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  1. D

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    In Meniere's, there is usually inflammation in the cochlea due to the hydrops that cause its membranes to expand and then break, etc. That causes irreversible damage that stays even when the inflammation goes away. That's probably what happens with most tinnitus—some kind of event causes damage...
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    Vibrating Sensation in Ear Triggered by Certain Sounds?

    Yeah, it is Tonic Tensor Tympani Syndrome (TTTS). I developed it a month or two after developing tinnitus from an unknown cause three years ago. I don't think it can get any worse than what you describe, but unfortunately, there is not much you can do to fix it other than avoiding the sounds...
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    When I get a low-ish pitch (~500 Hz) one, it sometimes does a pitch fall or a slight up and down...

    When I get a low-ish pitch (~500 Hz) one, it sometimes does a pitch fall or a slight up and down movement.
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    Is a Sudden Increase in Transient Ear Noise Cause for Concern?

    Since the start of my permanent mild tinnitus (+ several other ear issues like TTTS, MEM, etc.) 3 years ago, I have had a lot of SBUTTs. Like A LOT. I remember in my previous non-tinnitus life, I maybe had like 1-2 SBUTTs in a whole year. Now I mostly get SBUTTs a few times a week, many times a...
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    Sensorion, the Specialist in Inner Ear Diseases, to Start Human Clinical Trial Phase

    Not much of a "Specialist in Inner Ear Diseases" after all, since they haven't done anything for the inner ear after 9 years, lol.
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    Increased Tinnitus When Typing on a Keyboard

    As it was said above, this sounds like TTTS where some muscle (tympani tensor or stapedius muscle) in your ear flutters/spasms/thumps when the ear receives a short/clicky/high-pitched/unexpected sound. It also usually happens with kitchen stuff, light knobs, but also with human, especially...
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    Search for BFS syndrome if you don't know it already. Are your spasms triggered by yawns/burps...

    Search for BFS syndrome if you don't know it already. Are your spasms triggered by yawns/burps too? Another terrible condition that nothing can be done for effectively.
  8. D

    I Invented a Sound That Knocked Out My Tinnitus

    Yeah... no. He is right about female voices, because he said their HARMONICS, which means the higher frequencies that are multiples above the fundamental tone, which of course is at the low frequency range 100-300 Hz or something and that's the main pitch. I don't know about 17 kHz, but human...
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    TTTS as in spasms reacting to external noise? I have that too, but my plague is actually MEM...

    TTTS as in spasms reacting to external noise? I have that too, but my plague is actually MEM which is spontaneous spasms' episodes lasting for hours at a time... Scared it'll never go away as well. Hope the new year help us!
  10. D

    Each person is different though, and no two people will have the same tinnitus. Wish you are...

    Each person is different though, and no two people will have the same tinnitus. Wish you are better soon.
  11. D

    I'm not in a position to know about your situation of course, but have you thought that the...

    I'm not in a position to know about your situation of course, but have you thought that the hearing protection may have caused the spike? I mean some people spike to external noise (seems I don't), but several times I have spiked from hearing protection maybe from not letting enough auditory...
  12. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    This more or less happens with me as well, at least for my tonal sounds which can't be modulated with jaw/neck movements. And meanwhile, residual inhibition doesn't work at all for my white noise tone which CAN be modulated by clenching my jaw/stetching my neck. What a freaking mess tinnitus is.
  13. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    It's 99% certain that they won't have a clue who that is lol.
  14. D

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    So, any comment (by anyone) on these results? Doesn't look all that good from some number reading I did?
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    For reference, my T is idiopathic and doesn't spike to outside noise. And I also get periods...

    For reference, my T is idiopathic and doesn't spike to outside noise. And I also get periods where I get many many SBUTT's (with loud tones appearing for seconds).
  16. D

    My spikes usually last 1-3 days 1 or 2 times per month and come about randomly. In a sense that...

    My spikes usually last 1-3 days 1 or 2 times per month and come about randomly. In a sense that the regular tones of my mild tinnitus (an air exhaust sound in my left ear and a group of mid tones in both ears) get amped up and become more noticeable. They come back to normal after the night's...
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    You should do what feels best. I haven't used 24/7 earplugs, only for limited periods, but...

