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  1. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    I hope everyone finds their own way to cope with ear problems. Today I decided not to protect my hearing at a house party for my daughter’s first birthday. I was very scared, especially when a small dachshund started barking for no reason from another room where he was locked. The children were...
  2. adpolandam

    Persistent Ear Pressure and Cracking Sounds When Swallowing: Could It Be Tensor Tympani Syndrome (TTTS)?

    The eardrum, ear muscles and tendons, auditory ossicles, trigeminal nerve, cochlea, Eustachian tube, and sinuses all take a beating when it comes to noise, vibrations, and sudden pressure changes. And then there are the nerves at the end of the auditory pathway.
  3. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    Sorry to butt in. It has been two years since my injury, and I feel that my middle ear — or rather the membrane — is in worse condition. It feels loose. The trigeminal nerve has been damaged because I feel pressure on the right side of my head — above the eye, below the eye, and around the ear...
  4. adpolandam

    Socializing with Tonic Tensor Tympani Syndrome (TTTS) — Any Activity Suggestions?

    Do you mean TTTS as a sharp, immediate pain that happens with sudden sounds, even if they are not necessarily loud, like the sensation of someone sticking a needle in your ear?
  5. adpolandam

    Severe Multi-Tonal, Reactive Tinnitus with TTTS and Noxacusis — Fast-Paced, Screeching Tones and Worsening Symptoms

    Each case is different. Personally, I avoid using protection when I am home alone, since I have control over the sounds in that environment.
  6. adpolandam

    Severe Multi-Tonal, Reactive Tinnitus with TTTS and Noxacusis — Fast-Paced, Screeching Tones and Worsening Symptoms

    Tinnitus does what it wants, when it wants. Protect your ears; they are as fragile as glass. Tomorrow will be a better day.
  7. adpolandam

    hope is the mother of fools

    hope is the mother of fools
  8. adpolandam

    I know you suffer every fucking day like many people here including me. A devastating disease...

    I know you suffer every fucking day like many people here including me. A devastating disease that you can't see. Zero help. We're stuck on our own. For me it's been 2 years. I only live for my daughter ♥️
  9. adpolandam

    I wish I had good news for you but I'm in trouble myself. Everything is falling apart, including...

    I wish I had good news for you but I'm in trouble myself. Everything is falling apart, including me. I wish I could get rid of at least this one ailment, this devil called tinnitus.
  10. adpolandam

    Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet...

    Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet, all the sufferers on the other side:) We'll have a big party. There'll be loud music, fireworks and screaming, and we won't care :)
  11. adpolandam

    I haven't put anything in my ear for two years. Even the therapies suggested by doctors that...

    I haven't put anything in my ear for two years. Even the therapies suggested by doctors that involve putting headphones in the ear are out of the question. Greetings to you.
  12. adpolandam

    Yesterday was my "good day". From the morning riding on 3 boiling kettles plus star wars in my ears

    Yesterday was my "good day". From the morning riding on 3 boiling kettles plus star wars in my ears
  13. adpolandam

    damaged hearing 😓

    damaged hearing 😓
  14. adpolandam

    I am mentally and physically tired. I keep yawning.

    I am mentally and physically tired. I keep yawning.
  15. adpolandam

    headache, pressure in the head, pain in the ears without sound, pain on sounds and worsening...

    headache, pressure in the head, pain in the ears without sound, pain on sounds and worsening noises, anxiety, depression. I've never been in such a mess as I have been since my ear problems.
  16. adpolandam

    Do insurance companies pay for suicide?

    Do insurance companies pay for suicide?
  17. adpolandam

    How long have you had problems?

