Search results for query: Myoclonus

I had an MRI with the exact same machine two weeks ago and still have elevated tinnitus. Claiming that it is quiet is just a joke.

Hi friends, A companion said this in the forum while we was talking about middle ear myoclonus (estapedium myocloni): "I saw mention of a procedure once where someone had sort of compress for topical application of botox to the stapedius". Someone knows more about this? thanks.

Yes, I'm afraid it wouldn't and that sucks! Life is a bitch!:mad: I'm so sad. I'm so tired. F...k it all!

I think you mean a muscle of the middle ear. There is no muscle in the inner ear. There's a bunch of hair cells in there though.

I have done some searching on the Internet today. The symptoms sound a lot like middle ear myoclonus which is rapid, involuntary contractions of a muscle of the inner ear. I will have my GP check it out as you recommended. Guess that I will have to drink 3 glasses of wine prior to that doctor's...

His is more classical and more probable of being myo, as it goes off without noise provocation and sounds like rice krispies. He's also got messages from 10 years ago on the forum complaining about it, but that doesn't stop every joe schmoe over there from waltzing in to warn him of the...

How long did it take for you to see a change? Did it originally click along with the vibrating/bass sound? Or did the click come later?

The problem though is he's only curing dehiscence disorder and believes that everything that isn't low LDL is misophonia, which when you look close into is poorly thought out nonsense as it could be middle ear myoclonus instead. But great vid.

Thanks. Been having some tensor tympani and stapedial myoclonus lately that really sucks. Not sure I'll ever get better.

Forgot to ask, what do you make of humming and talking stopping the vibration. Is that an indicator of what the root cause could be? Or why coming back from driving and noticing it big time once the cars off indicates something to do with pressure change of the car or perhaps the vibration of...

..."trigger points" you've written about exactly? I have problems with my tmj too. Are you sure that it is tmj for sure which caused your fluttering in ear? Btw. - what kind of ear myoclonus do you have - strong rapid spasms, fast fluttering etc.? Could you describe it, please? Thanks in advance :)

Yeah, someone should try trobalt if they have it. I mean, we'd know if potassium modulators can work on pulsatile tinnitus then.

I get the muscle spasms in my ear too it's called middle ear myoclonus and I've had it on and off for 5 months. I find that magnesium helps and if you want to stop the vibration try wearing s foam earplug it won't stop it all the way but you won't feel the teitching as much.

...Feel something almost like a thump or whirr or vibration. What is your sound exactly? I am trying to establish the cause for us. If it is myoclonus I believe it's from neck or jaw possibly for you, enlarged thyroid pulling on the scm area. Mine also sounds like different bass tones. Low ones.

...thus the middle ear, do make sounds like what you are describing. I should know because I hear it constantly, not intermittently. Look up Myoclonus of the middle ear. There is a section of the myoclonus article on wikipedia for the middle ear, and there are some posts you can search for here...

...ENT is trying to work up my symptoms, I had an MRI yesterday and and my follow up appointment is in two weeks. I think it’s possibly a middle ear myoclonus that is contracting with my heartbeats but my ENT suspects a vascular cause. Does anybody have any advice or thoughts? Thanks in advance!

Tinnitus, Pulsatile Tinnitus, or Myoclonus can all be temporary or permanent, sure. At time we don't know. You're in a stage we have all been in at; the initial stage. You're really freaked out and you're fearing the worst. Everyone of us was just as freaked out as you are now. Just realize that...

Did you have stapedial myoclonus like I do? I'm wondering what kind of results you got from having it done? Are you glad you had it done, or do you have regrets?

@Street Spirit - I have the same myoclonus as you. I developed it 3 years ago. I've taken a lot of neurogical pills and until now no pill has resolved my problem, only valium brings a little bit of relief. Have you ever wondered if your ear myoclonus is somehow related to atypical trigeminal...

...- Tinnitus can act strangely - so what you describe might indeed be tinnitus. Or it could be a somatosound, tensor tympani syndrome, myoclonus, or any of a number of other things. Regardless of what it is, likely it will resolve on its own given a bit of time. Myoclonus and tensor tympani...

If flexeril helps you sleep and agrees with you, maybe give it another try. We're you told that it can help with myoclonus? I know you can't take medications too well, so I'd you find something that agrees with you and gets you a few nights sleep, it's worth a try again. Are you staying on...