    You should do what feels best. I haven't used 24/7 earplugs, only for limited periods, but sometimes I notice a spike - an actual increase of a white noise tone I got which goes away after I expose to sound for a bit. Possibly due to reduced auditory input. But that doesn't always happen, so I...
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    Oral Gabapentin and Intradermal Injection of Lidocaine: A Role for the Treatment of Tinnitus?

    Did any of those injections have any lasting effects? Did they improve the hearing loss or tinnitus?
  19. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    Yeah well, it's not 100% preventable. I don't want to be that guy, but I think more than 50% of the people with tinnitus, got it suddenly for seemingly no reason (or ear diseases that develop unknowningly). And that's way worse because with a specific noise trauma, at least you know the reason...
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    Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus

    It's surprising how willing and approachable he was, in comparison to many other researchers. This does have the potential to be a big thing for many with ear problems. If you still have a room for a question, that would be: Have they thought if their device could help with any other symptoms...
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    @4alien2 Sorry to hijack the thread, but do you have, by any chance, ear spasms (TTTS or MEM)...

    @4alien2 Sorry to hijack the thread, but do you have, by any chance, ear spasms (TTTS or MEM) related to eustachian tube dysfunction? Which were the tests you had? I read from a post that you have a muscle malfunction, so I thought I'd ask. My problem is spasms and Magnesium has done zero...
  22. D

    @RunningMan Yeah, MEM episodes thankfully stop after some time. The first few months for me...

    @RunningMan Yeah, MEM episodes thankfully stop after some time. The first few months for me, there were times I had it for 4-7 hours - 1-2 times a week. But now it usually happens for 1-2 hours 3-5 times a week. It also shifted from hiccups to yawning triggering it. I don't know if it's an...
  23. D

    On top of that, I developed MEM, which is spontaneous thumps every few seconds lasting for hours...

    On top of that, I developed MEM, which is spontaneous thumps every few seconds lasting for hours in one ear. That crap usually gets triggered by yawning, hiccups etc or randomly and that happens nearly every day for 1-2 hours. Just when I managed to overcome T and TTTS and their anxiety, this...
  24. D

    I appreciate your effort to give insight about TTTS. Unfortunately, there are cases where...

    I appreciate your effort to give insight about TTTS. Unfortunately, there are cases where anxiety plays minimal to no role. My TTTS has persisted for 2,5 years with its ups and downs, most prominently in quiet settings and reacting to short sounds (kitchenware, scratching my face etc). For many...
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    NUEYNE-T100 Tinnitus Device Combines Vagus Nerve Stimulation and Sound Therapy

    Judging by its name and its use of the word "neuroplasticity", it looks like it's just another Lenire.
  26. D

    Acousia Therapeutics

    I'm confused, do they investigate the drug only for Cisplatin induced hearing loss as this article says? I read some of the previous threads and I got the impression that the drug was developed to treat hearing loss in general. Maybe I'm wrong. Kind of a bummer if they narrowed it down to only...
  27. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    I don't think they would care to learn about it. They are okay with what they currently showcase - CBT, sound "therapy" and other yoga crap.
  28. D

    I call bs. I'm always getting hit by the most brutal spikes, biggest fleeting tones and...

    I call bs. I'm always getting hit by the most brutal spikes, biggest fleeting tones and spasms/MEM episodes when I am happy and calm (doing cool stuff for me like my art), having almost habituated. And of course discrupting my habituation. No connection of T with emotional state, ears/brain are...
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    Is Cortexi a Scam or Can It Help Tinnitus? → Share Your Experience

    Sorry to say, but nothing works 99,999% of the time. If they insist on the opposite, it's a scam. The only stuff that will maybe (highly unlikely) do something to lower tinnitus are medication like Prednisone (for acute trauma), Betahistine (if you have cochlear hydrops) and probably a cocktail...
  30. D

    Insist on doing manual removal with a curette. It is probably the safest method and usually...