    How long have you had problems?
  18. adpolandam

    Vital Signs: An Unwelcome Ringing — Magazine Article About How Doctors Cured a Guy's Ear Pain Spasms

    He was lucky! 😊 Personally, I visited several doctors and professors, but they didn’t listen to me. It felt like only their egos mattered.
  19. adpolandam

    Topical Ambroxol and Acyclovir for Hyperacusis

    Hey, @100Hz. How are you holding up?
  20. adpolandam

    I don't know how much longer I can go on

    I don't know how much longer I can go on
  21. adpolandam

    There's a lot going on in my ears, too much :( I can't stand all these anomalies anymore

    There's a lot going on in my ears, too much :( I can't stand all these anomalies anymore
  22. adpolandam

    yesterday about 10 strong SBUTT

    yesterday about 10 strong SBUTT
  23. adpolandam

    Hyperacusis Cured/Reduced by Clomipramine

    Hey. Have you had middle ear surgery?
  24. adpolandam

    Sudden sounds hurt you?

    Sudden sounds hurt you?
  25. adpolandam

    Plugging Nose and Blowing Temporarily Improved My Hearing: Can I Restore Eardrum Function and High-Frequency Hearing?

    Both membranes in my ear feel loose. I can even feel the wind moving the membrane in my “sicker” ear. I’ve seen doctors about this, but so far, no solutions have helped. I also experience immediate pain in my ear whenever there’s a sudden sound.
  26. adpolandam

    I'm sorry. How old are you? I'm depressed.

    I'm sorry. How old are you? I'm depressed.
  27. adpolandam

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Where is this middle ear implant?
  28. adpolandam

    Hearing a Ticking Clock Sound: Is It Physical?

    We are not all the same. I don’t have noxacusis, but certain things still cause pain—for example, turning on the light at home. I have damage to both my middle ear and cochlea. The research on these issues doesn’t seem reliable. It frustrates me that middle ear tests consistently show...
  29. adpolandam

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Can you please give a link? I can't seem to find it. Merry Christmas, everyone!
  30. adpolandam

    stay strong!

    stay strong!
  31. adpolandam

    How are you holding up?

    How are you holding up?
  32. adpolandam

    Tinnitus Surges to Extreme Levels Briefly Before Returning to Normal

    The fleeting tinnitus episodes started after over a year. Merciless beast!
  33. adpolandam

    Pain in Middle Ear — Not Hyperacusis

    After experiencing acoustic trauma, acoustic shock, or barotrauma, significant changes can occur within the ear. You might feel pain in your middle ear even without being exposed to noise.
  34. adpolandam

    Blocked Ear Feeling When Lying Down

    No. I would compare my ears to removing the suction cup from a windshield...
  35. adpolandam

    Blocked Ear Feeling When Lying Down

    Has someone ever experienced the sensation of their ear being “sucked” into the pillow?
  36. adpolandam

    it's best to lie down in a coffin

    it's best to lie down in a coffin
  37. adpolandam

    Hej. Jak tam twoje uszy?

    Hej. Jak tam twoje uszy?
  38. adpolandam

    pain that accompanies you for several hours or days. it is triggered by normal activities such...

    pain that accompanies you for several hours or days. it is triggered by normal activities such as eating chips or an empty stomach, as well as brushing teeth and many other everyday sounds.
  39. adpolandam

    The Occlusion Effect: How Do You Walk with Earmuffs/Defenders?

    I have it too, significantly in one ear. I have no defense against sudden sounds—they cause me pain. It seems the best option might be to cut out the middle ear. Tests were done, and everything came back normal.
  40. adpolandam

    Do sudden sounds hurt you?

    Do sudden sounds hurt you?
  41. adpolandam

    Why are serious ear problems swept under the rug, even by professors?

    Why are serious ear problems swept under the rug, even by professors?
  42. adpolandam

    a cacophony of loud sounds.

    a cacophony of loud sounds.
  43. adpolandam

    Sudden, very loud tinnitus paralyzes me

    Sudden, very loud tinnitus paralyzes me
  44. adpolandam

    very bad. aggressive sounds and pain

    very bad. aggressive sounds and pain
  45. adpolandam

    I have the same problem with t and h. it hurts to turn on the lights in the house. torture ;(

    I have the same problem with t and h. it hurts to turn on the lights in the house. torture ;(
  46. adpolandam

    Hi. I don't feel well. how do you feel?

    Hi. I don't feel well. how do you feel?