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Hello @Ben Winders! I have read many of your old posts and truly appreciate you sharing your more recent experience with us. It is very encouraging to read that you are doing so much better, especially since I was in a similar situation as you years ago. May I ask two questions? 1. Was the...

Thank you for sharing your experience. I am sorry that Neurofeedback has not brought you any relief.

@Nick47, well, this is certainly a duplicate now, as it is already part of this thread. In the meantime, I found the other Tinnitus Talk thread that focuses exclusively on this study. It would have been helpful if you had posted a link, so that someone who is clearly not aware of it could take...

Hello @Nick47, I still could not find it in this thread. Maybe it is mentioned somewhere less obvious. English is not my first language, so it is possible I missed that information. Anyway, I still think there are posts that are much more off-topic or trivial than mentioning, perhaps again...

@Nick47, I wasn’t aware of it, even though I read through the entire thread. If I may ask, where exactly is it already available?

If I’m not mistaken, there is another study in Belgium testing electrical stimulation of the cochlea: Evaluating How a Tinnitus Implant Affects Tinnitus Loudness in Adults with Chronic Tinnitus and Varying Levels of Hearing Loss (TINIS)

Hello @Joeseph Stope, I’m sorry for what you went through 25 years ago. Unfortunately, some of that advice is still around. When I received “counseling” from someone associated with the German tinnitus league and was told to keep busy with jigsaw puzzles, it freaked me out a little. Anyway, I...

Thank you so much for your report, Arnaud! It is very interesting that you had such a similar experience and reached the same conclusion that you would rather have this treatment than none at all. I wish “they” (whoever that may be, in our case UZ Zurich) would provide some form of treatment...

For those who have been following this thread and reading about my participation in the UZ Zurich study: I was right in my assumption that I received the proper treatment during my first cycle. As I reported here, I noticed some changes in my tinnitus after the very first stimulation session...

Thanks, Arnaud! Yes, I do consider Neurofeedback as well. I will post about the study in the bimodal thread once it has finished.

Thank you for letting me know! Good luck with your treatment! Will you report on that here? All the best!

Hello @Arnaudswiss, may I ask how Neurofeedback is going for you?

Hello @Arnaudswiss, My second cycle is complete. As expected, I did not experience any improvement in my tinnitus. It feels like my tinnitus is back to baseline, with the same loudness as before my participation in the study. At the end of December, I will find out during which cycle I...

Thank you for your response. No sound at all? That’s interesting. My experience has been a bit different. During the first cycle, I noticed a sound resembling white noise. I still suspect that this was the cycle where the actual treatment occurred. Now, I am hearing “beeps” at different...

Hello @Arnaudswiss, Thank you for sharing your experience! I wish you had seen more improvement and am sorry to hear that the tinnitus still bothers you. It’s such a strange condition! It would be interesting to see what would happen if you had more sessions—whether your tinnitus would fade a...

Hello @Arnaudswiss, How are you? How was the first cycle? I can’t wait to hear about your experience! 😊 My second cycle starts next week already. Cheers, Mathilda

Hello @Arnaudswiss, good luck with your participation! I am really looking forward to your report. There were no side effects at all, except for the change in the tinnitus.

Hello there, I'll try to summarize my experience as a participant in the study after finishing the first cycle last week. First of all, for you to know: I have had severe multitonal tinnitus for seven months. When I started participating in the study, I discussed with the assistant which tone...

Hello @HighFreq, How have you been feeling lately? Has your tinnitus calmed down again? Regarding the study, may I ask—did you notice any differences between the two cycles (placebo versus actual treatment)? Was there a difference in the noise presented, or did you feel the electric...

Hello @Arnaudswiss, I’m currently in the middle of my first cycle—whether it’s the placebo or the actual treatment, I’m not sure, though I have my suspicions. I completely understand your curiosity to know more. However, I’ve decided not to share any updates until I’ve completed the study and...

Hello Arnaud, I spoke with the professor, and she answered some of my questions. For others, she referred me to her assistant. The treatment will start on Wednesday, and I made sure I can stop at any time if needed.

Hello Arnaud, Thanks for your reply. I’m going to start next week. I’ve decided to give it a try. If I no longer feel comfortable, I will stop participating.

Hello @HighFreq, I’m glad to hear that you’re confident your tinnitus will improve again. Wishing you all the best in your recovery! It’s disappointing that you didn’t receive any feedback and that the professor didn’t get back to you—definitely not very professional. I’m a bit confused about...

She only mentioned that six patients had participated; some of them got better, some worse.

Thank you for your response—I truly appreciate it! I’m very sorry to hear about your bad experience. I can only imagine how frustrating it must be to participate in an experiment and then not be taken seriously afterward. I hope you receive some feedback soon, and I also wish you some quieter...

Hello @HighFreq, I’m very sorry to hear about your worsening condition. I will also be participating in the experiment starting next week, and the assistant mentioned that some participants have reported their tinnitus getting worse. May I ask—was your worsening temporary, or is it permanent?

@Hazel, there are probably more people still reading your story than you might think. I did the same and appreciated your surely honest, kind of positive, but not romanticized report. I am beyond grateful for the effort you put into the tinnitus topic. I am having a very tough time currently...

Thank you for the reply, @Della - I highly appreciate it! I'm sorry to hear you struggled with the low-frequency tinnitus. Have you been on blood pressure medication ever since?

Hello @Della, I’ve read a few of your posts. May I ask a question? I am suffering from low-frequency tinnitus, including vibrating sensations. Did I understand correctly that you experience the same? If so, have you been able to habituate in any way? Thank you in advance for taking the time to...

@Hazel Thank you so much; I found it! I did not see the “CC button” - I am still finding my way through Tinnitus Talk. I was looking at a different place; Another (wrong) script is attached below linked to “click here for the description”.) Have a great day.

@Hazel, I would love to read the transcript of this interview; unfortunately, a wrong PDF is linked on the website. Could you maybe fix this? I would very much appreciate it. Thank you!