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Progress Report Progress Report Date: Dec 11, 2014 Current Retigabine Dosage: 0 Current Side Effects: Left kidney pain, after interruption it is better and now is kidney ok. Right kidney was ok for all of retigabine time. Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: I...

Progress Report Progress Report Date: Dec 3, 2014 Current Retigabine Dosage: 300x300x200 mg Current Side Effects: none... but I feel right kidney from today - not pain, only very light pressure.. Maybe it isnt kidney. But Im thinking about reducing dosage back to 3x200 :( Sleepines after...

Good news: 15 minutes after 300mg pill and my tonal superstable 1180 Hz T is maybe a half quieter than before. I am feeling like after 2 bottles of beer :)) but i am glad, that 3x300mg dosagee of trobalt looks to be effective. But... we will see after week or two.

Progress Report Progress Report Date: Nov 26, 2014 Current Retigabine Dosage: 300x300x200 mg Current Side Effects: mild urinary retention (but very very mild... it is better than before those dosage) strong sleepiness after 30 minutes from taking a pill, after another 30 min it is ok...

Only side effect of Retigabine im afraid of is this about retinal degeneration after prolonged use

Progress Report Progress Report Date: Nov 18, 2014 Current Retigabine Dosage: 200mg + 200mg + 150mg evening before sleep Current Side Effects: very mild urinary retention, light sleepiness Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: Hissing is on very low level...

Progress Report Progress Report Date: Nov 6, 2014 Current Retigabine Dosage: 100mg 3x daily Current Side Effects: mild urinary retention Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: I was around one week without Trobalt, until i find good source of it. And I have...

Ok, from now i have complete set of trobalt boxes - 2x 200mgx84 and 2x 100mgx84. I can continue with this experiment :)

Looks like, that NO is antioxidant. http://www.ncbi.nlm.nih.gov/pubmed/11396476 It seems, damages caused by ED drug is only mechanical - thiny vessels rupture and then hypoxia of parts of inner ear tissues.

I read, than ED drugs can cause ear problems due to vasodilatation - if thiny blood vessels in inner ear arent in good condition, they can break. It is not due to chemical ototoxic, but physical... or not? (Increasing NO in blood) Anyway, they tested ED drug as a treatment for T. Unsuccesfully...

I think, tonal T needs bigger dosage and maybe longer time to take. Yes, my main problem is tonal T... Central T, wich disappears, was annoying only after physical exercise or jogging, when it was very loud for several hours. And hissing, yes, it was unpleasant too. But Tonal eeeeee is very...

Hello Friends. I know, this thread is little bit controversial :), but in my opinion, it is also important. So... have you, for example, good friend with Tinnitus, who has some experiences with those drugs? :cool: I have friend with T :cool: and he probably has psychological ED, his tool is not...

Hi, I can not, because from 26 august, when I began, I take min. 50mg 3x Daily. But after lowering dose from 100 or 150, central T and spikes has not return.

Progress Report Progress Report Date: Oct 14, 2014 Current Retigabine Dosage: 100mg 3x daily Current Side Effects: No side effects Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: Due to problems with trobalt source i was unable to lift dosage to 3x200mg etc... My body has...

Hello friends. I have to reduce dosage again. Reason is very simple - my trobalt source is bone-dry. I am sorry for that, looks like my part of those experiment will go little bit slower than others :meh:. But im thinking positive. In worst case, i will restart it. I am now on 100mg 3x daily...

Acoustic Trauma: You need medical treatment. Go to ENT. 3 weeks are too late for prednisone, but try it. And for sure: take NAC(600mg 3x per day) http://www.ncbi.nlm.nih.gov/pubmed/24396768 and you need vitamines: A, E, C, zinc, magnesium. Habituation is naturall process of most of us, but...

I change dosing from 3x100 to 2x150 and 100(late evening). But only from today and i have to find another source of trobalt, because doc wouldnt prescribe me it more. But month on 3x100mg dose - nothing gorgeous happened, except: Central T, wich is a lot of quieter and sometimes it disappears...

Yes. I wear earplugs when i ride a car. Road noises and low freq. tyre noises are very unpleasant for my H without plugs. After 10 min of wearing my T is 2-3x louder than without earplugs and stay on high volume around 1 hour after I remove those plugs. Gentle volumed white noise in headphones...

- exactly (y) 300x3? I forgot :D Anyway, I am curious how his T is now, because he has some problems with spikes. Yes, i am bigger and heavier than Ch78 ( i estimate his weight from photo to 70-75 kg ). No weight gain from retigabine, I have 10kg overweight because I like chocolate :cool::p

Try drop it from 200 to 150. I am still on 100, and i feel very mild amnesia, nothing horrible. But my bodyweight is probably higher - 95Kg (209 pounds) And how about your T?

Hudson: Even 50mg entry dosage was relatively effective against hissing. But my tonal T, mainly 1180Hz tone in left is very stable and more intrusive, than other T tones what i have. This eeeeeeee sound is very unpleasant. If it disappears, i will be able to restart my existence :)

Progress Report Progress Report Date: Sep 22, 2014 Current Retigabine Dosage: 100mg 3x daily Current Side Effects: No side effects Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: It is almost month, Im taking retigabine. I can prove, that hissing is lower (30-50%) and it...

You have damaged hair cells for sure. Protect your hearing in future and avoid loud festivals and pubs, or wear effective protection. Take NAC, Magnesium, zinc, and vitamines C, E, A for prevention.

No, serie 1198

05 - 2015

My only side effect was mild problem with bladder, but after week it disappeared.

