Does anyone know why/how I would be getting pain sensations when I get jolts of tinnitus? I get these high pitched zaps which hurt… does anyone know what that is? could be muscle spasm?
Hello, I'm looking for advice from those who have had successful outcomes with TRT.
I have mild high-frequency hearing loss and want to start using hearing aids with sound therapy to help with healing. However, I don't experience ringing. Instead, I hear crackling, electric shocks in my ears...
I will be starting it soon and will report back on my results once the program is complete. If you have any questions, feel free to ask, as I’ve had many in-depth discussions with them.
Is Susan Shore really going to let 20 years of research go to waste? Has it truly been abandoned? If so, why did she host that webinar back in June? It’s hard to believe. She could leave behind a great legacy, but it seems like she doesn’t care—or at least that’s the impression I get.
Hi, are you trying this protocol? Do you think it’s worth taking the medications? They claim they can reduce tinnitus to a manageable level. I've had several emails and phone calls with John, the intake coordinator.
I am very skeptical about the NeuroMed program, even though I initially wanted to try it. The drugs being offered, such as Topamax and Nortriptyline, seem quite harsh. I've noticed that some people have already tried them, but the reported side effects are concerning. What worries me most is...
At least they are taking action and being transparent about it. Dr. Djalilian has conducted clinical trials on his migraine treatment protocol, and in my opinion, his research on middle ear implants is very promising. Electrical stimulation has been around since the 1970s, so it's not exactly a...
Hopefully, Dr. Djalilian will touch upon this during his live Q&A. I’ve helped Tinnitus Quest by compiling a list of questions for him to prepare. Many have wondered if the middle ear implants will help reactive tinnitus, hyperacusis, noxacusis, and multiple tones.
A 20-minute treatment of the electrical stimulation?
Yeah, I am worried about this as well, since I cannot tolerate hearing aids. If I can’t tolerate hearing aids, how would I tolerate this implant?
I want to ensure I’m reading this correctly—this sounds like a great result! I'm crossing my fingers that Dr. Djalilian’s work on middle ear implants will likely achieve similar success.
Do we know what will be done with these findings? Are they moving forward with a plan to commercialize this...
I spoke with @Hazel earlier today. If anyone has any questions for Dr. Djalilian, please feel free to post them on my profile, as I will be compiling a list so Dr. Djalilian can review them before the Q&A. It’s my understanding that questions can also be asked “live” as well.
Thanks all...
@BrOKeN_1 I am just trying to do hearing correction not any sound therapy. I have a dip at 6-8 k and beyond which is not normal for my age. Bone conduction is normal.
I agree with you. I was hoping we could speed this process up. Maybe raise enough funds to hire a second ENT to help Dr. Djalilian get as many people implanted as possible (providing we get FDA approval to do so). Is this something Tinnitus Quest can fund? What about getting Dr. Carlson on...
So another treatment is sitting in a closet somewhere collecting dust while we suffer. If they need money, let’s raise funds.
I don’t see this audiologist on the Tinnitus Quest Board.
Absolutely, it is within Auricle's right to do as much or as little public relations as they choose. However, waffling like this is very unprofessional. They must not truly understand what suffering and isolation are like. I hope they are never put in such a desperate situation like many of us...
I am slightly cautious about Dr. Hubert Lim, but maybe I don’t know all the facts. He seems proud that Lenire is a “habituation” device, not a treatment to reduce tinnitus. Does he understand the severity of this condition? Will he be pushing for silence?