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If I recall correctly, the main symptoms that indicated I would be a good candidate for their treatment were that my tinnitus was fluctuating and reactive. I did not end up trying the Nortriptyline/Topamax protocol, but I did follow—and continue to follow—the nutraceutical protocol. For what...

Hi @lillieg, I hope you are doing well! I read your other post about your symptoms, and ultimately, I think you should do what you feel most comfortable with. Personally, if you can tolerate going to your boutique fitness studio and you get a lot out of it, I'd keep going, especially if it...

Hi all, I wanted to share a follow up to my previous success story. About six months ago, my tinnitus worsened significantly after attending a concert. In hindsight, I believe it was a combination of factors leading up to that unprotected concert: a weekend of loud networking events, coupled...

Happy (USA) Thanksgiving, TT community! Learned from my dad today he has had tinnitus for several years and his got worse from Covid. Sure would have been nice to know from him several years ago 😂. Nice to have a family member who knows what it’s like, though.

I took this year’s flu and Covid boosters on Thursday afternoon. My tinnitus was spiked a bit Thursday night and Friday, but today (Saturday) it is back to my baseline. I’m grateful for health care that protects me from getting seriously ill from viruses!

Six months since my tinnitus worsening, plus ten years since joining Tinnitus Talk. Grateful that my tinnitus has become less intrusive since worsening, and grateful for the wonderful people and great community here!

Went to a Timberwolves game and stayed for the whole thing for the first time in months. Wore heavy duty plugs, didn't have any serious after-effects. Feels good.

Hey @ErikaS! The one I take daily is from FullScript, which is the store NeuroMed provides a discount to (image attached). I take two capsules daily. The key for me is two, which seems to be OK without upsetting my stomach. It is not labeled here on the picture, but each capsule is 240 mg...

In my earlier post in this thread, I summed up what I followed for the first couple of months in the protocol. I definitely did make dietary changes for the first couple of months, followed the recommended supplement protocol for about the recommended period before starting to feel better, and...

I haven’t been doing anything particularly new over the last couple of months. I made some dietary changes over the summer but have mostly discontinued those. I realized that any potential benefits from changes, like skipping my morning coffee, were far outweighed by the enjoyment I get from it...

Hey there! So I never started on any of the Nortriptyline/Topamax and I've over the past couple of weeks stopped on the CoQ10 and Riboflaven. I haven't experienced any really troubling tinnitus symptoms now since early-to-mid August. I am not sure if I can attribute that to the nutriceuticals...

Looking forward to watching the 2-0 Minnesota Vikings on streaming tomorrow while I shuttle my kids around town and avoid loud noises :-D

My soon-to-be nine year old daughter just showed me the guided meditation video she made. I loved it!

Agreed. Since I’m not in this world all the time, I’m unsure how common this is, but I often notice that Dr. Djalilian’s PubMed articles include a “conflict of interest” statement at the bottom, indicating his affiliation with companies that sell services similar to those discussed in his...

Another great webinar put on by Tinnitus Quest & @Hazel @Markku -- thanks so much, team!

I wanted to follow up on my appointment today. I visited the University of Minnesota-Twin Cities ENT clinic, which has a tinnitus practice. Here are some interesting bullet points: The U of MN is conducting an ongoing clinical trial focused on neuromodulation. The clinician I worked with...

At ENT audiology and they asked to do a 85-95 db “loud beep” to start that “doesn’t damage hearing”. I declined. lol

This definitely seems like a scam. The PubMed article itself is also pretty light on details.

I’m so sorry you're experiencing this again. I’m frustrated with myself, too, but I’m trying not to be too hard on myself. It’s not easy because the change can feel so overwhelming and life-altering. I’m optimistic that handling things better day by day is starting to help me ease back into my...

That's exactly how I feel about starting any new medication. I'm not very confident about trying something until it's been published. Even then, I’d prefer to present the published results to a local ENT, who can review the information and decide if it would be appropriate for my situation. The...

Went to my 6am CrossFit this morning. Felt great to feel like I'm slowly getting my life back! Still ringing but not as bad.

I believe they have completed a larger clinical trial, with the results expected to be published soon. Dr. Djalilian mentioned this on one of his slides during the Tinnitus Quest webinar a couple of weeks ago. I spoke with Dr. Djalilian about this specific result, and in July, he informed me...

When you lost even Drudge Report, you know it was a bad night...

Ah, I'm just hoping I can get referred for whatever in-clinic treatments they may have available—not with him directly, unfortunately. I'm not holding my breath, but I figure being in their system can't hurt.