Hengist: How is your dosage? Looks like your T is still in acute phase, it may be more reactive than in chronic cases. But Christian78 with his chronic T has very good and very bad days too. For me (3x100mg now) it is not very effective, but for example, today i have quiet niece day. And spikes...

Yes, my H is slightly better. But Im still on low dosage.

Zimichael: Im very curious for efficiency of Potiga on superchronic T. Good luck and dont forget reporting. (y):cool:

You had similar condition once. It is strange.

Progress Report Progress Report Date: Sep 14, 2014 Current Retigabine Dosage: back to 100mg 3x daily Current Side Effects: no side effects Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: From monday 8sept to friday 12sept i was on 200mg 3x daily. After those 4 days I had to...

Viking: But retigabine give hope to you. Aut00063 will be without those side effects and help you for sure.

Progress Report Progress Report Date: 8 September 2014 Current Retigabine Dosage: 200mg 3x daily Current Side Effects: No side effects, bladder is now ok. Current Tinnitus Severity: 5 out of 10 Changes in Tinnitus: From today i start 200mg dosage. 100mg 3x daily is same effective asi...

Too early to say. I have chronic T and Im on low doses of retigabine only few days.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3683764/ - there is this sentence: Retigabine does not affect temporal processing or hearing, because it did not affect PPI or hearing thresholds

Report: Hello :cat:. I was on 3x50 entry dosage from 26 august to 2 september.(From 3 september i am at 100mg dosage) My report: 50mg dosage is nearly ineffective, except central T and hissing. Central T is quieter 30%-50% and hissing is still here, but it is more soft and less intrusive. :)...

Progress Report Progress Report Date: 3 September 2014 Current Retigabine Dosage: 100mg 3x daily Current Side Effects: Mild pressure in bladder, but after week it improves very good. No other side effects. Current Tinnitus Severity: 6 out of 10 Changes in Tinnitus: Hissing little bit...

@Christian78 , how long do you want take Trobalt?

Progress Report Progress Report Date: 1 September 2014 Current Retigabine Dosage: 50 mg Current Side Effects: Mild pressure in the bladder, but it slowly disappears. Current Tinnitus Severity: 6 out of 10 Changes in Tinnitus: White noise type hissing is little bit softer and less intrusive...

My T is acoustic trauma induced. For 1000% sure.

New User Information Gender: Male Age: 35 How Long Have You Suffered From Tinnitus? (Date of Onset): 07 June 2012 How Did You Get Tinnitus?: Acoustic Trauma Explain How You Got Tinnitus: In concrete garage, my former friend starts his superloud motorcycle without mufflers ( i didnt...

I am 5th day on entry level dose 50mg 3x per day. White noise type hissing little bit softer than before. Tones in both ears without changes. BUT - central - head T wich i have too is maybe 50% quieter than before. I think it is not placebo effect. I was jogging yesterday and always after it...

Magnesium and NAC helps a lot against H. And white or pink noise on gently level.

NAC everyday and maybe round of prednisone. And Magnesium can help a lot. Avoid of too much calcium in supplements. Too much calcium may make T worse. But remember, with natural calcium (cheese, milk, meat) you can not overdose.

Read threads about aut00063, retigabine, am-101 and you will feel most better.

Yes, riding motorbike fast is dangerous for ears due to wind noise. http://www.hearingtestlabs.com/motorcycle.htm Wind noise 65mph - 103 dB SPL - by the way, this is the reason, why birds needs regeneration of their hair cells.

This is what Im afraid of. :eek: :bored: o_O :blackeye: :sour: :depressed: :nailbiting: :banghead: Viking, was your T worse after you stop taking Trobalt, than before you begin taking it?

All of those stuff I take for very long time and it didnt help me with T (maybe a little bit, but not significantly). NAC and vitamines for prevention, melatonin for better sleeping. My T is very stable. Only supplement what is new is Trobalt and Lutein to help prevent retina changes. Dont...

But if you REPAIR damaged cell metabolism instead destroying it, maybe you will repair its function and improve hearing. Of course, not at - before acoustic trauma level, because missing stereocilia. This looks like better option :)

My friend is a woman, her friend Dr is woman and the Dr friend neurologist is a man. I have it trough 3 people.

Finally trough Dr, but he is friend of my good friend (woman, but not girlfriend) :)

I am very curious about one very stable tone 1180Hz Tomorrow morning i go to my eye doctor.

Ok. I have two boxes of Trobalt. 21x50mg and 84x100mg. From now (15.00 Paris time) i decided to join experimental group. first week 3x50mg, the second one 100mg. I dont know yet, if i increase dosage to 150 or 200mg. I take per day: A vit 6000iu, E vit 400iu, C vit 1000mg, Zinc citrate 25mg...

Compensation of missing signal? Oh yes, i read about it many times, but i dont believe this. Is there some reason to compensate it? No. Another unproven theory (shit). Tinnitus is an issue, not mechanism to repair (in this reason by compensation) some damage. ;)

In Slovakia (Trobalt): 100 mg x 84 pills 37€ (approx. $49) 200 mg x 84 pills 70€ (approx. $93) 300 mg x 84 pills 103€ (approx. $136)

What if Tsufferer stops retigabine? Not suddenly of course. Will T return back? Can it be even worse than before retigabine experiment? What do you think about it?

Chris78, Mpt, how are you? Some good news?

Try to take NAC with antibiotics, it can be good protection against ototoxicity.

There isn't any difference between noise damaged and virus damaged hair cells in the inner ear. Be careful in noisy enviroment and wear protection.

How is your T today?