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  1. S

    How long had you been suffering when you went on the benzo's? Unless you were years in...

    How long had you been suffering when you went on the benzo's? Unless you were years in already, given some extra time after the benzo's to settle, things might gradually improve after and you could get a good bit of your life back... You said yourself you've noticed an improvement in the nox...
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  2. S

    Tinnitus tones come and go, a week definitely doesn't mean permanent, even 6 months doesn't...

    Tinnitus tones come and go, a week definitely doesn't mean permanent, even 6 months doesn't. You're still withdrawing, right? I think you'll just have to expect a bumpy ride until you're through the other side and then give it some time for things to settle to base line. Might even find it's...
    • Scruffiey
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  3. S

    Sudden Hearing Loss, Tinnitus Shifts, and Strange Ear Sensations: A Relapse or Something New?

    Today, my right ear has decided to add to my fragile mental state by beginning to lose hearing beyond what my audiogram showed just a fortnight ago. So long, hyperacusis, I guess. It feels much like the moderate hearing loss I experienced before my tinnitus began, which I had assumed was just a...
  4. S

    Rinri Therapeutics

    Hopefully I will see you there! Can anyone truly be sure whether their hearing damage is due to hair cells or nerves? It is almost always likely to be a combination of both. The clinical trial requirements might focus only on age-related or degenerative disease hearing loss in an attempt to...
  5. S

    Why do you torment me loud dial tone frequency, the times you are gone I cope so much better and...

    Why do you torment me loud dial tone frequency, the times you are gone I cope so much better and then you bring physical sensations to make yourself known.
  6. S

    Desperate for Help: My Son’s Severe Tinnitus Flare After Concert Exposure

    I’m so sorry to hear about your son, Linda. This is a truly cruel condition that takes so much. Is he currently taking any medication to cope with it? Some medications are known to make it worse, which can be a difficult balance to manage given how distressing tinnitus can be. There are a...
  7. S

    @kingsfan Wish I had a life to go back to! Spent the last 5 years as a carer and I lost the life...

    @kingsfan Wish I had a life to go back to! Spent the last 5 years as a carer and I lost the life I had before then. Throw in some fairly nasty tinnitus, a pinch of hyperacusis and a host of weird physical sensations with a life time of anxiety, depression and aural abuse and I think I AM one of...
    • Scruffiey
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  8. S

    Does the Cause of Tinnitus Influence Its Severity, Impact, or Progression?

    Interesting… I suppose I ask because I’ve been trying to figure out my tinnitus. I went to several concerts when I was younger and never experienced even a hint of it. Years ago, I was exposed to a small explosion, probably similar to a gunshot. I recovered quickly, with only about 30 seconds...
  9. S

    Thanks, but I'm afraid I am not a religious man and this sort of torment is unlikely to change...

    Thanks, but I'm afraid I am not a religious man and this sort of torment is unlikely to change my views on the matter...
    • Scruffiey
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  10. S

    Unexplained Ear Sensations, Sensitivity to Certain Sounds, and Hearing Issues

    That sensation is referred from your trigeminal nerve. It is fluttering your tympani, or the tensor tympani muscle, sometimes known as TTTS (Tonic Tensor Tympani Syndrome). I experienced warmth, tension, and some pain in my face, but the ear would flutter on its own, especially when lying down...
  11. S

    I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry...

    I can't go on with this indefinitely, I'm just not cut out for it, what life is it to just carry on existing for fear of death. How can something so cruel have not just no safe treatment, to take the edge off, but the potential to worsen without a moments notice. I've always been depressed, but...
  12. S

    Rinri Therapeutics

    Don’t worry, there is enough love to go around for both you and @Nick47. 😉 I can manage a short course.
  13. S

    Unexplained Ear Sensations, Sensitivity to Certain Sounds, and Hearing Issues

    Warm and down my leg, but I think that might be something else… No, I can’t say I have experienced it anywhere else. At the start of my tinnitus, it felt exactly like I had fluid dripping in my ear, even though there was none according to a GP, at least when I was checked about ten days later...
  14. S

    Sudden Onset of Ear Pain and Burning After Hospital Visit Despite Protection

    It was in my right ear with the hearing loss. It did not seem to drift over to the good ear like the tinnitus and hyperacusis did. It certainly could be that. Or it could be allergies, stress, or wearing defenders for too long, which can cause discomfort. As with all of this ear stuff, it...
  15. S

    Does the Cause of Tinnitus Influence Its Severity, Impact, or Progression?