...diagnose what the humming actually is? Is it part of T? I also have Hyperacusis. Weird thing is - If I plug my ears, my vibrating goes away. Also, I can feel something in my inner ear fluttering pretty often, feels like a muscle spasming. Maybe tensor typmani myoclonus or staedius myoclonus?

...pointed out, I can definitely say without a word of doubt that an ENT doing microsuction caused my tinnitus, hearing loss, middle ear myoclonus and hyperacusis. It's a dangerous procedure which at best should be tighter regulated, at worst banned altogether. I'd prefer the latter...

Hey so update. I'm getting botox at the end of the month, and then I'm getting an MRI because the Dr I saw is worried my myoclonus is caused by brain tumors. I don't have any new information about working treatments, I'm just scared. I've been scratching the base of my skull until it bleeds...

...I can’t help but find it curious. It almost feels like a game to see if I can make it slow down. I’ve read posts about middle ear myoclonus (MEM) and tonic tensor tympani syndrome (TTTS), and I know they can occur after acoustic shock. Could it be one of those? I did experience a physical...

...it was only as of last month that my loudness hyperacusis stopped and my migraines from it reduced about 90%. I still have both constant and reactive spasms and trigeminal neuralgia from the TTTS and palatal myoclonus aspect but the pain has reduced and the majority of my balance has returned.

...I took only one pill and within an hour my throat was moving. I was going out of my freaking mind that night, exactly because I already knew that this was palatal myoclonus. I had watched videos of it last summer. So I was like "DAAAMN, now I have this nightmare". I hope SOMETHING will stop it.

@Audiophile_bg I think I have occasional middle ear myoclonus (I have other types all the time, just speaking about MEM now). It feels like a butterfly trying to get out of my ear. But it comes once in few weeks-once a month. Sometimes in my right ear, sometimes in the left. But for me there's...

Audiogram is safe enough. However they may also want to test pressure in your ears. This caused problems for me bringing on myoclonus or thumping in the ear. This lasted for months. I will not let them do that again. ENT may suggest ear suction to clear wax. Don't let them do that in your good...

Hi I have moderate to severe hearing loss in my left ear along with tinnitus. I also have MEM (Middle Ear Myoclonus) which affects both ears. The MEM is causing me a lot of stress which then makes it flare up. Does anybody have any advice for stress busting activities or techniques that might...

I got it sometimes, with no obvious trigger. Some have put this down to middle-ear myoclonus, which often accompanies tinnitus and hyperacusis.

As for me, I'm now really stuck on whether I have true hyperacusis or true myoclonus and which operation to think about first. I wonder if the excessively vibrating oval window could cause the same theoretical stapedial pull my soft sound sensitivity would be causing, or whether both transection...

No. I suffer from otosclerosis. I regained a good chunk of hearing (closing the air-bone gap). Lost a little bit in the high frequencies. Overall positive. The disease also stopped progressing after that, but I don't know if it's because of the surgery or the heavy doses of Fluoride that I'm...

I meant 3 in severe form, but yes I also have crackling sound, I had it since I was born, its not so bad because it only crackles when I swallow.

...your T perception increases, causing anxiety, which in turn triggers the mechanism of H, whatever that may be. I'm increasingly of the opinion that stapedial myoclonus plays a huge part in augmenting T with H, and that can most certainly be set off by anxiety. What form does your H take?

Yes dude , I took Rivotril for a year because of I was wrongly diagnosed with Essential Myoclonus. Suffice to say that it turned me into a zombie goldfish so I decided to stop ...cold turkey as my doctor advised me !? After about a week of torment I literally heard my hearing drop , day after...

...why I suspect you might have something similar going on. Ears (Eustachian tubes) don't pop at random as far as I know. I think some form of myoclonus can have that effect, but I may be wrong. There is palatal myoclonus, and then there is another type that affects the Eustachian tube... I...

DD, I looked up Middle Ear Myoclonus and it resembles my symptoms, fluttering/clicking non-rhythmic, the past week I was dizzy a couple of times, and just out of the blue for over a month now I have hemifacial spasms (face twitching on my right side of the face. I'm going to my Primary tomorrow...

Greetings all, I just wanted to share my myoclonus story with you in case anyone can benefit from it. I went from having 'thumping' in my ear about twice a week for about 6 months to being 'thumping' free for about 6 months and counting. I just wanted to start by saying that I am not a...

...seems to fluctuate in volume some during the day. I'm having another problem in my ear in addition to tinnitus. I now have stapedial myoclonus in my left ear, and when it flares up it seems to make my tinnitus a lot louder in that one ear. It is louder all day now too, and loud enough that I...

