Search results for query: Myoclonus

I also feel a vibration in my right ear. I went to the ENT this morning , he removed earwax, but I still have it. Feels like a bug in ear crawling very fast. The ENT did not understand me, because I think I have ear myoclonus and tried to explain that to him.

...Again, thank you very much for sharing this compelling information. I entirely agree with her on her TTTS points. These periods of myoclonus are episodic and, given such a small muscle, can be difficult to measure. Stellate ganglion blocks are fairly routine outpatient procedures for...

...yours, but extreme. Two acoustic traumas, a year apart. Don't go to places with loud sounds, because the second night club I went to turned my ear from only thumping at the sound of a school alarm to thumping to every single sound shift reflex startle whatever. It looks like middle ear...

Stapedial myoclonus has been treated in China using a type of compress to apply Botox directly to the muscle which then absorbs it. It was passed via an already ruptured eardrum. It apparently worked, which would make it an excellent diagnostic tool. The Stap is to small to inject. I...

In a way you are sort of demonstrating how TRT principles supposedly apply to Middle ear myoclonus. Theoretically it should be possible to retrain involuntary muscles to respond/not respond to stimulus based on what the brain accepts that stimulus as representing. At least that's what "they"...

...needs to visualize the area and identify the structures and to do so has to get past the drum. I think Chelles may be right about palatal myoclonus, but that is pretty rare (but then they tell us hyperacusis is rare don't they). I think any procedure involving the TT or the Stap. requires...

...It's taken me 16 months to figure out that my chirping sounds *may* be objective tinnitus. Mine is intermittent, and gets better/or worse with different head/neck positions. I've been reading lately about Palatal Myoclonus and Middle Ear Myoclonus. Still hopeful I'll find some kind of...

...two Fridays ago, end of November. I can't say I'm experiencing thumping, it's like reactive T. The cause could be ETD(which I know I have), Myoclonus, or TTTS. The links below are my most recent threads. Give them a read if you want to find out more. They are lengthy, though. Let me know...

So yes, because your eardrum was lifted, it is very possible that your eardrum may feel loose, precisely because they did lift it and reattach it. Do not let your doctor ever tell you what you feel. Those doctors are not worthy of holding a medical license. You are correct that because you do...

@PaulBe I don't have hyperacusis and only mild hearing loss. The main symptom is that main eardrum vibrating a littelbit when a sound impact with it for this reason I think no one will perform a surgery (tenetomy) on my ears even in USA. I think my condition is permanent! Only a trembling no...

I have a bass like sound in my ears, but mine is caused by a combination of 2 conditions.. patulous eustachian tubes and ear myoclonus. My eustachian tubes are unable to close so I hear a rhythmic bass like thumping, caused by my own heartbeat. And my heartbeat seems to set off the ear muscle...

...faith years ago) and let it go. So that's what I've been doing. It's been a battle but one I've been winning (mostly). So, that's why I haven't been around. Tinnitus is there, the clicking is there, but I'm coping and living my life. Oh, and it was confirmed that I do have Middle Ear Myoclonus.

...long. The tinnitus community should be all over it like a rash :) The results are too good to be placebo and South Korea are well advanced in tinnitus research. Best papers I could find online on my condition of Middle Ear Myoclonus all came from South Korea. Appreciate your continued efforts.

...dimple as viewed by an otoscope? Have you had any adverse effects from the surgery ? I have been told that I may have TTTS middle ear myoclonus, but I am intrigued by your statement that tensor tympani reacts to internal sounds while stapedius reacts to external. The explosion/crunching...

How are things now? I recall you posting another thread on the tinnitus support forum after this surgery about an issue with hearing things going on in one ear in the other ear or something. Do you feel these issues are related to the surgery? Have you experienced any other issues?

So you had both your stapedius and tensor tympani lasered. I suspect part of my pain is from one of those two muscles. Did you have any other symptoms like pain from swallowing, your voice sounding extremely loud and causing aching, fluttering to noise, hearing a twang or rumbling when yawning?

...but continuous? Or bee like beehive continuous... And by Sismanis and ''the fails he had'', what do you mean? He definitely said possible myoclonus to me and he told me the only way to get rid of my condition was tenotomy, but then he just went weird, making neutral statements on what H and...

I did not have hyperacusis officially but the myoclonus was so severe in both ears from tensor tampani and stapedial tendons, my ears became sensitive to sound. I also suffer with a little bit of T. My neurotologist examined my ears and confirmed TTS once he saw the ear drums dimple. MRI came...

I don't think it is reactive to sounds. I'll have to pay more attention to the timing of it. I am more in shock about the sensation, so not focusing on what might be causing it. How did you realize your was set off by sound types?

...sounds? I have at times had a pronounced thumping/fluttering in one ear - and it took me a long time to realize it wasn't random, but caused by sounds like the bathroom fan or a spot in my kitchen that reflected the fan in the fridge.. Pretty sure this is myoclonus or some tympanic disease..

...MEM because he did not see the muscles actually twitching. But of course they weren’t when I went to see him. He just kept saying “if it’s myoclonus.“ I probably should’ve asked, well, what else would it be? Basically he strongly encouraged me to do nothing. Saying that it usually just goes...

Would you classify this ''pressure'' as a tympani drum that jumps zaps you with a small latency just after a sound begins to hit you?

...like the sound when you smash your car door hard, but then very fast after each other. After reading on the internet I thought it was ear myoclonus and hold on to that. He said in all his academic career he has never had someone with these symptoms... Ok so this is it for me then if he...

...level, considering whether to get vaccinated makes sense if you have tinnitus or other heath issues. I have been diagnosed with middle ear myoclonus which started after receiving my shot. I can't prove it's related to the vaccine and I can't prove it's not. Correlation does not equal...