    I know tinnitus is completely subjective, so this is a rather tricky one to answer, but is there a general sense of an established difference in tinnitus depending on the cause? For example, some people experience sudden sensorineural hearing loss and permanently lose, say, 60 dB along with all...
  16. S

    Rinri Therapeutics

    @Nick47, I think I may actually be slightly in love with you. This was the glimmer of hope I needed to keep going.
  17. S

    Sudden Onset of Ear Pain and Burning After Hospital Visit Despite Protection

    I just cannot understand why this seems to be a completely unheard-of condition to audiologists. But to answer your question, yes, I have experienced something similar. Mine has gradually improved over several months, although there have been setbacks along the way. I believe it is partially a...
  18. S

    TNF Alpha and Brain Inflammation

    You mean… you can’t talk to mice? Researchers either train them to be afraid of a tinnitus-like sound using some form of conditioning, such as a shock or another aversive method, or they create a kind of inverse tinnitus by playing a constant sound. When a brief moment of silence is inserted...
  19. S

    Rinri Therapeutics

    I would not consider this a positive outcome. I struggled with a six-week course of mild nasal steroids, so the idea of having to take Prednisone for the rest of my life pretty much rules me out of Rinri. I believe it can have quite harmful effects in general. In my opinion, this limits the...
  20. S

    Suicidal

    Sigh… back to hoping for a terminal diagnosis, or wondering at what point my family might understand if I choose to go to Dignitas. I want to live, even if only for a short while, as long as it can be lived fully and with some certainty. The potential cures that once gave me hope no longer seem...
  21. S

    Realising the hearing regeneration I'd pinned my hopes on probably isn't going to be suitable...

    Realising the hearing regeneration I'd pinned my hopes on probably isn't going to be suitable for me is really crushing me right now... The hearing loss isn't even really an issue, I just want the tinnitus & hyperacusis gone so I can go to the shops without ear plugs. A life of solitude &...
  22. S

    Rinri Therapeutics

    Hold up... is this going to require immunosuppression? Current and emerging approaches to cochlear immunosuppression with translation to human inner ear stem cell therapy: A systematic review
  23. S

    Rinri Therapeutics

    Yeah, me too. I honestly can’t believe we’re still stuck in the “think it better!” stage of medicine when it comes to this. I guess 30 years ago it just wasn’t as urgent; the world wasn’t quite as noisy. Still, for someone with a fairly broad knowledge base, I can’t believe I’d never even heard...
  24. S

    @Nes Glad it's working out for you! :) Before I knew what I had was hyperacusis (I thought the...

    @Nes Glad it's working out for you! :) Before I knew what I had was hyperacusis (I thought the nasal steroid had just cleared my Eustachian's out and I just wasn't used to how good my hearing was...) I'd started doing it around the house and I attribute it to my natural recovery while keeping...
    • Scruffiey
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  25. S

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    I think Rinri is probably the best overall option. Question: I’ve seen some discussion about certain regeneration methods depleting support cells. Do we have any idea if this approach does that? Fixing the ears but making them more fragile would really just be trading one problem for another.
  26. S

    Rinri Therapeutics

    Not even last summer, it was late October, and my whole progression has been so bizarre, filled with nearly every symptom in the book, that I can’t tell heads from tails. It started as a normal “eee” but went absolutely catastrophic a couple of weeks in. Was this extreme anxiety from the nasal...
  27. S

    Unexplained Ear Sensations, Sensitivity to Certain Sounds, and Hearing Issues

    Wish I could tell you. I also have a unilateral 30 dB dip at 6 kHz, although I suspect that since it is an octave of my tinnitus frequency, it might be less of a dip and more that I just could not hear the tones. I also experience the cramps. In fact, if I put my finger in my ear canal, I can...
  28. S

    Rinri Therapeutics

    All we can do is speculate! I’m sure even they won’t have all the answers until data comes back from the trials. But I’m with you on the optimism, otherwise I would not be willing to subject myself to experimental surgery if I have the chance to participate. I do think they will eventually be...
  29. S

    @Tryn2BHopeful Nope! The drone came back of its own accord this afternoon... but having a...

    @Tryn2BHopeful Nope! The drone came back of its own accord this afternoon... but having a lay-in this morning with just my 'ear against the pillow electric'... better than sex. Oh I'm well aware, but I'm quite content living the quiet life as long as I can get out in nature a bit now and...
    • Scruffiey
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  30. S

    Rinri Therapeutics

    My hearing was as tough as nails—until it wasn’t. I just had my audiogram today, and my left ear is nearly 0 dB across the board, which frankly defies logic. Meanwhile, my dodgy right ear has a 30 dB dip at 6 kHz, which isn’t even where my tinnitus frequency sits. Despite that, I still ended up...
  31. S

    @vilebubbles It is, in a way, this is downright liveable, but I've now been through so much and...

