Search results for query: *

  1. vegasjon

    Update on AM-101 (aka Keyzilen)

    Sure is - bad on me. I should've checked that.
  2. vegasjon

    Update on AM-101 (aka Keyzilen)

    Fail. Sigh. https://www.marketwatch.com/story/auris-medical-stock-slumps-54-premarket-as-company-says-tinnitus-trial-missed-goals-2016-08-18-7913351
  3. vegasjon

    How Do You Keep Positivity Up?

    I don't. I look for signs I will regain my hearing and silence the ringing and I see nothing remotely on the horizon. And I get depressed. Sorry.
  4. vegasjon

    People Not Understanding

    Well, I believe you! For whatever that's worth. :dunno:
  5. vegasjon

    Habituation?

    I hate this word and the concept. I read it as accepting your handicap and pain. I'm not habituated, I'm pissed off. Not that it accomplishes anything. I guess it's just my nature (and those who can acclimate are surely better off).
  6. vegasjon

    My Wife Is Leaving Me Because of Tinnitus

    I worry that I will decay and become nothing of use to my own family. Three years in, the ringing is loud as ever and I fear my hearing has deteriorated. What happens two years from now? Five? I feel your pain, Astro.
  7. vegasjon

    Ginkgo Biloba

    Nope. No. And not at all.
  8. vegasjon

    Wish Me Luck! Big Lump Around My Rib Cage

    Best wishes to you.
  9. vegasjon

    Temporary Relief

    Yep. Me too:
  10. vegasjon

    "I Say 2016 Is the Year of the Ear."

    Yeah, but: Experts say it will be at least five years before a product is on the market. Still, the activity is breeding optimism. Kind of a general overview of the state of research. http://fortune.com/2016/09/26/hearing-loss-cure-biotech-startups/
  11. vegasjon

    Audiens — The Tinnitus Pill

    Been on the ginkgo train for three months myself. Zippo.
  12. vegasjon

    Are They Even Close to a Cure or Some Help?

    I'm convinced I will die with the last sound I hear a ringing in my otherwise useless ears. But I'm a pessimist.
  13. vegasjon

    Does Everyone REALLY Get Used to This?

    I wear hearing aids. They do not fix the T and they get my hearing to about 85 percent of normal. I take niacin, ginkgo, magnesium, Triamterene, CoQ10 and used to take melatonin, prednosone, Florical and I forget what else. I'm a damn pharmacy. Depression mess won't change the hearing loss or the T.
  14. vegasjon

    Does Everyone REALLY Get Used to This?

    No. After three-to-four years, I'm miserable. My T and hearing loss are dominating my life. I am quite definitely handicapped by this. There is no more chance of "habituation" than one would have of "accepting" waking up each morning to a beating and then simply going about your day. Nor should...
  15. vegasjon

    I'm Losing My Mind

    I had my first child at age 41. The next one arrived before I turned 43. That was about the same time my ears and brain went to hell. Ringing. Pulsating. Sensitivity. Ungodly pressure. And very substantial hearing loss. It's been about four years and the nightmare rages on. Surgery send hearing...
  16. vegasjon

    AM-101 Clinical Trial — Participants Updates and Discussion

    Yep. My pessimism is a 10 of 10 again. It had dropped to a 9.5.
  17. vegasjon

    The Closest You've Come to Tinnitus-Related Suicide?

    + clicking. + pulsating. + constant pressure in the ears. So many "pluses." It's like being physically assaulted by mathematics.
  18. vegasjon

    Human Hearing Loss Could Be Reversible

    Ding ding ding!!!
  19. vegasjon

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    This is why I simply can't ever get my hopes up.
  20. vegasjon

    Where Are You From??

    Temporarily in Orlando, Florida.
  21. vegasjon

    Keyzilen (AM-101) Granted Fast Track Designation by the FDA

    I, for one, don't wish for this to fail. And yet -- as a chronic sufferer -- I just can't muster any excitement, either. Not based on what I know, at least.
  22. vegasjon

    Decibel Therapeutics Just Received $52M in Funding

    I'll contribute the first $100 toward it!
  23. vegasjon

    Decibel Therapeutics Just Received $52M in Funding

    A new guy in charge at Decibel... https://www.bostonglobe.com/busines...decibel-ceo/earUbHO58NaoRHm4MxeEiI/story.html
  24. vegasjon

