FDA reform fits in with trying to increase government funding for research. It's really downstream, but that doesn't mean that Janet Woodcock should not be informed sooner rather than later. TC

I'll look at these more closely this coming week, but from scanning the titles none of these seem to fit with any of the reasons, raised by BTA, for why there is no cure for tinnitus. TC

Well said, FGG. I'm certainly willing to help you any way I can and will keep an eye out for that opportunity. I will just go out on a limb here because I don't know if @JohnAdams is still around or in the dog house or what. But, his story is one that demonstrates the extent someone with...

Hi @FGG, You sound very heavily invested in synaptopathy as a cause for tinnitus. And, from what you've said, synaptopathy research seems to be fairly advanced . The fact that there are drugs in trial is very, very tangible. I really hope you can achieve your goal thru Janet Woodcock and...

Apart from the drug or drugs Thanos Tzounopoulos' is investigating are there other drugs designed to address tinnitus and hearing distortion in the pipeline? I'm not aware that any of the drugs for hearing loss would also be pursuing an indication for treating tinnitus. Perhaps you can bring me...

@FGG I understand you are considering asking FDA to give Frequency Therapeutics conditional approval for their hearing loss drug, FX-322. I'm just wondering where you stand with this? Have you had any communication with Frequency Therapeutics, specifically their regulatory people, and have...

@FGG OK if I PM you sometime this weekend? Thanks, TC

Hi Autumnly, Thanks so much for posting this. From the looks of the pictures on BTA's website it looks like everyone had a great time and Torynn Brazell and David Stockdale have become close friends. If you come across any real content from the event, please let us know. Best Regards, TC...

@Barbara777 This is posted on ATA's Facebook page. Looks like ATA sponsored a 'networking event' at ARO. I suspect this could be the ATA/BTA sponsored joint event that was underwritten by Neuromod. Do you have any additional info? Thanks, TC Anyone have an impression of Cederroth and his...

And at least Tinnitus Hub/Talk are in the loop. BTA have always been and continue to be more transparent and forthcoming with information than ATA. Now that ATA is in partnership with them I'm keeping my fingers crossed that some of that rubs off on ATA and not the other way around.

Well, it's a good start. There's a lot that remains to be seen. @Hazel, do you know if that is the complete list of attendees? According to their Facebook page, BTA will be posting more about the discussion during Tinnitus Week. Does anyone know what happens next, as a result of the...

And biomarkers is it?

NICE needs to be informed of Allan Curran's passing if it was tinnitus related. While they don't commission research they have influence. Funding for effective treatments and cures are needed. Forget the stiff upper lip stuff and commit resources where they are very obviously needed. This man...

Are the BTA aware of Allan's passing? He posted on their Facebook page quite frequently and had a Top Fan designation for a while. Allan had a way with words. I liked the way he advocated for research and pointed out the obvious answers to BTA's proposed studies. I will miss that. I also...

Thank you for all your support this past year. A special thanks to @Markku and @Hazel for providing this forum and a platform from which people with tinnitus can have a voice. Your tenacity is an inspiration and the list of accomplishments is the result. I'm looking forward to the coming...