    Insist on doing manual removal with a curette. It is probably the safest method and usually takes even less time than other ones.
  31. D

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I totally agree with your points. One must also consider that their improvement could be from natural remission of Ménière''s disease. But as I understand, from what I have read and my own experience/symptoms, in some cases the cause of tinnitus might as well be hydrops, especially if you are in...
  32. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    Most of us here know pretty well that shit can go downhill on their own without any cause/reason, when you are just chilling around. And then try to investigate why, suspecting whatever happened to you the last few days. So, yeah...
  33. D

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I'm trying to make sense out of the results, but I still can't lol. It seems more people got benefit in hearing loss and WiN tests than those who did not? Does the drug look beneficial in some people at least?
  34. D

    You noticed no effect because it just doesn't do anything for us. I've tried many forms...

    You noticed no effect because it just doesn't do anything for us. I've tried many forms: chloride, oxide, glycinate, citrate, on various doses, on and off for periods and didn't have any effect on any of my ear problems (T, fullness, TTTS, MEM).
  35. D

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    So, the drug is a failure? I'm surprised this isn't discussed more? I don't quite understand the results from that page, but maybe someone can explain it here.
  36. D

    They simply haven't submitted it for whatever reason.

    They simply haven't submitted it for whatever reason.
  37. D

    Loud Tone for a Few Seconds — Fleeting / Transient Spontaneous Tinnitus

    I generally have frequent SBUTT episodes since my permanent mild tinnitus onset 2 years ago, many more than in my previous non-tinnitus life. Sometimes a few times a week, or a few times a month, but sometimes many times a week. Once or twice a day usually, lasting 5-20 seconds, with or without...
  38. D

    Constructing a (Nice) Amateur-Grade Music Studio with Chronic Tinnitus and Relevant Considerations

    Yeah of course, there are people out there like that but I don't blame them, sound design by itself is an addicting thing, even more so with analog gear. With the exception the latter needs hundreds, if not thousands of $$$ to build a decent chain. I was shocked when I first saw how much you...
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    Constructing a (Nice) Amateur-Grade Music Studio with Chronic Tinnitus and Relevant Considerations

    Very cool and informative post my friend! I think you included everything someone needs to know if they want to take up music production of any kind. I too am a music producer and I found it a really good read. If it wasn't for music production (mostly electronic stuff), I would probably have...
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    Tinnitus from Using Headphones at the Gym: What Can I Do for Some Relief?

    At least your custom earplugs fit right? For some reason, my guy told me to bite my hand while he was doing it. I haven't seen that in any of the custom earplugs videos. I think that was the reason that the model sucked and I can't put them without pain (so I don't use them at all). I should...
  41. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    About my TTTS (the reaction type), it is more or less the same as it was when it began 2 years ago along with my tinnitus. However, it has its good and bad periods where it will decide not to spasm every time with those sounds you described. But as I said above, I pretty much habituated to it...
  42. D

    Tinnitus from Using Headphones at the Gym: What Can I Do for Some Relief?

    Here's how they do it: They push stuff inside the ear canal, and if you have sensitive ears, you can get a lot of pain and irritation. Also, the feeling that something might get stuck there and cause even more damage. Maybe it was just me or the guy who did them for me sucked, but the whole...
  43. D

    Tinnitus from Using Headphones at the Gym: What Can I Do for Some Relief?

    Both can do I guess. I personally used musician's earplugs for ages (even before tinnitus) at playing concerts, bars, clubs etc, and they were just fine - no damage whatsoever. When I first got tinnitus, I went and built custom earplugs, they didn't quite fit when they delivered them to me, and...
  44. D

    Tinnitus from Using Headphones at the Gym: What Can I Do for Some Relief?