    @vilebubbles It is, in a way, this is downright liveable, but I've now been through so much and have zero idea of what's actually happened that I don't know how I'll reclaim life without fear of worsening it... I hope you do too, I'm sure once the benzo taper is over you'll eventually get some...
    • Scruffiey
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  32. S

    Okay explain this one... past couple of days my bad ear seems to be losing hearing, or at least...

    Okay explain this one... past couple of days my bad ear seems to be losing hearing, or at least the hyperacusis is quickly dying down, but my droning tinnitus tone is simultaneously getting quieter with it? I had a literal air raid siren & cacophony of squealing brakes 5 months ago, the hell is...
  33. S

    Rinri Therapeutics

    I know we can only speculate, perhaps even they aren’t entirely sure of the outcomes until the results are seen, but I’m still unsure about exactly what this is supposed to repair. So it’s being injected into the auditory nerve, which I assume should remyelinate it to improve transmission. Is...
  34. S

    New University of Michigan Tinnitus Discovery — Signal Timing

    I don’t think anyone claimed they would, but it would certainly be nice to have any proven tinnitus treatment available—even if it only helps mild sufferers through their first panic-inducing experience or shaves off a few decibels for those with more severe cases, making it a little easier for...
  35. S

    10% of Women Who Suffer Constant Ringing in Their Ears Attempt Suicide, Study Suggests

    I mean, we all know this—it’s not news to us, so I don’t think it does any harm. But I think it’s more important for this kind of research to reach people who aren’t aware of it. Raising awareness can help people understand that this is a far more serious condition than they realize and bring...
  36. S

    Ear Pressure and Pain After a Restroom Hand Dryer and Child Screaming

    There are no definitive answers with this kind of thing, but my inclination is that since even a faucet now sounds loud to you when it did not before, and there have not been any major events that would push your hearing into the noxacusis realm, you may have simply increased your sound...
  37. S

    A Year Later, I Don't Know What My Tinnitus Baseline Is

    It sounds like you’ve identified the issue, so now the question is: how do you go about resolving it? Would exercise help? Physical or psychological therapy? Meditation? Or even medication, if you’re open to that option? My therapist taught me something called autogenic training. It’s...
  38. S

    @Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more...

    @Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth. Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same...
    • Scruffiey
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  39. S

    Not exactly but I think I know what you mean, sounds like your face is subconsciously tightening...

    Not exactly but I think I know what you mean, sounds like your face is subconsciously tightening and it's just muscle tightness so as you say, stress & maybe extra focusing due to hearing loss? Only solution is going to be relaxing and accepting that normal sounds aren't hurting anything...
    • Scruffiey
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  40. S

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    OCT? Behind the eardrum? Sounds like witchcraft to me… (said the audiologists, probably). “Be quiet and take your nasal steroid spray. It’s just ETD. No need to investigate further—you’re simply not living with it hard enough.”
  41. S

    @orenge01 Well, it's really your call... can you cope with a worsening of your tinnitus? Was it...

    @orenge01 Well, it's really your call... can you cope with a worsening of your tinnitus? Was it originally caused by noise damage? Me, this level of tinnitus is something I can just about deal with, it was noise induced and no in ear audio seems like a really small sacrifice even if it just...
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  42. S

    Suicidal

    After a few therapy sessions and a lot of back and forth, I decided the worst was over and to hold off for now—at least until my tinnitus had settled more, following the general rule of thumb of about 18 months. Now, I’ve reached the point where I think, with time, I may (hopefully) be able to...
  43. S

    I think the main point is, why risk it? Having sound pumped directly in to your ear when your...

    I think the main point is, why risk it? Having sound pumped directly in to your ear when your ears are already more sensitive to issues... the human auditory system wasn't really designed for it. Might have an impact on hyperacusis and such too by shutting you out from your surroundings.
    • Scruffiey
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  44. S

    Sleep Architecture Disrupted in Tinnitus Sufferers

    There’s no way medicated sleep is going to be as good for you as natural sleep, so it is a judgment call. Long term use of an antidepressant may not be great for you, but long term sleep deprivation is not great either. Unless you can adjust over time through therapy, exercise, or other methods...
  45. S

    Ear Sensation / Unsure of Diagnosis / Rant

    It sounds like it could be TTTS—Tonic Tensor Tympani Syndrome (not to be confused with twin-to-twin transfusion syndrome). TTTS is believed to be at least partially anxiety-related. Resting your ears and protecting them within reason until things settle down wouldn’t be a bad idea, but I don’t...
  46. S

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    Yes, I really do think this is promising research, and better imaging tools are desperately needed. Before all my issues started, I had no idea how limited otoscopes were. It’s almost unbelievable that no one has worked on improving them before—until you remember how neglected hearing care has...
  47. S

    You're only a couple of months in if I remember, yeah? It does fluctuate for the first few...

