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  1. orenge01

    It's unfortunate to get a bad roll of the universe's dice :grumpy:

    It's unfortunate to get a bad roll of the universe's dice :grumpy:
  2. orenge01

    That's the most "fun"/cruel part about this condition

    That's the most "fun"/cruel part about this condition
  3. orenge01

    Passed by an Ambulance with Sirens On — Now My Tinnitus Is Spiking

    I use earplugs, but they don’t seem to help me. Silicone ones are especially frustrating because they always fall out of my ears no matter what I do. It feels like I’m not only cursed with this condition but also with small ear canals that make it hard to get a proper fit with earplugs to...
  4. orenge01

    Exposed to loud ambulance siren again (which was right next to me). I'm so done with this...

    Exposed to loud ambulance siren again (which was right next to me). I'm so done with this condition. I'm so done with these possible worsenings always happening to me, it's so exhausting/tiring I can't catch a break. :(
  5. orenge01

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    @gameover, same here... Hopefully, yours will improve again. Mine has also gotten worse. This godforsaken condition is such an emotional roller coaster. Yes, I know the damage is cumulative. Yes, I know I should be careful. Yes, I know! But please, let me live my life. Why does it always have...
  6. orenge01

    It's gotten worse now I feel... Screaming 24/7 tinnitus in my ears now especially left ear for a...

    It's gotten worse now I feel... Screaming 24/7 tinnitus in my ears now especially left ear for a few days now. I really hope it calms down and goes back to it's initial baseline, it's hard to concentrate properly in this noise :(
  7. orenge01

    No need to be sorry, it's perfectly fine. I agree with what you said. It's an awful condition...

    No need to be sorry, it's perfectly fine. I agree with what you said. It's an awful condition, all we can do is keep waiting for a cure, and distracting ourselves from the noise. Even if you can hear it, not thinking about it is probably the best thing you can do :/
  8. orenge01

    I feel bad for you man. I wish you could find some relief from it, it truly is awful. :(

    I feel bad for you man. I wish you could find some relief from it, it truly is awful. :(
  9. orenge01

    @Juliane yeah I wouldn't say they are very comfortable either but I trust them at least to stay...

    @Juliane yeah I wouldn't say they are very comfortable either but I trust them at least to stay on my ears securely, compared to earplugs :/
  10. orenge01

    It's 24/7. It's more reactive than anything. It's most noticeable with background noises...

    It's 24/7. It's more reactive than anything. It's most noticeable with background noises. There's a lot of whistling morse code. But then I also have the typical "eeeee" sound. It varies but, I'd say it might be hovering between level 3-5/10 so moderately noticable. Sometimes it can suddenly...
  11. orenge01

    The effects of these conditions seem downplayed. I don't feel it's talked about, taken seriously...

    The effects of these conditions seem downplayed. I don't feel it's talked about, taken seriously enough because, I mean the damage is permanent ffs. Most docs are like just learn to live with it. Not so helpful advice. I guess only those who have it actually know the severity of it. The true...
  12. orenge01

    Man. It's just exhausting. It always seems to be: worry/stress about other stuff + this...

    Man. It's just exhausting. It always seems to be: worry/stress about other stuff + this condition. The fucking cherry on top.
  13. orenge01

    Hey thanks for asking! My ears are ok I guess no drastic changes that I've noticed. It's always...

    Hey thanks for asking! My ears are ok I guess no drastic changes that I've noticed. It's always a bit stressful though going outside. Especially because of the problem I mentioned earlier :/
  14. orenge01

    Quite a rowdy day, was around a lot of noise unfortunately, very close to some loud construction...

    Quite a rowdy day, was around a lot of noise unfortunately, very close to some loud construction site. I had earplugs but yeah, constantly having to adjust them so they sit correctly is definitely a problem... Kind of debating if I should go back to the simple foam ones, at least they stay in my...
  15. orenge01

    Tinnitus Ramps Up in Hearing Protection

    Yes, it’s quite a dilemma. I think the most practical approach is to use ear protection when necessary, but not all the time. For instance, if you know you’ll be in loud environments, it’s a good idea to wear it. Similarly, if there is a chance of unexpected loud noises, using ear protection...
  16. orenge01

    Noise Sensitivity, Ear Fullness, Ear Pain, and Tinnitus After Shooting a 9mm at an Indoor Gun Range

    Hi, welcome! I am sorry to hear that you have found yourself here and are now dealing with this condition. You are already doing a great job by keeping digital volumes low and avoiding headphones. That is an excellent start. Remember to also take regular breaks from listening, even if the...
  17. orenge01

    Tinnitus from One Loud Piano-Rock Concert

    I think we might have a similar experience with tinnitus. The first year is especially challenging and can feel like absolute hell, but it should improve over time. As for flying, it might be okay, but be sure to bring foam earplugs just in case. Wishing you the best of luck!
  18. orenge01

    Tinnitus from One Loud Piano-Rock Concert

    Welcome! I am sorry to hear that you have developed this condition as well. For now, I recommend avoiding headphones entirely. However, if you absolutely must use them (like me, since I cannot live without music), make sure to keep the volume extremely low. Personally, I use about 2 percent...
  19. orenge01

    At least I have my peltors, but I don't really want to wear them in public.