    BS. You can wear hearing protection wherever you feel things are (or about to be) loud. With time and caution, you will learn by yourself, if or how external sounds affect your tinnitus. There are people around here who listened to that advice and got screwed up. Until you find out and you're...
  45. D

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    Alright, thanks for your report! That explains a lot about that Myriam woman... It is apparent that no one is an expert for these conditions. Literally no one on this Earth. I really can't think of ailments that are more untouched by medical science than ear stuff. I think that if you don't...
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    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    Ah, I see. Thanks for replying. I understand the others, but I'm not sure how the buzzing oscillating tinnitus noise could be caused by the muscle(s) that cause TTTS. As very correctly a poster here said, those sounds are usually rumbling. Anyway, it sucks whatever it is. Yeah, supposedly there...
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    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    This crap is weird as hell. You just can't find any logic to it, can you? I'm familiar to this though. My left ear too is fluttering in reaction to some voices, especially women voices, and I need to be in a quiet setting and the voice being directed towards the ear, or else there is no...
  48. D

    My Life-Ending Tinnitus Started After Sinus Infection

    Sorry to hear you're going through that kind of crap. No one deserves such an ailment. I've got a question though. How did they decide on the Middle Ear Myoclonus (MEM) diagnosis? Do you have thumping/fluttering/spasming in the ear? Sorry if you mentioned it in the above conversation and I...
  49. D

    Hearing Loss and Severe Tinnitus — From Loving Life to Suicidal in 2 Months

    I don't want to hijack the thread, but this kind of relates to me. I read your cause of tinnitus as "Acoustic Trauma", but was there a definitive noise incident? I have also read about Myriam Westcott from some TTTS/MEM threads. I happen to have similar symptoms for 2 years since it all began...
  50. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    I think I know which clicking sound you're talking about because it happens to me too. It's a one-time click in my left ear that happens completely randomly (more frequently since my tinnitus and all other shit started) and feels/sounds similar to the cracks my Eustachian tubes do when I...
  51. D

    New University of Michigan Tinnitus Discovery — Signal Timing

    I've read many people experience some kind of weird noise in silence that they don't even register as tinnitus and really I don't know what that is, but many other people, including me, were experiencing true silence. Nothing, nada. I still remember sitting still and quietly in my living room...
  52. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    Ah, that's tough. There seems to be a pattern with the sporadic thumps every 20 seconds because I've read that in some people's experiences over the internet, too. It also sucks that it seems to be triggered by random movements, or completely randomly (the latter seems to be happening to me...
  53. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    I'm doing somewhat similarly. For example, it didn't happen at all for like 4-5 days in succession and then I had it when I woke up (I don't know if it was happening when I was asleep) and it continued for 3 hours - 1-2 thumps per 10-20 seconds, right ear. Then it stopped for the whole day, and...
  54. D

    Tonic Tensor Tympani Syndrome (TTTS): Some Success with Chiropractic Treatment Followed by New Issue

    Ahh, I'm in the opposite situation. First of all, I didn't have any trauma or infection, I believe my tinnitus and TTTS is idiopathic/inherited most probably. I've been having the usual TTTS reacting to short, clicky sounds, kitchenware, some vowels, scratching my face, ending a sentence etc in...
  55. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    Just an update. I still have this crap. These spasms/thumps in the right ear can start after an internal burp or yawn or randomly. I have it now as I'm writing this, happening once every 5-10 seconds. I tried to cut off coffee which I started drinking everyday for the past few months (after...
  56. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    Yeah it sucks so much. Even though I'm much less anxious about it (compared to the first times) since I know it will stop eventually, it's still very distracting while doing things. My worst enemy now is the burps or hiccups, so I try to relieve them by swallowing the air at my throat and...
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    My Chronic Tinnitus Has Suddenly Worsened — Is Nicotine the Culprit?

    I'm sorry for what's happening to you, I hope things get better soon. I don't know anything particular about nicotine, but one thing that is certain is that tinnitus is probably one of the most unpredictable conditions in the world. Don't be too fast to blame one thing or another, because it...
  58. D

    Inner Ear Drug Delivery Method Discovered — Cerebrospinal Fluid Transport

    Another "potential" discovery. We will know in 10 years' time at best.
  59. D

    That was funny lol. But it still can get all kinds of evil with multiple sounds and different...

    That was funny lol. But it still can get all kinds of evil with multiple sounds and different locations all around the head.
  60. D

    Random Onset of New Kind of Ear Spasms / TTTS — Any Suggestions?

    The last few days I've been having a new kind of annoying spasms that many of you are familiar with. I'm not new to TTTS, as I've been having it for around 2 years now (since my tinnitus onset), but this is something new. I have got used to my normal TTTS in both ears, as it's triggered in...