    Decibel Therapeutics Just Received $52M in Funding

    New chief at a year-old research company talks the talk. Figured it was worth sharing here. At least it's nice to see some focus on the problem. Now, how about solutions? https://www.bostonglobe.com/business/2016/07/13/biotech-veteran-holtzman-joins-decibel-ceo/earUbHO58NaoRHm4MxeEiI/story.html
  25. vegasjon

    "It Could Take a Decade or More, but It's a Possibility"

    Like I said - you optimists! I don't doubt for a minute that your outlook helps you cope. I think it's great... Really. I just don't see myself getting there. I think part of it is that I can't be Charlie Brown convincing myself that this time, for sure, I'm gonna kick that football -- only for...
  26. vegasjon

    "It Could Take a Decade or More, but It's a Possibility"

    You optimists. It's people like you that believed John F. Kennedy when he pledged to get a man to the moon and back. But seriously, I wish I shared your confidence. My natural pessimism (I consider it "realism") coupled with the actual dearth of any real inspiring announcements keeps me...
  27. vegasjon

    Gave In; Getting Hearing Aids

    Before surgery, I had tinnitus (ringing), hyperacusis (extreme sensitivity) and a persistent Pulsatile effect (throbing). The throbing is gone. The H went away too (though I had a recent minor recurrence that seems to have been temporary). They say the conductive hearing improvement also shows...
  28. vegasjon

    Gave In; Getting Hearing Aids

    Yes, you and I are one of the same. Had the surgery on one ear (in 2014) to address the conductive issue. They aren't recommending the other at this point. I also have sensorineural damage and lingering T. The surgery helped with some other things. I spent two years getting shoulder shrugs from...
  29. vegasjon

    Gave In; Getting Hearing Aids

    I don't mean to scare you (or anyone else). I'm just venting, I suppose. My hearing loss is tied specifically to otosclerosis, which accounts for only a fraction of T cases. Very different than most, I believe. I do worry about further hearing deterioration and what might happen in the years...
  30. vegasjon

    Gave In; Getting Hearing Aids

    So it's been - what? - half a year now with the hearing aids. And I hate them. That's not entirely fair. What I hate is being dependent on them. I absolutely do function better with them in. I'm guessing I have 80-90 percent "normal" hearing when wearing them. So "yay!" I can watch tv or have a...
  31. vegasjon

    Tinnitus/Hypercusis Is Holding Me Back from Having a Normal Life

    @Christina I have not tried biofeedback or TRT. Maybe some day down the line. Yes -- they believe the otosclerosis damaged the hair cells and nerves, resulting in the T (and more). I would define my lifestyle -- in regard to risk of hearing damage -- as extremely conservative. I don't have a...
  32. vegasjon

    Tinnitus/Hypercusis Is Holding Me Back from Having a Normal Life

    @Christina The steroids were really for the fullness and pressure (shots and pills -- both helped a lot). I didn't notice much change with the T. Unfortunately, one really shouldn't rely on steroids if one can avoid it. The disruption caused by the fullness was so bad that I swore I'd be happy...
  33. vegasjon

    Tinnitus/Hypercusis Is Holding Me Back from Having a Normal Life

    Three years ago, I noticed the ringing. I tried some (snake oil) OTC drops. No help. In time, it got worse. Hyperacusis... Pulsatile tinnitus... Fullness/pressure... Hearing loss. I saw an ENT (he was useless), got an MRI (negative), saw another ENT who referred me to yet another ENT. Many moons...
  34. vegasjon

    Gave In; Getting Hearing Aids

    Hi all. I gave in today and was fitted for hearing aids. Can't get over feeling like it's giving up hope that things will ever get back to normal... and, yes, I fully concede vanity is in play, as well. I'm past three years now with T, had a right side stapedectomy last November, and have been...
  35. vegasjon

    How Long for Low-Sodium Diet to Work? (Or Does It?)

    Thanks to all. I'm trying to limit my sodium intake to 1,500 mg/day (closer to 1,000, when possible). When I actually assessed what I was eating, I estimate my daily intake was probably 3,000 on a "low salt" day and 4,000 or more on a "high" one. It was never an issue (so I thought) because I...
  36. vegasjon

    How Long for Low-Sodium Diet to Work? (Or Does It?)

    Hi all, I've mostly given up on getting rid of "the ring," but am desperately trying to manage the pressure/fullness from what the doc believes to be cochlear or endolymphatic hydrops. Background: I had a stapedectomy a year ago and it relieved me of many other horrible issues, but the awful...