For what it's worth, I am a little over four months post-acoustic trauma, and I've definitely noticed that, over the past few weeks in particular, the feeling of aural fullness has reduced. There was also secondary tinnitus and some reactivity that accompanied it, which now feels about 50%...

Deep thoughts by my 8 yr old daughter: “What if noses could hear and ears could smell?”

Hi Tim, I walked through the general protocol I was directed to follow in my post above. Additionally, @ErikaS shared the flowchart from one of the PubMed articles co-authored by Dr. Djalilian. Good luck!

Went back to my CrossFit class at Noon today—no big post workout spike. My instructor told me he has ringing in his ear as of this week :-(

he nutraceuticals are intended to be taken twice daily, while the medication is designed to be gradually increased. However, I recommend checking with the protocol team and/or your doctor to determine what works best for you. I found that taking 400 mg of Riboflavin in the morning is more...

Do you have information on how to get on this study's list?

Sorry -- I meant 5,000 IUs, which is lower than the initially recommended 10,000 IUs. Their recommendation was 10,000 IUs, but when I asked them if that was a safe dose, they said I could try 5,000 IUs.

I’m fortunate to have started my own accounting firm a few years ago, which allows me to work mostly from home or in a quiet coworking space. This has helped me avoid overly noisy situations. However, this also presents a challenge: before the onset of my current situation, I led an extremely...

Hi all, I'll go first since I started this protocol at the end of June 2024. My Case I entered this program after experiencing a worsening of my previously mild tinnitus. I first had moderate to severe tinnitus in October 2014 following an ear infection. Over time, the tinnitus gradually...

I just want to say thank you to @Hazel, @Markku, and the Tinnitus Quest team for organizing the first of many highly informative Q&As! Thank you as well to Dr. Djalilian for staying on for 90 minutes and going into such detail on everything. I look forward to more events like this one.

I’d be interested in an analysis of whether this data changes the overall outlook on Lenire as a tool. I also (speculating here) wonder if Dr. Lim’s role with the company may be to continue to develop Lenire to more closely mirror the signal timing that the Shore device uses (i.e., are they /...

These are great! I can’t wait to share with my network. I’m excited to hear about the big donors you have already secured—that always helps speed things along with more donations.

Had my first TMJ work done today. Maybe helped a bit? The practitioner went inside the mouth and adjusted stuff like crazy. I'll go back.

Pretty much down to baseline after travel, now have a work conference this weekend. Gonna be noisy.

Hi @AverageJoe12 -- have you started taking Topamax along with Nortriptyline per the Djalilian protocol? Have you had any changes either way, positive or otherwise?

FWIW, I did what I do for my job and got into his LinkedIn comments for more detail on what @Tim Dziwisch asked :)

This feels like a good first target for Tinnitus Quest to fund a tinnitus trial on SPI-1005, especially if it has gotten this far, and they seem to be already somewhat well-funded and well-established. Tagging @Hazel & @Markku.

I am aware of the damage from the unrest-it happened in my backyard. It was only eclipsed by the pain in the community over the Minneapolis police department being responsible for the death of a man in broad daylight. The scars are still visible and raw here in Minneapolis, yet businesses have...

The source of this meme is actually quite amazing. My friend runs a school newspaper for a high school in suburban Twin Cities, and his student wrote an article about how the school nurse was charging money for menstrual pads to students. The congressional rep for the district read that article...

We obviously have a huge difference in opinion. Still, Walz as governor has achieved a ton for the state, namely legalized cannabis, which will bring tax revenue into the state a balanced budget surplus, which he has spent on helpful programs like universal lunch for kids at schools (a massive...

As a Minnesota resident who voted for Gov. Walz twice, this is a laughably incorrect biography.

My tinnitus is unilateral. My biggest issue initially was how my tinnitus sound would react to external stimuli. After about three months and about a month of the nutriceutical protocol, the reactivity issue seems to be getting better. It is not resolved by any means, but it is more manageable...

Wheels down from my first flight post tinnitus spike. Not the best flight but not the worst either.

I would imagine the three board members (Pearson, Martell, Shore) also hold some major equity in the company and are balancing taking outside investors with maintaining their own equity. With the University of Michigan's backing and their own research funded by a university instead of business...

FWIW, I was on Sertraline (Zoloft) from 2017 until 2021 and did not have major adverse effects. I did go off when I felt like I wanted to regain a bit of my “spark,” which felt cozy but flat when I was on it. My original tinnitus was getting better then, and by the time I got off in 2021, my...

Went to see Longlegs in theaters with earplugs. Went decently well and great movie!