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Prof. Peter McNaughton from King’s College London is not only a very nice guy (for example, we had to re-attempt our recording three times due to technical difficulties and he was extremely accommodating), but also a very interesting researcher – a unicorn if you will. He has been researching...

You may have been quite surprised visiting Tinnitus Talk today with everything suddenly looking different! We hope you like the new look of Tinnitus Talk. It's actually a lot more than just a new look though, a major software update was involved, and some restructuring of our forums — with...

This is probably our most important podcast episode to date. We’re very excited to introduce you to a new non-profit organization we co-founded called Tinnitus Quest. It is the only organization exclusively focused on silencing tinnitus by funding agile, exploratory research. Hazel speaks with...

This episode is close to our hearts. We read the latest tinnitus studies and listen to the presentations at research conferences. Of specific interest are of course the studies that test the effectiveness of new treatments – could this treatment finally be what we’ve been waiting for?!? All too...

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It's Tinnitus Week, which means all the tinnitus organizations try to raise awareness for the condition. We are doing so in our own little way through our volunteers Linda and Megan who are attending the Association for Research in Otolaryngology (ARO) 2024 MidWinter conference, all about...

Let us start off by conveying our deepest regrets that it has been 11 months since we last published a podcast episode. Ugh. Well, we did publish some bonus content for our Patreon supporters, but no full-length podcast episode. Last year was a busy one with conferences like ARO and TRI (where...

Dear Victor, ------ Alternatively, our US bank account details: Tinnitus Hub Inc Account Number: 1100021466393 Routing Number: 263191387 ------ Sincerely, Tinnitus Hub Inc is a 501(c)(3) nonprofit organization, EIN 92-0449319. Donations are tax-deductible.

Dear Benefactor, Sincerely, Direct bank transfer (or a check) can help us save on fees. Please contact fundraising@tinnitushub.com for details. Tinnitus Hub Inc is a 501(c)(3) nonprofit organization, EIN 92-0449319. Donations are tax-deductible.

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#TinnitusWeek — Message from @Hazel This feels in some sense like the most unprepared we have ever been for Tinnitus Week, considering it’s already half-way through Tinnitus Week and we have not even informed you of our activities. Sorry for that! There is a good reason though, and we surely...

Old timers in this community may remember @Steve. Not only was he one of the first members of Tinnitus Talk, he is also @Hazel's predecessor as Director of Tinnitus Hub. These days, Steve spends most of his time on music and audio production. This includes a wide array of experiments on using...

Donate today and... Your donation is matched by an anonymous benefactor. This means that we will get twice the amount you donate. Today is the day to be generous. Get access to a recording with ENT Dr. Michael Golenhofen who runs his own tinnitus clinic. You will find out why he thinks the...

Brian Fargo is a video game developer who has done well in business and led a good life until he developed tinnitus. He tried literally every possible available treatment, only to conclude that nothing helped. So, he decided to become part of the solution and donate a million dollars to Dr...

We talk a lot about research on Tinnitus Talk. What’s going on, what we expect from future treatments, when they are coming etc. There’s often an undercurrent of incomprehension or frustration in research discussions: Why are they focusing on this and not that? How can they market this as...

Our friends at Hyperacusis Central have started creating videos to spread awareness of hyperacusis and noxacusis. This is their promo (a longer version that includes the full personal stories of @Brian Newman, @David Vance and Shay Miles is included on their YouTube channel): → LINK TO THE...

Tinnitus Talk would like to commemorate Brian Jordan Pariente, known as @Brian P, an active and valued member of this community, who struggled greatly with his tinnitus. His family started a fundraiser in his name. Although we don't have details on where they intend to donate the money, the...

It's #TinnitusWeek again! The time of year when we ramp up our awareness raising efforts (y) Here's what's going on this week, and how YOU can help: 1. Help us promote the concept of a tinnitus biobank. Why? In a nutshell, we need bigger and better data on tinnitus. → Listen to our...

You guys all know this, but apparently it still requires clarification: Having ringing ears for 5 minutes is not the same as chronic, severe tinnitus. Unfortunately, many large population studies have only measured the former. Hence, you will hear figures like ‘20-30% of the population has...

“Jingle bells, jingle bells…” Do you enjoy Christmas songs or hate them? Are you looking forward to a nice holiday with family or dreading it? Does your tinnitus or hyperacusis affect how you will be spending your holidays? It’s supposed to be a festive season, but we know not everyone feels...