...a case study. Tinnitus Concomitant With Eye Closure Treated by Tensor Tympani Tendon Resection and Cartilage Block Insertion Middle ear myoclonus (MEM) is a rare idiopathic clicking-type tinnitus attributed to abnormal contractions of the stapedius and/or tensor tympani muscles.1 Most cases...

...reason, it’s really uncomfortable. The tinnitus also increases with sound, and stays loud after the sound has gone. I became aware of the myoclonus noise several hours before the change in hearing/tinnitus happened. I was having a Trigeminal neuralgia flare which had relapsed over 5 days...

...though no one is listening to me. So far I have had specialists say its my TMJ joint clicking (it's not my jaw, its in my ear), a palatal myoclonus (again, its not in my mouth its in my ear), some other myoclonus, possibly the stapedius muscle contracting (this cant be because it doesnt occur...

Hi There, Yes I have middle ear myoclonus and this was diagnosed by my ENT by doing a long term Tympanometry test. Basically its a device that goes right to the back of your ear drum and records the movement. You need to be having an attack for this to work. I was offered surgery as soon as it...

Can't it be MEM, especially stapedial myoclonus? The clicking does sound like it. I am yet to find a method to diagnose MEM, all the doctors I asked was either dismissive or said that basically I could have my ear muscles cut and if the sound stops, that's my answer of the diagnosis, but I...

I have no hearing loss either. I got tinnitus and some fullness back in January then the ETD symptoms came about a month or so later. It’s been about 5-6 months of these symptoms. I’m inclined to believe it’s ETD. I also have hyperacusis and the odd fluttering and low drone at morning and night...

...low frequency tinnitus in my left ear. It feels like something is actually vibrating in my ear but I'm not sure. Could be stapedial myoclonus but it's hard to tell. At first I only noticed it at night where it would be intermittent (zzz,zzzzzzz,z,zzzzzz,zzz...) with no particular pattern...

...A lot of it was probably my fault. Loud stereos and concerts. I also used to sunbathe a lot too and developed skin cancer. My stapedial myoclonus is what is new. Luckily it seems to have mostly stopped! That started about 1 months ago after another trip to the ER to get defibrillated. They...

...that gets much worse when lying down? I have this problem also, in one ear. I think it's likely a form of an inner ear spasm (stapedial myoclonus). The buzzing can also start up, when I'm in a very quiet room. I've been using a silicon ear plug at night, and also in noisy environments...

My dad has advanced heart failure and he’s had the Pfizer vaccine.

Hi There, I suffer from middle ear myoclonus and my doctor is trying to sort out tests to see what muscle is going into spasm. I have had this one and off for a few years and its awful. I am so sorry to hear you are also suffering from this. I am on an amazing facebook page called tonic tensor...

I was asking you about MEM in a Research News thread, but didn’t want to tie up that thread so wanted to follow up with you here. You say your MEM was a buzzing sound. You also mentioned a loud hiss. Are you saying that having both your ears operated on eliminated both of these tinnitus “tones”...

Your comments are a bit vague to me.... The evidence behind what i said is in below link..... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208401/ Can you provide any evidence to back what you say???

Clicking noises might be a sign of Eustachian Tube Dysfunction. It's usually not bad though, so you might not have much to worry about. My right ear(the affected one) reacts to some sounds, such as my own voice or a chair being dragged across the floor. It seems to be a distortion of some kind...

...the tensor tympani and the stapedius. Could spasms of these muscles be a source of pain in hyperacusis? Not likely: Tensor tympani spasm—myoclonus—results in pulsing tinnitus; and since stapedius contracts during speech, we’d expect that if it was a source of pain, we’d notice it when...

...results had a number "55" in a table for my right ear. What does that mean? I also suffer from ETD, but a test for my eardrum reflex/reaction(whatever it is called) turned out fine. So I don't seem to have TTTS. It most likely is Stapedial Myoclonus, since my ear reacts to some sounds as well.

This one has some potential, but it is more about chronic middle ear myoclonus that can't be settled by non-invasive means. It may have some overall impact on tinnitus if part of that tinnitus is being caused by the deranged action of either of the main middle ear muscles (I would call this...

...result of emotional tension). Both of them went away with time and taking care of the primary cause. Also, I'd like to give you my opinion, myoclonus is usually affected by cyclobenzaprine, which is a muscle relaxer, and it acts on the central nervous system not the muscles itself. Mainly by...

Well you could have myoclonus due to neck tension, tmjd, vestibular neuritis, metabolic, acoustic, idiopathic etc... but if you have neck tension you could have a winner. have you tried a chiropractor, acupuncture or muscle relaxants? maybe even applying a laser on the tense areas of your neck.

Yours is the same as maz1 in the sense that after the sound finishes the contraction themselves start is what you're saying? During the external sound you have no contraction? Do you also feel the contraction? Or do you only hear the contraction?

An ear surgeon in Norway is going to operate on me, he has good knowledge of this. I am waiting for the operation now, and hopefully it will be in August or September.

Good points. While I can find some pretty negative experiences with tenotomies for myoclonus over at hyperacusis chat network, I can't find anything specific about operation conditions. Could you give me the links here? thanks

No @Chelles ...it just started. I take clonazepam 2mg a day. I believe I read benzos are sometimes effective but not on me. Can't do surgery (if it came to that) I have H. I am veing referred to ENT and my Neuro is checking me for SCDS. My ears have gone bananas now...I'm almost laughing...

That all depends, @Chelles. If the severity and frequency is high, prednisone might provide short-term relief (but note, that prednisone's effects tend to always be temporary, because as soon as the treatment wears off - and most treatment is usually under 30-days - the underlying condition...