    At least I have my peltors, but I don't really want to wear them in public.
  20. orenge01

    Do You Have a Problem with Misophonia, and If So, Which Sounds?

    Yep, I do that too, but not in public. It’s embarrassing, but it’s my genuine, unfiltered reaction. I also can’t stand high-pitched laughter or happy screeching. It doesn’t matter whether the person is happy or sad—the high-pitched noises are just so annoying.
  21. orenge01

    @trevl That's my problem, those are really expensive... Maybe someday but I can't afford that...

    @trevl That's my problem, those are really expensive... Maybe someday but I can't afford that right now. :/
  22. orenge01

    Do You Have a Problem with Misophonia, and If So, Which Sounds?

    Yep, crying babies are a trigger for me too, and screeching children in general—it’s so annoying! :/
  23. orenge01

    @weehiru Yeah I've heard of them but, I've also heard people thought they were uncomfortable so...

    @weehiru Yeah I've heard of them but, I've also heard people thought they were uncomfortable so I don't know if I will be able to wear them for a long commute. But maybe I should still give them a try, it's at least cheaper than buying custom earplugs from an audiologist.
  24. orenge01

    I feel that. I do it anyway on low volumes like extremely low volumes. And it's ok I know people...

    I feel that. I do it anyway on low volumes like extremely low volumes. And it's ok I know people don't recommend it, but I can't live without audio it just doesn't compute with me. :/
  25. orenge01

    @delta784 My sound distortions are a bit better now thanks for asking, or at least I'm not...

    @delta784 My sound distortions are a bit better now thanks for asking, or at least I'm not noticing them so much I mean they are always there but now they are less noticeable.
  26. orenge01

    Earplugs keep falling out of my ears :/ idk if this is even viable, I might have to try...

    Earplugs keep falling out of my ears :/ idk if this is even viable, I might have to try different tip sizes. Kinda nervous to do that though since last time I went one size higher and it felt uncomfortable but might be because I didn't insert it correctly idk. This is annoying.
  27. orenge01

    @Soldin That's awesome! Glad to hear that! :)

    @Soldin That's awesome! Glad to hear that! :)
  28. orenge01

    @delta784 Relatable. Hopefully it settles down soon for you.

    @delta784 Relatable. Hopefully it settles down soon for you.
  29. orenge01

    @delta784 Unfortunately not. :( I wish it was. We just have to adapt and wait for a cure. It's...

    @delta784 Unfortunately not. :( I wish it was. We just have to adapt and wait for a cure. It's all we can do. :/
  30. orenge01

    @delta784 Doing a bit better I guess. I feel for you, that really sucks. I have morse code T...

    @delta784 Doing a bit better I guess. I feel for you, that really sucks. I have morse code T, I've had it since the T first started, hope yours goes away. Also trying to protect myself but it's hard, no earplugs like my small ear canals. They pop out off my ears and Idk, I've also read it's bad...
  31. orenge01

    @kingsfan I know that's what sucks. I wish I could change the past so bad.

    @kingsfan I know that's what sucks. I wish I could change the past so bad.
  32. orenge01

    I wish I could go back to my previous baseline so bad now... :(

    I wish I could go back to my previous baseline so bad now... :(
  33. orenge01

    Tinnitus After Shooting a 12 Gauge with Improper Hearing Protection

    If you really want to go to the festival and take the risk, at least bring double hearing protection—earmuffs plus earplugs underneath—just to be safe.
  34. orenge01

    Same, I immediately stop what I'm doing when it happens. Like "Ok, ok. Yes I hear you loud and...

    Same, I immediately stop what I'm doing when it happens. Like "Ok, ok. Yes I hear you loud and clear, calm down now."
  35. orenge01

    Isn't it awesome to get blasted with literally every sound like the whole day. Totally didn't...

    Isn't it awesome to get blasted with literally every sound like the whole day. Totally didn't happen to me today, even with earplugs, holy shit, you can't make this shitty luck up...
  36. orenge01

    This hits deep. Because it's so true :(

    This hits deep. Because it's so true :(
  37. orenge01

    @L along the way same it's exhausting it's affecting my sleep now too, constant blaring sound...

    @L along the way same it's exhausting it's affecting my sleep now too, constant blaring sound. It was better even a few months ago, it was bearable but now it's screaming constantly :/
  38. orenge01

    You're not a doofus for protecting your hearing 🙃 although it might look that way to other...

    You're not a doofus for protecting your hearing 🙃 although it might look that way to other people, who aren't suffering with this condition. :/
  39. orenge01

    Seems like I'm fine. Gotta be more careful next time, I seem to lose my balance quite easily...