Well I haven't done a Stapedial Reflex test yet. What I'm going through seems to be pointing to it. Idk, mine seems to have started very randomly. How did you get it?

...in those cases wherein the surgery doesn't work, the cause is not the tensor or stepedius, it is the muscle that is involved with palatal myoclonus(even if you don't have palatal myoclonus). He said something else about a possible brain stem issue with some of the cases of myoclonus and asked...

...grains, nuts, seeds; no prescription needed) may relieve muscle spasms. Completely suppressed with carbamazepine (tegretol). 3. Palatal Myoclonus - When the muscles of the soft palate contract they can produce tinnitus. The symptom most associated with this condition is a clicking...

...think about this without giving TRT a fair chance, and I know Greece sounds uber dodgy but if you look in the healthboard forum, in the myoclonus proboards forum, and the chat-hyperacusis forum, you will see that while in the US, it was Sismanis who cured Lib, a user with over a thousand...

...However, I had extremely somatic tinnitus where even a subtle movement of my lips would alter the pitch significantly. I had middle ear myoclonus and once I had my Tensor Tympani and Stapedius severed, the somatic tinnitus declined 95%+. I emailed Dr. Shore my case results but she was not...

A fluttering sensation in the ear may be a symptom of middle ear myoclonus. The fluttering could be due to the contraction of either the tensor tympani or stapedius muscles. The tensor tympani muscle and stapedius muscle reflexes serve to protect the ear from exposure to sound. The more...

In addition, I also suspect that the myoclonus can spread and not just get louder, so two many acoustic traumas with a damaged muscle rattling the other muscles around would render tenotomy ineffective, as it would spread to the levator palatini. Or the chain of ossicles could tear in new...

...dont undertand about this patology. Except one doctor but that man finished work in the hospital and is not posible surgery in his clínic, Im trying cirugury outside. Cut both (TT and SM). I recomended endoscopy USB un amzon forma try ser the myoclonus and sentido tour doctor. Very difficult see

Hi @ShellyW Are you taking any analgesics for the pain?

So there's someone who had Silverstein's procedure and not had good effect? I was of the impression from Silverstein's videos that every patient had been successful.

...on low gluten and avoiding high fructose corn syrup entirely. My T spikes have not been quite a bit better and less frequent. My H is down and my middle ear myoclonus mostly stopped. Also my T side jaw clicking stopped. I am very pleased with this improvement although my T and H are not...

Thank you for the support Sarah. The myoclonus is subsiding. I went to a neurologist today, but they weren't of much help, they didn't even want to give me an anti-convulsant. I don't even remember the last time I went to my GP and got adequate help. Thanks for the support.

...I know you said there isn't much that the Dr.'s can do, however are they going to look me at me like I'm crazy when I mention this middle myoclonus? my family all does and its very depressing, I just want to go and talk to someone who believes this is a real thing. I'm almost afraid to bring...

...anymore because I can't function when I take it. Is your sound there 24/7? And I totally agree in the morning I can't stretch otherwise the thumping will start with a rage. Have you asked your doctor to see if maybe you can have middle ear myoclonus? Maybe they can start you on a muscle...

hi i havent attempted keto since the above post. the myoclonus is really bad at times. i spoke with ent last week and he said if it wernt for the fact i am single sided deaf they would just go in and the muscles, but as i have only one functioning ear the risk is too high. on another note, he...

Hi ridgew, thanks for your entry in this discussion. If you're still around, I wanted to ask you where have you read about these issues with incisions in the ear drum. Were they patient complaint reports? Academic papers?

...Tinnitus was gone. I had pulsing since July, 2020. Just a little note for anyone who thinks they might have other symptoms of Middle Ear Myoclonus. I won't be around to answer questions as early days in recovery and still have lots of tinnitus. Interestingly enough my ability to...

I'd rather keep this topic about the sound therapy provided by Mr. Case and people's experiences with it. If you have specific questions you can PM. My TTTS is mild and happened 2 months after my ototoxicity.

Myoclonus has been usually described as a symptom associated to disorders of the nervous system, so it is a symptom, and not a cause of hyperacusis. I have read that the nervous system is part of the central processing of sound. Grommets.. in person I only know one case of a girl with...

...I had been using nasal steroids for several months, and my ears had started to hurt and my I heard my breath and heartbeat unusually louder in my ears.. I even took Prednisone, and antihistamines. Soon after that I got ear myoclonus... I have worsened my condition.. and maybe even caused my...