    You're only a couple of months in if I remember, yeah? It does fluctuate for the first few months to a year, try not to read too much in to each and every change, it will almost certainly settle down. I had a regular eee turn to an extremely loud siren & screams that's gone down to a gentle...
  48. S

    Try sticking some cotton wool in your ears, it's a little bit of defence without too much...

    Try sticking some cotton wool in your ears, it's a little bit of defence without too much rebound when you take it out, plus it's a fairly comforting feeling. But I'd still wear the muffs in the kitchen my self, better safe than sorry!
  49. S

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    Why do you think it’s completely different? I assume old age still degrades the auditory nerve and synapses, but noise trauma speeds up the process. The lack of tinnitus may simply be because the brain adapts to the loss as it happens more gradually or due to genetics.
  50. S

    Research on the Origins of Hyperacusis and Potential Future Cochlear Imaging

    https://www.news-medical.net/news/20250224/New-imaging-tool-reveals-the-brains-role-in-cochlea-sensitivity.aspx TL;DR: The brain increasing gain in the cochlea after hearing loss appears to have been proven in mice. Researchers also developed a new imaging tool to observe the cochlea in real...
  51. S

    LL-341070 Remyelination

    Probably not of much interest since it’s still focused on the visual system and central nervous system rather than the auditory system, but while looking for a new antihistamine to try for my seasonal allergies, I came across Clemastine being studied for the same purpose. We just need to glue...
  52. S

    Neurosoft Bioelectronics: Implantable Electrodes to Treat Tinnitus

    I assume that since a surgical procedure is required, prophylactic antibiotics will be necessary. Having never undergone surgery—let alone brain surgery—before, I'm wondering what the standard protocol is. Is there anything specific we should be concerned about? It's great if the procedure can...
  53. S

    I can't imagine it wouldn't just be temporary or else we'd probably have heard of it causing...

    I can't imagine it wouldn't just be temporary or else we'd probably have heard of it causing tinnitus before! Shame though... I've got a big bag of licorice I got at Christmas and now I can't risk eating it.
  54. S

    Finally Had My Long Overdue Breakdown — Regret, Loss, and the Unbearable Weight of Tinnitus

    I just cried like a baby for the first time in I don’t know how long. In the span of four months, I’ve lost my dad, my chance at any kind of normal life, and my well-being. And I was so fucking stupid to think tinnitus wouldn’t get me. Even after I learned it existed, I kept pushing my...
  55. S

    I think licorice raises blood pressure and effects potassium levels, might explain it?

    I think licorice raises blood pressure and effects potassium levels, might explain it?
  56. S

    Biomarker Discovery for Chronic Tinnitus Diagnosis (TIDE Project)

    Huh, in combination with this, that's kind of interesting. For those that don't want to click the link, it's regarding another medical issue: Prednisone reduced serum uric acid levels.
  57. S

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Hey, I have had massive personal setbacks. At this point, I am in my mid-30s and have already lost half of my life to issues beyond my control. I was literally at the finish line, ready to start the new life I had dreamed of for ten years. It was finally going to be my time—then this ugly...
  58. S

    You can, I know you're scared but you'll make it through... it feels horrible and intrusive but...

    You can, I know you're scared but you'll make it through... it feels horrible and intrusive but it's not an actual threat even if your entire being is trying to tell you otherwise, it will get better. Try and do something to distract (I bought a block of modelling clay and took up sculpting) &...
  59. S

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    I don’t like it either. I wanted a cure yesterday. But I’m being realistic based on the current state of research, the time it takes to develop treatments, run trials, and bring them to market. Personally, I plan to enter as many clinical trials as possible if I think they have a chance of...
  60. S

    Yeah, how dare you prioritise your wellbeing, health, and hearing over the band? That's messed...

    Yeah, how dare you prioritise your wellbeing, health, and hearing over the band? That's messed up... I can't see how an unsupportive group would have worked had you progressed further together and by the sounds of it, some of them might eventually be joining you on this journey. It does take a...
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