    Seems like I'm fine. Gotta be more careful next time, I seem to lose my balance quite easily...
  40. orenge01

    I just fell on the stairs and hit my head... Just my luck... Hopefully nothing changed and...

    I just fell on the stairs and hit my head... Just my luck... Hopefully nothing changed and things are normal. I hope
  41. orenge01

    Hyperacusis and Tinnitus Following Acoustic Shock: How Can I Continue My Life?

    Personally, I haven't had songs get stuck in my head, but I sometimes experience lingering noises, especially if they sound like tinnitus. They can stay in my head for quite a while. Auditory hallucinations really suck. :( I wish you the best, and hopefully, it improves for you.
  42. orenge01

    I feel you man. :/ hopefully it gets better for you

    I feel you man. :/ hopefully it gets better for you
  43. orenge01

    Hope you're doing well man, from one Finnish guy to another.

    Hope you're doing well man, from one Finnish guy to another.
  44. orenge01

    permanent spike...

    permanent spike...
  45. orenge01

    Same thing happened to me a couple weeks ago. I was making music, accidentally put my headphones...

    Same thing happened to me a couple weeks ago. I was making music, accidentally put my headphones on as they were at 100% volume, it caused a spike as it was right on a build up of the song with white noise building up in volume with a lot of high frequencies. Not fun. I think it caused perma...
  46. orenge01

    Well as long as it didn't cause a spike...

    Well as long as it didn't cause a spike...
  47. orenge01

    Can I Use Headphones with Unilateral Tinnitus?

    I’d say it’s safe, but make sure to take frequent breaks—a lot of breaks. And keep the volume very low. I personally use 4% volume on Windows. The longer you listen, the higher the risk, so avoid any 10+ hour binges like I, unfortunately, have done.
  48. orenge01

    no pain anymore it was probably something else causing that, but the ringing still persists in...

    no pain anymore it was probably something else causing that, but the ringing still persists in my left ear. Very loud. :/
  49. orenge01

    My Hyperacusis Is Cured & I Barely Have Tinnitus Anymore

    I hope I can reach that point too. As a musician, navigating this condition has been nothing short of awful. :(
  50. orenge01

    I have actual pain in my left ear as well and both ears have loud tinnitus what have I done?... :(

    I have actual pain in my left ear as well and both ears have loud tinnitus what have I done?... :(
  51. orenge01

    Pre-Existing Hearing Loss/Tinnitus: Are the Ears More Delicate and Susceptible to Further Damage?

    Custom-made as well. Wow, that sucks. :( I was thinking about getting custom-made earplugs, but if the risk still exists like this, then I don't know if it's worth it. I mean, they aren't exactly cheap...
  52. orenge01

    Tinnitus in Left Ear Caused by Anxiety

    It's a shame it's a cumulative condition. I wish it could improve more than just worsen. I wish you and everyone the best of luck as well. My luck has been awful :(
  53. orenge01

    Pre-Existing Hearing Loss/Tinnitus: Are the Ears More Delicate and Susceptible to Further Damage?

    That's understandable and makes sense. Hopefully it improves for you soon. Setbacks are always a pain.
  54. orenge01

    Pre-Existing Hearing Loss/Tinnitus: Are the Ears More Delicate and Susceptible to Further Damage?

    I agree, but it truly is a shame having to give up music events like this. :/
  55. orenge01

    Desperate Cry for Help: Severe Tinnitus After Going to Bar with Loud Music

    That sounds like mine, it's like a whistling tone that intrudes all of the sounds, right?
  56. orenge01

    I think my T's volume baseline has increased a lot as well. I'm so frustrated...

    I think my T's volume baseline has increased a lot as well. I'm so frustrated...
  57. orenge01

    @snizzleberry I don't know how to explain it but I guess it's that I don't hear some frequencies...

    @snizzleberry I don't know how to explain it but I guess it's that I don't hear some frequencies anymore. So some songs sound like less lively than before. As I can't hear every element in the song. How this happened? I was making music for too long at low volume but then accidentally listened...
  58. orenge01

    Reactive Tinnitus and Sound Distortions: How to Move Forward?

    That truly sounds like a pain. :( For me, it hasn’t changed into anything else. Occasionally, it mimics other sounds, but the loud whistling is always the main one. And yes, you’re probably right about stopping the research. It’s harder to habituate when you’re constantly reminding yourself of...
  59. orenge01

    That's completely understandable. It would be nice if it just one day went away and hearing was...

    That's completely understandable. It would be nice if it just one day went away and hearing was restored completely back to normal. One can only dream. I think It's just the fact that you have to readapt at every next possible setback, so that gets really tiresome since it's a cumulative...
  60. orenge01

    I just realized some songs don't sound the same to me anymore they sound so different, I think I...

    I just realized some songs don't sound the same to me anymore they sound so different, I think I have actually officially permanently worsened my hearing. :(