This episode is the first of what will hopefully become a series about the realities of living with tinnitus. Obviously, it’s different for everyone, and that’s one of the messages of this podcast. The episode features two well-known members of this community: @Steve and @Jack Straw – thank you...

Hey there! Prof. Dirk De Ridder is one of the most cited tinnitus researchers, a very eloquent speaker, and a passionate advocate for people with tinnitus. We thoroughly enjoyed this discussion with him about how tinnitus can get stuck in our brains and how this process is analogous to other...

Hey there! Very few commercial drug companies focus on hearing disorders. Even fewer focus on tinnitus. Otonomy does both. In this episode of the Tinnitus Talk Podcast, we spoke with David Weber (PhD), President and CEO, and Alan Foster (PhD), Chief Scientific Officer. They shared their views...

@Hazel successfully interviewed Otonomy the other week for Tinnitus Talk Podcast. Kindly, @FGG gave her time to prep Hazel. @Markku is now editing the interview, making it ready for publication. Our trusted volunteers are working on the transcription. It's going to be our longest episode to...

Hey there! It’s been too long since our last episode, we are acutely aware of that. There have been some challenges at a personal and professional level to overcome, but we are back in full swing, with what we believe to be a very exciting episode! You may have heard people say that one of the...

It’s #TinnitusWeek! As usual, during this week, you will see the different tinnitus organizations launch their own awareness raising activities. Tinnitus Hub (the managing entity of Tinnitus Talk) will be right there, doing our part for tinnitus awareness! Join Our Webinar! We will be...

Ask Otonomy As mentioned before, the Tinnitus Talk Podcast will be interviewing Otonomy. This is hoped to happen in early 2021. You have until the end of 2020 to submit your questions below (click the "Start" button). Want to share this questionnaire with fellow patients? You can do so by ➡️...

@Hazel just wrote an independent assessment outlining all the pros and cons of Lenire. Please take a moment to read, comment, and share it where you can.

Hi everybody! We’re doing something a little different this time. In this episode, we’re talking to two pioneers in the field of visual snow. The patient experience is often one of being misunderstood, and research is in its infancy. What can be done? Patient advocate Sierra Domb and...

Hi everybody! While our previous episode, on Frequency Therapeutics, might be hard to top, we are truly excited to bring you this next episode. It’s a real opportunity to deepen your knowledge on the neurological underpinnings of tinnitus, explained in plain language. Dr. Will Sedley is a...

Hi everybody! Our thread on Frequency Therapeutics has garnered nearly 900,000 views over the years. We’ve seen hypes come and go on this forum, but so far this one’s here to stay. So, you can imagine how excited we are to be able to bring you this content as part of the Tinnitus Talk Podcast...

The time has finally come! Today we are publishing perhaps our most long-awaited episode of the Tinnitus Talk Podcast. It’s also an episode that has cost us more time and resources than ever. After exchanging many dozens of emails with the company, preparing our questions diligently, making all...

Hey everyone! After more than a year (no exaggeration) of trying, we finally did it: We interviewed Frequency Therapeutics! The interview took place last week with Chief Development Officer Carl LeBel. He gave us an hour of his precious time. Not enough to ask all the questions we had in mind...

043 LENIRE USERS 125 DATA POINTS 450 EMAILS 050 HOURS OF SKYPE CALLS 150 PAGES OF REPORTS TOTALING 400 HOURS OF VOLUNTEER WORK The wait was long as we worked diligently behind the scenes. But we are proud to finally present the results of our very own Lenire User Experience Group Study...

Hi everybody! A few years ago, a drug called Retigabine (Trobalt) was taken off the market, in spite of showing some promise in treating tinnitus. Today, Thanos Tzounopoulos is working to redesign the drug to target and silence the tinnitus signal in the brain. We’re very excited that we were...

Hi everybody! In this special compilation episode, you’ll hear from four people with tinnitus, as well as a researcher and an audiologist, about tinnitus experiences during the Coronavirus crisis. How has the stress of the crisis impacted people’s tinnitus? Can the Coronavirus cause tinnitus to...

After the flurry of activity recently around political lobbying in the UK for more tinnitus research funding during Tinnitus Week, we now have an opportunity to put tinnitus on the political agenda in the US as well. The National Institute on Deafness and Other Communication Disorders (NIDCD)...

Hi everybody! Tinnitus Talk spoke with the Hough Ear Institute, a non-profit research organization that focusses on restoring hearing. They are working on two hearing regeneration treatments that could very well have benefits for tinnitus sufferers. The idea for this podcast episode came about...

We’re a lot more than just a forum. We’re a community of people with tinnitus who help each other. We produce Tinnitus Talk Podcast to keep you up-to-date on all things tinnitus. We create videos to raise awareness and push for better care. We are actively engaged in tinnitus research, working...

Ok folks, we really want to give a big push to THIS PETITION asking the government more funding to tinnitus research, and we need ALL OF YOU to help out! We just published this video: Please, please, please share this as widely as you can. All your friends, family and followers need to know...

Tinnitus Week this year is from 3 to 9 February. During the week, many tinnitus organisations join hands in raising awareness for tinnitus. This time, the focus will be specifically on Research, particularly of course research into a cure. Below is an outline of what we, Tinnitus Hub, will be...

Do you want a cure? Help us collect data! Dearest members, Have you wondered whether chronic pain, diabetes or dental problems are somehow related to tinnitus? Or have you noticed that your tinnitus is worse on days when your neck hurts? To kick off 2020, we are launching a new survey. It...

Dearest members, We are saddened to announce that a valued member of our community has passed away: @Allan1967. We have no information on how this happened. We know that Allan struggled a lot with his tinnitus, which recently worsened, and he had not been in a good mental state recently. But...

As we’re approaching Christmas and New Year, we’d like to take a moment to reflect on the past year, look to the future, and express our gratitude. While it’s sad that many new people come here every day seeking help, we can and do find strength in numbers. This forum was always meant to be a...

Hi everybody! This will be our last episode of the year. Although… we may still have a surprise in store for our Patreon supporters. You can become one too for only 2 dollars per month! It means a lot to us that so many of you have already chosen to support our volunteer efforts. :) We’re very...

Dear Tinnitus Talk members & visitors, We are proud to announce the launch of our very first app to help tinnitus patients! It’s called TinnitusPlay and is now available for free at the App Store – iPhone only for now. What Does TinnitusPlay Do? TinnitusPlay is a sound generating app. But it...

For those who rather read than listen, the transcript of the interview is available below. We want to thank @Liz Windsor who graciously keeps creating these awesome transcripts of our episodes for all of you to enjoy. View Transcript for Tinnitus Talk Episode 07: Neuromod's Lenire — Treating...

Hi everybody! Well, this might be our most long-awaited episode yet. It covers the topic of our currently most active thread, which has been viewed over half a million times. We mean of course Neuromod’s Lenire treatment. Check out the ongoing discussion about it here. It’s an extra-long...

Hi everybody! We’re not gonna lie, this was the toughest episode yet to publish. It was recorded way back in March, when @Hazel was in Milan for an ESIT meeting and had the chance to sit down with Rilana Cima and Derek Hoare, two of the co-authors of the European Clinical Practice Guidelines...

What Is Lenire? Lenire is a newly launched treatment for tinnitus, which is claimed to reduce ringing in the ears. Lenire was brought to market by Irish medical device company Neuromod, after having conducted several clinical trials to assess its safety and efficacy. Post Your Experiences...

Hi everybody! We are very excited to publish the fifth episode of our podcast series! We listened to your feedback and decided to dedicate an episode to hearing regeneration, based on popular demand ;) Tinnitus Talk spoke with Marcelo Rivolta, professor of Sensory Stem Cell Biology at the...

Enjoy our podcast? Would you like to hear more? Support us by becoming a Patron! You can do so for less than the cost of one coffee per month. :X3: These donations help us keep the podcast afloat, and create bigger, better, more creative episodes at even higher quality. Thank you!

Hey there everyone! How can clinicians and patients work together? Why is tinnitus sub-typing important? Does loudness matter? What does habituation really mean? What different forms of counselling and treatment are available for tinnitus? These are some of the questions addressed in this...

00:00 Prologue 03:45 Part 1 – Tinnitus & Hyperacusis: Twin Beasts 25:38 Part 2 – The End of the Line 40:30 Part 3 – New Hope: Raising Awareness For many of the 10% or so who have tinnitus, it’s a condition that – although bothersome at times – can be coped with. But about 1-2% of the population...

Hey there everyone! We are absolutely delighted to be launching the third episode of our podcast series! For this episode, we had the chance to interview our first celebrity: CJ Wildheart. Not everyone may have heard of him, but his band The Wildhearts had several top 20 singles and one top 10...

This thread has now been locked. Neuromod has announced a name for its device: Lenire. We are expecting a launch soon – although we are as much in the dark as you about when exactly this will be. We created a new thread where you may continue the discussion. Lenire — Bimodal Stimulation...